30mg prednisone desperation
Posted , 14 users are following.
Hi, I don't know if you remember my story, but I'm the one who can't get reduced on prednisone without a great deal of pain coming back. Well, several days ago after being on 20 mg for a long time and crying every time I walked down the hall in my house, I suddenly started taking 30, 20 morn and 10 at afternoon, and within a day I felt better. The searing pain in my hips was gone and I could walk without crying. The past week I have driven myself to two visits to friends and to a dr appt. Though still in pain, I have done this when I would usually have to cancel the friends, and have my brother take me to the dr.
Everyone will tell me I'm doing a bad thing, so I haven't told anyone yet. What do you all think?
0 likes, 30 replies
judith90525 DebbieHurts
Posted
I expect EVERYONE on the forum will write in and say what I am about to say. I.e the dose of Pred you need to be on is the one that eases your symptoms!! In your case that's quite high but......let the Pred do its work and reduce the inflammation then you can SLOWLY start reducing. Pred is our friend not a beast to be feared. Far better to let it do its job because the inflammation can cause far more harm long term than a high dose of Pred.
Good luck Deb!!!
EileenH DebbieHurts
Posted
Did you ever try doing that with 20mg? Maybe the problem is that the antiinflammatory effects isn't lasting the full 24 hours - happens to a lot of people. And has your doctor EVER thought of trying depotmedrone injections to try to manage your pain? Or possibly even dexamethasone tablets - as I have recently met a few people who find it covers them better 24/7.
I do appreciate the fear they have of pred at high doses. But if there is no other option for pain relief - surely quality of life overrides that?
ptolemy DebbieHurts
Posted
Have you talked to your doctor as it seems there is a problem if you are still on such a high dose after five years?
DebbieHurts ptolemy
Posted
Yes, she doesn't think it is PMR anymore, though I do. I've had many tests.
DebbieHurts
Posted
My SED rate is 69. I am now prediabetes, too.
ptolemy DebbieHurts
Posted
Has she thought of fybromyalgia or rheumatoid arthritis if she does not think it is PMR?
EileenH ptolemy
Posted
Fibro wouldn't account for the pretty high ESR though.
ptolemy EileenH
Posted
It was just some thoughts.
DebbieHurts
Posted
Thanks. I will mention this to the dr. I'm so conflicted, but so desperately in pain.
DebbieHurts
Posted
Yes, I have fibro and have had it for many years; the pain is quite different. I tested neg for rheum. arthritis.
ptolemy DebbieHurts
Posted
It does seem that you have more than a PMR problem, as this has gone on for five years, and you are still going up to 30mg of pred, although I may be wrong. I remember you in 2014 saying how much pain you were in.
DebbieHurts ptolemy
Posted
Every thing seemed to be going well with reducing then, got down to 13mg. Then I had pneumonia and since then I can't reduce the pred. without a lot of pain in the PMR places. That might have been 2014, like you said. Since then I have had: two fractures in my back, two knee replacements, continuous oxygen, back pain, fibro ache, PMR pain. Just a leetle too much for me.
Michdonn DebbieHurts
Posted
Debbiehurts, is your diet helping, first with your bones and then with PMR. NO sugar of any kind that is not organic. We eat nothing that is not organic. Then check on all foods that help to grow bones. My bones on the last scan were denser than my first scan. Which the doctor could not explain, I told her diet and exercise! It is not easy , but you can do it and it's worth it. 😉
ptolemy DebbieHurts
Posted
Have you been given Methotrexate?
irene_88946 DebbieHurts
Posted
My Docs say fibro dosen't get better when taking steroids. I am not totally convinced that is true.
Anhaga irene_88946
Posted
I guess it's been shown that steroids may enhance the action of other pain drugs, but tests of steroids alone didn't show any improvement in fibro.
Have you found they help?
EileenH irene_88946
Posted
There is no logic in steroids relieving the pain of fibro which is a fault in pain perception not inflammation.