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2 years of throat clearing, thick mucus and post nasal drip sensation (allergy/reflux/nerve?)

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derekjp
derekjp

Hello,

Suffering for 2 years with sensation of thick mucus stuck at the back of the nose, which I'm often able to hock up out of my mouth (clear but very "snotty" and like thick glue when it's in a tissue).

Sometimes it gets in my throat and I often clear my throat all day long too. I guess this is post-nasal drip, but not watery or thin (like you apparently get from an allergy), it's very thick and feels awful like a lump or glob that won't move, until I hock it up, but within minutes it's back again...

Tried all reflux and allergy medications (double-dose PPIs, steroid sprays, allergy RAST tests, antihistamines, singulair, antihistamine sprays, nasal irrigation, gastrocopy, multiple nasal/throat endoscopes, sinus CT scans), and they can't identify the problem... All of my symptoms disappear completely, when I eat or lay down with my head to either side (which I find very odd! Equally, if I take pseudoephridrine (oral decongestant), my symptoms go too (but I know that's not a long term option).

Anyone ever dealt with anything similar or know what to suggest next?I've been thinking of self-treating with amitriptyline (10mg at night) and gabapentin (100mg 3x per day), to see if this is a hypersensitivity/nerve issue. I have absolutely no other symptoms and can't live much longer like this, it's completely ruined my life and things are just getting worse sad

Thanks for any help at all.

15 likes, 758 replies

758 Replies

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  • barry12128
    barry12128 derekjp

    Posted

    Hello to everyone suffering from this illness.  I been suffering for 4 years off and on.   It started off a few times a year and then worsen as time went by until I was coughing up Phlegm every morning and throughout the day.  But recently this man told me about a product in the health store called “Black Seed”.   You take a teaspoon once the morning and once at night.  You can add a teaspoon of honey and a teaspoon of cinnamon and mixed it together.  It will give you relief but it will not cure the problem.  Just like the lady below said, I do notice food with oil in it triggered the symptoms.   Tried it and see if it doesn’t bring some kind of relief.  These symptoms can drive you crazy but it does bring some comfort to know that others are searching for a cure.
  • worcesterpaul
    worcesterpaul derekjp

    Posted

    Ive had the mucus glue with blood in for 11 years, since i was diagnosed with Sarcoidosis, i have always had over production of mucus since a really early age, But since around the time was diagnosed with chronic sarcoids it has been more noticable, i used to think it was a side effect. and when it flared up again in 2016 with a drowning in mucus cough and big sticky lumps every day has been more stressing. few days ago i rushed myself to a&e/ER and whist there still hacking my heart out injured my back that i can barely move now. The doctor has given me Nasonex and im on my 3rd day of it. It has stabilised some excess production whilst i eat already, though even as i right this ive just coughed out a big lump of the sticky mucus. the last 11 years of this has worn me down a lot, even having Septoplasty for a deviated septum and vessels sealed behind incase that was the issue. Had a brief rest of several months from the sticky after that. I just wonder if it is part of my disease which only goes into remission but never goes. I have also vomited every day from 4 to 43  and acid reflux most of my life, again since 2011 was prescribed omeprazole, and been on it ever since, and now at 53 that part of life is better, though i do have an enlarged epiglotis because of it,. So is Nazel drip, and reflux all caused this problem with the sticky mucus. All you can do is keep pushing. Ive wanted to give up so much at times. 

    Am waiting for the day you can just walk into a gp's center and they will pop you through a full body scanner... Think thats a long time off .

     

  • mary74153
    mary74153 derekjp

    Posted

    Hi Derek jp

    See if you can find my post from 2 days ago titled Hi I'm back. I updated my condition diagnosis and it may be of help to a lot of us on this site. Basically forget the ENTs and go to gastroenterologist.

    • sam01206
      sam01206 mary74153

      Posted

      Hi, I can´t find your post. -could you please repost it or send it to me by message! Would appreciate it!

      Thanks.

    • barry12128
      barry12128 mary74153

      Posted

      After reading through the comments I thought to myself the common denominator in most people comments was acid reflux.   
    • mary74153
      mary74153 barry12128

      Posted

      YES!!!! all the surgeries, nasal sprays , PPIs, zantacs,, nasal scopes, antibiotics, nasal rinsed were useless. If you haven't yet seen a gastroenterologist, make an appointment.

  • mary74153
    mary74153 derekjp

    Posted

    Posted 2 days ago

    I saw a post that said I probably got better because I haven't posted in a while. The sad answer is I have not gotten better. The last time I posted I mentioned a visit to a new ENT but felt I got brushed off as a "quality of life issue". I was angry at his attitude, however, he had mentioned that my nasal issues are probably not "nasal" issues but reflux issues. On the off chance that he was right, I went to see a gastroenterologist. And BINGO!!!! He was so understanding and nice and told me the following and that it very well may be. 1. The reason nothing comes out of my nose when I blow it is because the mucus is not in my nose, but in my laryngopharyngeal area of the throat...also know as "Silent Reflux". He has me scheduled for a EDG and is going to take a biopsy to confirm either reflux or to see if there are any other organisms. He said I do not need a PPI but will prescribe motility medication to allow the mucus to be pushed down the esophagus instead of sitting in the laryngopharyngeal area. He said that very often ENT physicians don't pick up on this as they are only focused on the NOSE. I damn hope he is right !!! I see a light at the end of the tunnel... and hoping it is not an oncoming train!!!cry I will keep you all posted on the results. It won't be until early December.

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    mary74153

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  • mary74153
    mary74153 derekjp

    Posted

    Posted 2 days ago

    I saw a post that said I probably got better because I haven't posted in a while. The sad answer is I have not gotten better. The last time I posted I mentioned a visit to a new ENT but felt I got brushed off as a "quality of life issue". I was angry at his attitude, however, he had mentioned that my nasal issues are probably not "nasal" issues but reflux issues. On the off chance that he was right, I went to see a gastroenterologist. And BINGO!!!! He was so understanding and nice and told me the following and that it very well may be. 1. The reason nothing comes out of my nose when I blow it is because the mucus is not in my nose, but in my laryngopharyngeal area of the throat...also know as "Silent Reflux". He has me scheduled for a EDG and is going to take a biopsy to confirm either reflux or to see if there are any other organisms. He said I do not need a PPI but will prescribe motility medication to allow the mucus to be pushed down the esophagus instead of sitting in the laryngopharyngeal area. He said that very often ENT physicians don't pick up on this as they are only focused on the NOSE. I damn hope he is right !!! I see a light at the end of the tunnel... and hoping it is not an oncoming train!!!cry I will keep you all posted on the results. It won't be until beginning of December.

  • ammy56306
    ammy56306 derekjp

    Posted

    Sir..... What is the current status of your throat.......?

    Now it is better.... And why it feels lump in throat I think swallowen tonsil touches the tongue and it feels like something struck behind the throat...

    • derekjp
      derekjp ammy56306

      Posted

      Sorry ammy, the status is that I am still struggling every day... nothing has changed yet I continue to spend every penny I have on trying to resolve it. I won't accept a "you need to deal with it" approach but it's virtually impossible to live normally/without struggle

    • berniel
      berniel derekjp

      Posted

      this is being caused by anxiety....fix the anxiety and you will fix problem
  • JBennett360
    JBennett360 derekjp

    Posted

    So I had my endoscopy last wednesday. Nothing unusual was spotted or found.

    For the rest of the day after it, and the following day, the lump feeling had seemed to disappear. Not sure as to why?

    Anyway, it's back and it's currently worse than ever. Waking up and struggling to swallow without it feeling I'm trying to swallow huge chunks of food.

    I don't know what the next move is really!

  • paul9298
    paul9298 derekjp

    Posted

    Yes I have exactly the same problems and its hard for other people to understand exactly how bad you feel . I feel as if I'm blocked all the time.I believe I have had LPR for some years. After a dignosis of Gerd and Barratts I decided to have a LInx implant . Since having, it seems to have triggered the constant muscus. Ive had further endoscopies and a 24 hr PH test which confirmed the presence of some reflux still but within the normal range and that the LInx is working fine. I've been prescribed various tablets , tried going back on proton inhibators, tried various anti muscus products all with without any  success. I dont have any blocked noise but will now start to investigate my sinuses as I wondering if I might have a post natal drip although I cant feel it,

  • kevin49364
    kevin49364 derekjp

    Posted

    Have any of you had any feelings of heart palpitations or what feels like heart palps?  I have felt as if my heart is jumping in my chest and I have many if the exact symptoms you all describe.  This drives me almost as crazy as the stupid phlegm and coughing.  
    • barry12128
      barry12128 kevin49364

      Posted

      Yes, I had an episode where I experienced that my heart was beating fast and felt as thought it was about to come through my chest.   I recently started to take a Natural Anxiety medicine from a Health Store.   After two days I do not have anymore phlegm. So, I come to the conclusion that stress and anxiety was throwing my system out of wack which caused sinus pressure and overproduced phlegm which got stuck in my throat and sometimes chest.  Cross my fingers on the anxiety medicine..so far...so good.  If I looked back on my life I always stress and have been an anxious person.   I guess in aging the anxiety is causing my body to react.  
    • derekjp
      derekjp kevin49364

      Posted

      Make sure you rule out any drugs with pseudoephedrine in them for this side effect. It's very common and the longer you take it, the more likely you're to get experience it. I did.

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We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.