2nd opinion
Posted , 10 users are following.
Well, today i went to get a 2nd opinion from another doctor in the practice after completely losing faith in the doctor i've attended for the past 2yrs. I told her of my fatigue, pain and stiffness and how the other doctor didn't actually acknowledge that PMR may be at least partly to blame. I told her about my headache that i've had for 6wks and again not acknowledged by the other doctor, i told her i was worried about GCA...i told her how no matter what i said to the other doctor he put it down to my mental...i'd said i felt self aware to which he replied "you can't say you're self aware...how can you say that...no one knows if they're self aware" which had really upset me at the time as i had a rubbish couple of years (personally) and was pro active in helping myself to get better...i'd been in counselling, i'd got myself a new job, i had looked after me....ANYWAY...the new doctor said "ok we'll get an ESR rate done to see if your PMR could be causing any of these symptoms" i asked about my headaches then she went on to tell me about her gas central heating breaking down but how the engineer managed to fix it but couldn't find a reason for the problem in the first place...!!! as in..i have a headache/pain/stiffness but there may be no cause for it. It really concerns me that no one is interested in checking out my head...other than psychologically...God give me strength...my ESR rate was 13 in November
1 like, 19 replies
Elijo IssyR
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ptolemy IssyR
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Anhaga ptolemy
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It's shocking that the doctors are not following up on Issy's headaches.
IssyR ptolemy
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IssyR Anhaga
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Anhaga IssyR
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VickieS IssyR
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penelope10875 IssyR
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IssyR Anhaga
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IssyR penelope10875
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ptolemy IssyR
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IssyR VickieS
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Anhaga IssyR
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IssyR Anhaga
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EileenH IssyR
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I think you might need to even move practice - they have got you in a little box because of your history and they don't want to let you out. I have another friend who had a similar problem - but they have now realised she really is ill (not just PMR though). I also had the same problem - I had to leave the practice. I was totally up front with the new one when I went to see if I could sign on - I (and the daughter that had the problem) were seen 20 mins later. That was a while ago and in Scotland but with luck you will find another practice.
The other thing is - YOU have to manage PMR too, it isn't just the symptoms being controlled by the pred. You have to rest and pace yourself - you cannot continue doing what you did before. Until you calm down a bit nothing will make a lot of difference. I'm well with PMR on 5mg pred - but I could not do what you did at the weekend - I'd be in pieces. Stress of any sort and PMR do not make good bedfellows.
As someone said - find a reliable friend/family member to take to the doctor with you and make sure the doc listens and doesn't dismiss you as "all in the head" - because I think a lot of PMR patients do get that label, especially the younger ones. BUT you MUST rest too. Even pred doesn't do it all.