3Years after a mild stroke, i am experiencing TIA type symptoms daily? My consultants say its stress functional symptoms.Help me someone Please!!

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3years ago I had a mild stroke, and since that day, ive been having TIA type attacks near daily. WHY? I need answers and help PLEASE.

Hi my name is Dave.

I am requiring any help feedback, as to whether anyone else seems to have or have had recurring stroke like symptoms, 3years after a small stroke.

With the help of my wife and others, I have compiled this.

8years ago, at the age of 39 yrs. I was a high flying energetic senior manager within a large uk-ftse. company, I had worked for many large UK corporations in a senior position very successfully, and also Director of my own businesses, when I suffered a large nervous breakdown.

This was due to 20years 15hour day 6/7days a week workaholic lifestyle, in senior business management working for private and public companies.

I suffered and am still suffering with hypertension, high cholesterol, and abnormal electrical QT wave diagnosed when I was 24years old.

Due to constantly having heart pain, I underwent stress tests which I was unable to complete, after having an angiogram, it was then found that under stress, my heart arteries and blood vessels constrict severely causing me pain.

All this eventually with my high work ethic, caused me to have a nervous breakdown, I then was unable to work and I fell into severe depression, all this was been treated with medication as belpw.

Then 3years ago whilst having a nice stroll near the beach at Cleethorpes, with my wife, I experienced loss of feeling in my left leg for approx. 10minutes and then the same thing in the left arm.

My wife and I laughed it off, wondering what was going off, I also felt unwell and dizzy so we decided to drive back home to Doncaster.

My left side felt weak, so after having a couple of drinks we went to bed early.

The next morning I was unable to wake up and get up properly, so my wife came upstairs and noticed that the left hand side of my mouth and eye had drooped on the left side of my face.

I was very dizzy and unsteady and weak on my left leg and left arm, and I had this very severe pain behind my left eye socket, and my wife states that I was slurring and unsteady due to dizziness.

Luckily my 24year old daughter who had just popped in mentioned to my wife, that this looked like a stroke, the paramedics who came out were shocked that on inspection I had not gone to the hospital for treatment the day before, they immediately took me into Doncaster Royal Infirmary for hospital treatment.

I was treated for a stroke and subsequent CT, MRI scans and the consultant reports within the first 48hrs states as follows;

‘‘ This gentleman’s symptoms suggestive of ataxic hemiparesis, would be in keeping with a lacunar syndrome although the white matter changes in the MRI are more predominant in the left hemisphere than the right and I cannot identify any clear brain stem lesion on review on the PACS today.

Undoubtedly there is some functional overlay component. This gentleman’s presentation is in keeping with his significant history of depression. His signs would be in keeping with a lacunar stroke and I note that carotid dopplers show carotid atheromatous disease in the asymptomatic artery, Therefore it is entirely reasonable for him to be on appropriate vascular preventative therapy. He is aware of persistent sensory deficit which is causing him anxiety.’’

I have been diagnosed as having cerebral vascular disease, hypertension, angina, diabetes type2, reflux, glaucoma, asthma, depression.

I am on medication for my above health issues as follows, Clopidogrel 75mg, Amlodopine 10mg, Montelukast 10mg, Atorvastatin 40mg, Irbesartan 300mg, Bendroflumethaizide 2.5mg, Pregabalin 600mg, Metformin 500mg, Isosorbide Mononitrate 60mg, Lansoprazole 30mg. Salbutamol and Seretide inhalers. Glyceryl Nitrate GTN spray for angina. Cocodamol and Paracetamol for pain management.

However from the moment I had this mild stroke I have been getting recurring stroke like symptoms, for now 3years after.

Initially my left leg had a small shake uncontrollably, however since being prescribed Pregabalin in the 1stsix months, I have not hardly had a recurrence, just slight shakes now and then.

These episodic attacks are now as frequent as three times a day and sometimes 7days a week, where I suffer episodes of stroke type symptoms, during my sleep, and twice during the day.

These attacks which can be from light to severe attacks are as follows, a light attack feels like an electrical current going through my head and dizziness, and then a bad attack sometimes precedes with a tingling numb-like feeling in left-hand side of my face, which then ends with me displaying the symptoms as already described on numerous occasions and literally ends with me sleeping heavily, and my leg and arm feels like a lead weight, these have been seen by many medical professionals within Royal Hallamshire Sheffield Hospital, Doncaster Hospital, the nurses at the local GP and local CMHT.

A heavy attack has the following symptoms, dizziness, pain in my head, a drooped mouth and left eye and left hand-side face, weakness in left arm and left leg, unable to walk, slurred speech, tingling in the left-hand side of face, blurry vision. These attacks whether light, medium or heavy, always ends up with myself being completely fatigued, confused with dizziness and then my brain forces me to sleep, from 2 to 4 hrs. or so.

These attacks happen during my sleep, as my wife is unable to wake me up in the morning and when i do finally wake up, i have the tell-tale left sided face droop etc, they can happen anytime of the day, whilst I am sat watching tv etc. sometimes 2 to 3 times a day for up-to 7days. My memory is terrible, i am unable to concentrate for long periods, i also lose my balance a lot, and I sometimes have a very severe pain, behind my left eye socket, and this does not go away with painkillers.

However after an attack, my limbs are weak for a day after.

Once i have recovered ie woken up after a sleep from 2 to 4hrs, i feels sometimes like I am drunk and very hung-over for a day or two, I am completely washed out, with varying pains, headaches and i am unable to walk once these attacks happen and i am very weak on my left side leg and arm daily and on-going.

I get dizzy spells during an attack and also when im not having an attack.

Also I am slurring, or mumbling during an attack, my speech is clear when I am not suffering attacks however my wife and children have stated that sometimes i say the wrong words or whilst speaking sometimes put the wrong words that im trying to say, in the wrong part of a sentence, which they find amusing, and i find frustrating and angry with myself for doing that, but i do not have slurred speech outside an attack unless I am tired.

.

My vision has deteriorated since the stroke, and my left eyesight is terrible, i have just been diagnosed with glaucoma and diabetes and early stages of diabetic retinopathy, however the medics are looking into my eyesight issues but with no joy.

I have also been experiencing in addition to the other symptoms, pain in my bones on my left side and back, especially when i retires to bed at night, to the point where we have had to obtain a loan to purchase, a £3000 hospital type adjustable bed, which has not really alleviated the pain.

I am under a psychiatrist for depression, but nothing seems to be working for me, I am on medication, I have been tried on different medication over the 8years and im currently on 40mg of fluoxetine a day. My depression seems deeper since the stroke and i am struggling daily.

Im under a neurologists at Sheffield Royal, but they have put it down to functional symptoms due to stress, I have been recommended for psychotherapy, but will not be allowed down this road until my depression stabilises, we need help or any information from stroke survivors, have you suffered anything like this...

I feel like im a pain to the medical profession, and as a previous troubleshooter in management and business, in working as a consultant in performance and productive environments and with working knowledge of performance measures within the national health service, i feel I am a problem to performance and productivity figures as i am still on the consultants caseload. However these are just my feelings, and does not reflect on anyone’s professional expertise.

My local GP, is understanding and very GOOD at helping me emotionally and with medication to control my symptoms.

Ive been tested for bells palsy, ms, but no joy, does anyone have these effects or symptoms after 3 yrs after a stroke?

I have never ever regained the strength in my left leg or arm, this was only a small stroke, due to clotting from furred up carotid artery the consultants have informed me.

I am constantly in turmoil over this, feeling very depressed and even suicidal on a daily basis,

My stroke was not a bleed, it was a mild stroke, possibly caused by a clot from the diagnosed furred up carotid artery in my neck.

I just need some answers or other experiences and how they have coped or resolved.

My grown up children, aged 30, 24 and 21 and myself and wife are getting exceedingly worried, as I am having more of these episodes especially over the last 8-10months.

This is affecting my whole family too, in a depressive way.

I need help and answers and im praying for answers, please help someone, all this makes me feel very suicidal.

Doing this email is very hard mentally as i am constantly drained, it has taken me 3 weeks on and off to try and compile this email with the help of my wife and others.

Thanks

Kind Regards

Dave and Nicola

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  • Posted

    I had some kind of stroke 6 years ago while my father witnessed it. When I got to the hospital I waited 10 hours then tested me for every illegal street drug because I was stuttering, word searching, had no memory and forgot the name of things. I was 48 years old and a professional. They told me it was in my head because I was on medications for mental health. I went back 2 more times and they check me for illegal drugs again. My 70-year-old father had to be in the room with me each time to try and help me communicate and when he overheard the say drug addict he went off on the doctor. I was the Office Manager in an Accounting Dept, not a drug addict. They still say my MRI is normal but I have never been the same. I have improved 40 percent but they can't tell me what happened. They say it was a medication I am on but I tell them I was on that medication then. They say it is conversion disorder but I tell them conversion disorder doesn't last 6 years and start for no reason. I am sick of neurologists so I just live with it. I have gastroparesis, [color=#545454]Nonalcoholic steatohepatitis and I am at F2 Fibrosis (head to cirrhosis of the liver) and get checked for a type of liver cancer every 6 months. I already told them I won't do treatment for cancer, I won't do a liver transplant my body can't handle it. I live on popsicle(sugar-free) type 2 diabetes and high protein low carb shakes because my stomach is paralyzed.I am sick of being sick. I am sick of having to study on the internet because the doctors give you 15 minutes then give you a pill. They day I had that stroke (?) my health went downhill so fast that I don't even want to list the pills I take or the diseases and illnesses. I figure I will be dead by 60 or before. I turn 54 in January. So I hear you loud and clear.[/color]

    • Posted

      Hello, I can understand being fed up. I began to expereince my first stroke symptoms in 2007 after the birth of my daughter. I was lying in bed and my left arm and leg went numb. I had my ex husband call 911 and they told me I was having anxiety. Over the next month i experienced these symptoms on a regular basis. I would have an anxiouse feeling and my arm and leg would go numb. I saw several doctors during this time and had several MRI all came back normal, I was given the diagnosis of anxiety, panic attacks, Post Partom Depression. My primary Care Doctor even told me if it happened again not to call the ambulance it was just a panic attack. This went on for three years. I had a second child and would have the symptoms intermittently, I could be at work anywhere and it would strike. Finally in Sept 2010 I woke up and went to hit my alarm clock and my arm was so heavy I couldnt lift it. I fell out of bed and crawled to the bathroom. I pulled myself up to look in the mirror and my face had dropped. I knew I was having a stroke. I then went to the ER who again told me my MRI was normal no stroke, She finally referred me to a neurologist who did an MRI and found that I had an occlusion of my right MCA aftery. I was sent to Cleveland Clinic and spent a week in the ICU. They did a cereberal angiogram and finally figured out that I had collaterol flow which was why I wasnt completely stroking out and why there was no residual effects to show on the MRI. I have been symptom free now for seven years I take plavix 75 g daily and blood pressure medicine 200mg twice per day. I have struggled with anxiety and depression since and was recently diagnosed with PTSD. Every single day i live with the fear that I could have a massive stroke. I also recently became pregnant which as you can imagine even increases that risk more. So while everyone else is so happy im overhere panicking inside and no one understands that fear more than all of you. I have been in such a horrible place since I found out I was pregnant and hearing your stories has helped me tremendously. I know I am strong and I will get through this. My other point in writing this is to urge you all to keep fighting dont take a doctors answer as golden they are human and they make mistakes keep pressing for the right diagnosis!! Wishing all of you peace and happiness!
  • Posted

    I never got answers to what happened to me. It was 7 years ago that I tried to hand a wrench to my father and I kept dropping it because I would let go of it before it made contact with his hand. He asked me what was wrong and when I started to talk I was stuttering horrifically. He said what the hell is wrong with you and I had no idea. I  forgot words and what things were called. I had been falling a lot prior to this episode. I don't recall when my father took me to the hospital but I waited for 13 hours until I was seen. They tested me for drugs because of the condition I was in. My dad had to talk for me because they couldn't understand me due to the severe stuttering and I had to describe things because I didn't know the word. 

    They did an MRI and said it was normal. I have had several since and they keep saying they are normal. I get dizzy and sharp shooting pain in my head and behind my eyes. I get vertigo, have trouble with short term memory and still deal with word searching. I think something happened last week but people tell me it was 3 or 4 months ago. 

    I was a workaholic previous to this and I do suffer from depression, anxiety, PTSD, OCD and Borderline Personality Disorder from a traumatic childhood. I have been told it was conversion disorder by one neurologist but that doesn't last 7 plus years. I see a therapist and psychiatrist also but no one can tell me what is wrong with me.

    It was like I had a stroke but they all say no. I have painful facial bones on and off, my face goes numb, my lips and scalp go numb too. They just keep saying it is part of my mental illness causing this. It is since that day I had the initial attack of sorts that my mental illness deteriorated. I have continued problems with speech, memory and problems falling backwards.

    I have been diagnosed with gastroparesis, diabetes 2, NASH (liver disease), high cholesterol ( improvement), slightly high blood pressure, carpal tunnel in both hands, cubital tunnel, spine damage, fibromyalgia. There may be others but I have memory issues and I forget what I have a lot.

    They tell me negative for MS, stroke and they have worn me down so I just accept the fact I am different and will never be the same. They blame everything on my mental illness but I have had mental illness since I can remember and I am 54 now. It isn't just mental illness and I am tired of 5 neurologists to date saying that.

    I wish you better luck than I have had.

    Jane

    Excuse me if this is confusing like I said I have problems.

  • Posted

    Hi my name is Rosa and i have had 5 tia's in the past year in a half, And a heart attack last February. I understand what you are going through. Sometimes I have those system 's.I go to the doctor and they tell me it's becausr of what my body has gone through. from the tia's. Your brain had been affected so everything about you has changed, I am learnig what I need to do in order to be the best i can be. I pray, talk to a physiologest, And when i don't feel well i rest & take my time for what ever i do .We must learn to reajust our lifestyle. I understand. Praying for you. Jojo

    • Posted

      I am Malaysian suffered the same. Had heart attach 2014 lucky do angioplasty. 2015 mild stroke. Is same we all went thru. I smoked heavily but never inhale but also smoking. My life as C level always thinking of new things to stay sustainable. I did but cannot delegate as all my staff not able to feel what I feel altthough I tried ISO but all take easy replying and creating NCRs. Is hopeless to work for others.
  • Posted

    Dave,

    Been there, and done most of that.

    Thanks for writing this all out so now I don't feel alone.

    I still have intermittent left sided weakness for years now and 4 years past multiple TIAs I was placed on Coumadin and it stopped the TIAs but not the left sided weakness.

    Best of luck to us all !

  • Posted

    Hi I had a mini stroke bout 3 week still have numbness and I feel my face get hot sometime I have memory problem just been put on a 48 hour heart machine so I will see the stroke clinic this month 
  • Posted

    Have you heard of CADASIL? Might be worthwhile getting checked out for this, as a lot of your symptoms would appear to fit. Please google it for details. Many members of my family have been diagnosed with this recently.
  • Posted

    I am  65 YR OLD WOMAN WITH RECENT CONCUSSIONS WHICH LED TO LEFT SIDE WEAKNESS AND THE N SHORTLY FOLLOWD BY MULRIPLE STROKES

    hope you are okay and feeling better. I had multiple strokes leaving my left hand and leg weak and my left eye is also every weak and i go through severe fatigue. Lot od your sympims are common for a lot of stroke. Some of us do suffer " SILENT STROKS"  and it is difficult to know when the stroke happens. I am hoping you are much better. Wish you the very best

    I am on plavic, asporin, crestor, Janumet for type2 diabetes. .  my BP augar under control. \mine resulted from a concussion.

    Dont stress as it can compound existing problems. Try to sleep whensoever you feel you need to as the brain needs tome to heal.All the very best to you

  • Posted

    I suggest you see your heart Doctor get a new work up done ASAP, my husband at 37 truckdriver has a light stroke,  on Sunday sitting in the swing I got home from church he told me he had numbness in his arm and hand a few minutes later when he talked I could not understand what he was saying, I had to tell him what I though he was having a stroke to get him to ER within 30 mi, I had him there, they told me anytime you think you are having one there is no time to wast, the longer you wait the more damage is done, within four weeks he was back driving his truck. afterward they told him he could have mini strokes with in five years or a bad one, for one year after he ,had panic attacks was put on xnas this happen in 1990, he did great until 2007 had his first heart attack, got help right away did ok two stin's put in, and put on statin drug one month later statin drug caused gall bladder sugary, he was out three months back to driving, 2017 he had the big one had to be air lifted, the time it took to get him to hospital was to long he had more hear damage this time, he just went to doctor all blood work was fine said keep doing what your doing two day later, ICU 8 days hospital 5 days 3 stin 's then home, took his CDL's and he had to retire, wanted him to have a diflator put in but he refused it, I'm telling you all this because if you think something is off dont wait get help right away. like of oxygen to the brain effects it as well.now he is doing much better slow to answer anything you ask you have to be understanding and wait, but he is still with me.....Take care of your self have your wife watch you for anything that dont seam quit right to her..best of luck to you.

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