3Years after a mild stroke, i am experiencing TIA type symptoms daily? My consultants say its stress functional symptoms.Help me someone Please!!
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3years ago I had a mild stroke, and since that day, ive been having TIA type attacks near daily. WHY? I need answers and help PLEASE.
Hi my name is Dave.
I am requiring any help feedback, as to whether anyone else seems to have or have had recurring stroke like symptoms, 3years after a small stroke.
With the help of my wife and others, I have compiled this.
8years ago, at the age of 39 yrs. I was a high flying energetic senior manager within a large uk-ftse. company, I had worked for many large UK corporations in a senior position very successfully, and also Director of my own businesses, when I suffered a large nervous breakdown.
This was due to 20years 15hour day 6/7days a week workaholic lifestyle, in senior business management working for private and public companies.
I suffered and am still suffering with hypertension, high cholesterol, and abnormal electrical QT wave diagnosed when I was 24years old.
Due to constantly having heart pain, I underwent stress tests which I was unable to complete, after having an angiogram, it was then found that under stress, my heart arteries and blood vessels constrict severely causing me pain.
All this eventually with my high work ethic, caused me to have a nervous breakdown, I then was unable to work and I fell into severe depression, all this was been treated with medication as belpw.
Then 3years ago whilst having a nice stroll near the beach at Cleethorpes, with my wife, I experienced loss of feeling in my left leg for approx. 10minutes and then the same thing in the left arm.
My wife and I laughed it off, wondering what was going off, I also felt unwell and dizzy so we decided to drive back home to Doncaster.
My left side felt weak, so after having a couple of drinks we went to bed early.
The next morning I was unable to wake up and get up properly, so my wife came upstairs and noticed that the left hand side of my mouth and eye had drooped on the left side of my face.
I was very dizzy and unsteady and weak on my left leg and left arm, and I had this very severe pain behind my left eye socket, and my wife states that I was slurring and unsteady due to dizziness.
Luckily my 24year old daughter who had just popped in mentioned to my wife, that this looked like a stroke, the paramedics who came out were shocked that on inspection I had not gone to the hospital for treatment the day before, they immediately took me into Doncaster Royal Infirmary for hospital treatment.
I was treated for a stroke and subsequent CT, MRI scans and the consultant reports within the first 48hrs states as follows;
‘‘ This gentleman’s symptoms suggestive of ataxic hemiparesis, would be in keeping with a lacunar syndrome although the white matter changes in the MRI are more predominant in the left hemisphere than the right and I cannot identify any clear brain stem lesion on review on the PACS today.
Undoubtedly there is some functional overlay component. This gentleman’s presentation is in keeping with his significant history of depression. His signs would be in keeping with a lacunar stroke and I note that carotid dopplers show carotid atheromatous disease in the asymptomatic artery, Therefore it is entirely reasonable for him to be on appropriate vascular preventative therapy. He is aware of persistent sensory deficit which is causing him anxiety.’’
I have been diagnosed as having cerebral vascular disease, hypertension, angina, diabetes type2, reflux, glaucoma, asthma, depression.
I am on medication for my above health issues as follows, Clopidogrel 75mg, Amlodopine 10mg, Montelukast 10mg, Atorvastatin 40mg, Irbesartan 300mg, Bendroflumethaizide 2.5mg, Pregabalin 600mg, Metformin 500mg, Isosorbide Mononitrate 60mg, Lansoprazole 30mg. Salbutamol and Seretide inhalers. Glyceryl Nitrate GTN spray for angina. Cocodamol and Paracetamol for pain management.
However from the moment I had this mild stroke I have been getting recurring stroke like symptoms, for now 3years after.
Initially my left leg had a small shake uncontrollably, however since being prescribed Pregabalin in the 1stsix months, I have not hardly had a recurrence, just slight shakes now and then.
These episodic attacks are now as frequent as three times a day and sometimes 7days a week, where I suffer episodes of stroke type symptoms, during my sleep, and twice during the day.
These attacks which can be from light to severe attacks are as follows, a light attack feels like an electrical current going through my head and dizziness, and then a bad attack sometimes precedes with a tingling numb-like feeling in left-hand side of my face, which then ends with me displaying the symptoms as already described on numerous occasions and literally ends with me sleeping heavily, and my leg and arm feels like a lead weight, these have been seen by many medical professionals within Royal Hallamshire Sheffield Hospital, Doncaster Hospital, the nurses at the local GP and local CMHT.
A heavy attack has the following symptoms, dizziness, pain in my head, a drooped mouth and left eye and left hand-side face, weakness in left arm and left leg, unable to walk, slurred speech, tingling in the left-hand side of face, blurry vision. These attacks whether light, medium or heavy, always ends up with myself being completely fatigued, confused with dizziness and then my brain forces me to sleep, from 2 to 4 hrs. or so.
These attacks happen during my sleep, as my wife is unable to wake me up in the morning and when i do finally wake up, i have the tell-tale left sided face droop etc, they can happen anytime of the day, whilst I am sat watching tv etc. sometimes 2 to 3 times a day for up-to 7days. My memory is terrible, i am unable to concentrate for long periods, i also lose my balance a lot, and I sometimes have a very severe pain, behind my left eye socket, and this does not go away with painkillers.
However after an attack, my limbs are weak for a day after.
Once i have recovered ie woken up after a sleep from 2 to 4hrs, i feels sometimes like I am drunk and very hung-over for a day or two, I am completely washed out, with varying pains, headaches and i am unable to walk once these attacks happen and i am very weak on my left side leg and arm daily and on-going.
I get dizzy spells during an attack and also when im not having an attack.
Also I am slurring, or mumbling during an attack, my speech is clear when I am not suffering attacks however my wife and children have stated that sometimes i say the wrong words or whilst speaking sometimes put the wrong words that im trying to say, in the wrong part of a sentence, which they find amusing, and i find frustrating and angry with myself for doing that, but i do not have slurred speech outside an attack unless I am tired.
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My vision has deteriorated since the stroke, and my left eyesight is terrible, i have just been diagnosed with glaucoma and diabetes and early stages of diabetic retinopathy, however the medics are looking into my eyesight issues but with no joy.
I have also been experiencing in addition to the other symptoms, pain in my bones on my left side and back, especially when i retires to bed at night, to the point where we have had to obtain a loan to purchase, a £3000 hospital type adjustable bed, which has not really alleviated the pain.
I am under a psychiatrist for depression, but nothing seems to be working for me, I am on medication, I have been tried on different medication over the 8years and im currently on 40mg of fluoxetine a day. My depression seems deeper since the stroke and i am struggling daily.
Im under a neurologists at Sheffield Royal, but they have put it down to functional symptoms due to stress, I have been recommended for psychotherapy, but will not be allowed down this road until my depression stabilises, we need help or any information from stroke survivors, have you suffered anything like this...
I feel like im a pain to the medical profession, and as a previous troubleshooter in management and business, in working as a consultant in performance and productive environments and with working knowledge of performance measures within the national health service, i feel I am a problem to performance and productivity figures as i am still on the consultants caseload. However these are just my feelings, and does not reflect on anyone’s professional expertise.
My local GP, is understanding and very GOOD at helping me emotionally and with medication to control my symptoms.
Ive been tested for bells palsy, ms, but no joy, does anyone have these effects or symptoms after 3 yrs after a stroke?
I have never ever regained the strength in my left leg or arm, this was only a small stroke, due to clotting from furred up carotid artery the consultants have informed me.
I am constantly in turmoil over this, feeling very depressed and even suicidal on a daily basis,
My stroke was not a bleed, it was a mild stroke, possibly caused by a clot from the diagnosed furred up carotid artery in my neck.
I just need some answers or other experiences and how they have coped or resolved.
My grown up children, aged 30, 24 and 21 and myself and wife are getting exceedingly worried, as I am having more of these episodes especially over the last 8-10months.
This is affecting my whole family too, in a depressive way.
I need help and answers and im praying for answers, please help someone, all this makes me feel very suicidal.
Doing this email is very hard mentally as i am constantly drained, it has taken me 3 weeks on and off to try and compile this email with the help of my wife and others.
Thanks
Kind Regards
Dave and Nicola
4 likes, 96 replies
jimmy1984
Posted
It is so sad to see your condition and but i do believe that for every problem there is solution. I can not give you any recommendation on the medication but i can do recommend few things for you .
you can go for herbal body massage which will be more helpful for you to recover from the pain, fatigue and depression also it will help you to come to your normal life . i myself is a massage therapist and i am specialised in herbal medicinal treatment and there are more than 10 patients who are under my treatment right now. i do give them the combination of massage and physiotherapy which i actually made their life more better and happy. most of them are now able to walk and do their routine work without others help . but before you go to any body make sure that they do have experience of treating stroke patients as there is no meaning of giving simple massage , also you will have to go for few session to see the difference . if you need any further help you can contact me via ***
Emis Moderator comment: I have removed the email address as we do not publish these. You can use the Private Messaging facility if you do wish to make contact with each other.
Ashlynn
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The one thing I've learned about brain damage....NO ONE can predict what it will cause. No matter how small or large the brain damage.
Babaloo
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dianna57751 sicknfedup
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Ok here is my story and what I know so far, and hope this helps you as well as others.
November 13, my husband had a stroke. He went to the hospital and then to rehab for a few weeks. he is also a diabetic and has been for over 20 years along with heart disease. While he was in rehab things were going great, he seemed to talk pretty good and remember names and faces. Oh his stroke affected the right side of his body, he lost partial eye sight in the right eye, his right arm and leg were affected and his speech and mental ability were affected as well. He had a relapse there in rehab after being there a few days and made him worse. So he had to be put back in the hospital and then after a week he went back into rehab. He finally came home before Christmas. during that time he wasn't able to talk very well or get the words out he wanted to. His memory was bad and he wasn't able to walk very well at all. Then Jan 1st he had another stroke and yes this was confirmed by the doctors he had a stroke. He went through rehab for about 6 weeks well actually he went to a nursing home. He came back home in Feb. of 2014. He had another stroke in March and is still in the nursing home. In July he again had another stroke. Just this past Friday he had another stroke. These were all confirmed by the doctors in the hospital. So I asked questions about when these strokes were going to stop no one can give me any answers and he is taking seizure meds, plavix, asprin, the whole nine yards of meds. He just went to the cardio doctor last week. I asked him about the strokes and he said "he won't get anymore strokes cause he is on the good meds. But... he has been on these meds since Novemeber. He still keeps getting the strokes. He has the same symptoms as you do by the way. I am not sure but you may have been getting strokes over and over again because he has. I don't know how much longer he can hold out. I wish these doctors would quit playing games with us and tell us the truth. I hope you are getting better. I hope this helps a little for you and your family. You are not alone.
wdtony sicknfedup
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I also suffer from migraines so it is sometimes difficult to distinguish between migraine symptoms and stroke injury symptoms. I am still going to neurologist and will have another MRI soon to check for any new strokes. Tonight both of my hands went partially numb and then returned to normal after a few hours. I knew I was already tired and pushed myself to go to the store anyway, so I assumed I would experience some type of sensory deficit.
Sorry I don't have an answer but after 5 years of experiencing this, I don't seem to be dying from strokes. This might just be residual effects from the damaged brain and when fatigued or stressed, the brain may simply not be able to keep up with all the processes. Good luck to you.
nathan57692 wdtony
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wdtony nathan57692
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Throw some water on a robot's circuitboard and if some of the components are damaged changing values and outputs, etc. you are going to have some crazy robot activities.... especially if the program is rigged to compensate and adjust for imbalances. And robots are a billion times simpler than the human brain and aren't effected by lack of sleep, diet, exercise, stress... etc.
All that said, I believe it is possible to relapse from a stroke at a later date similar to other conditions like MS. Treat yourself like a princess... the brain needs more relaxation time after something as severe as an attack that kills part of its control center. It's hard to do when you're a male and used to toughing it out all your life. i don't think doctors can help us much.... unless there is a test that shows something. If we werer rich and could live at the hospital until an attack happened, then we could get in the fMRI or whatever machine we need and try to scoop up some data.... then compare it with our brain activity when feeling well.The test really needs to gather neural activity against an established baseline which is not a test any doctor has suggested to me.
nathan57692 wdtony
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wdtony nathan57692
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nathan57692 wdtony
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wdtony nathan57692
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nathan57692 wdtony
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wdtony nathan57692
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nathan57692 wdtony
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tinacosta wdtony
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My gp phone me afterwards and just said I had had a stroke but it was not a new one! I was not sent for any further test or treatment! And continued with similar symptoms to yours for a long time.
Eventually I was sent for further test via a private treatment which seemed the only way forward at the time and the only way that I was going to get further advice!
this revealed the stroke to be caused by a lacunar infarct on the left side of the brain. Every time I complained of symptoms I was ignored by the gp and therefore had no idea what had caused the stroke! UK
As said I had no treatment at the time of the ' stroke' as originally I was told I had a vertigo attack! I can still remember the day I was making tea and suddenly my head went out of function, I could not see and all I could see was a large patch in the air it seemed , that resembled a black and white kaleidoscope in slow motion. I just collapsed shortly afterwards when a gp was called out he just said vertigo! Later on Via private payment again, I had test which ruled out vertigo, originally it appears the symptoms I had described by the first doctor as vertigo would suggest a stroke of some kind but the doctor that came out to see me did not recognize this.
After the diagnosis of a lacunar infarct I continued with further symptoms etc for a number of years without treatment or advice from my gp . Had I had treatment originally it could have probably been a better way forward after the original wrong diagnosis of vertigo!
However your explanation of symptoms I found comforting as they seem to be a similar experience to mine. I had an episode only yesterday but felt quite ill , I telephoned 111 for advice and was told I had to go to a and e , and after test etc etc at last I am being sent to a stroke clinic for further test and more advice on my symptoms,I wish I had gone sooner to a and e with the symptoms I have had on and off for a long time,kind regards Tina
wdtony tinacosta
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It was explained to me that the first stroke mentioned was the recent one and the cerebellum was a possible stroke suffered sometime in the past.
My vertigo was definitely caused by my stroke. A kaleidoscope is what I see when I get migraines but I honestly believe there is a relationship between migraine disease and stroke.... or at least the mechanisms that cause both to occur.
tinacosta wdtony
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I have a feeling of passing out and speech slurring and muzzy head and weakness very suddenly but it last anything from 7 hours to 7 days
At the moment I am not convinced migraine is the cause of these dreadful attacks so I lack confidence in a beta blocker to solve the problems, hence I am in limbo regarding treatments at the present. I do have other medical issues one being inflamed osteo arthritis. I take indapamide for high Bp .etc
tina
wdtony tinacosta
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nathan57692 wdtony
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wdtony nathan57692
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tinacosta wdtony
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unfortunetly , for various reasons I do not sleep well so yes this could be a factor. Sometimes I wake in the night and feel dreadfully Ill, and yes it is usually when I have been tired for a few days too. Plus I have experienced some anxiety the last few years with loss of family and illnesses in the family. Tina
tinacosta wdtony
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wdtony tinacosta
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wdtony tinacosta
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tinacosta wdtony
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the consultant I saw asked me if I woke up feeling dreadful and headache , I said yes, that was one of the reasons she thinks migraine as it is a usual sign of migraines whether an attack is present or not. I do think I have ' common migraine' on research as it does clear away from time to time for a short period.
i have read about hemeplegic migraines too, and agree with you also in females it can be brought on by hormone imbalance plus other factors stress etc etc etc . Tina
tinacosta nathan57692
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nathan57692 tinacosta
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wdtony nathan57692
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junebuggie nathan57692
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edwina14921 wdtony
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suzane1986 edwina14921
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