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4 months since surgery still in agony

Posted , 12 users are following.

ally58693
ally58693

HI friends really need some help here,had my surgery in January I've had nothing but problems.I need to pee every 40 mins to an hour when I do it burns not just the tip of my Penis but all of it, the pain travels between my legs to my arse.It does not stop and can last for hours it only seems to subside slightly if I lie down.I cannot go out as it feels like I have a I'd in my Penis. I have also became very constipated and have pain in my rear end.I have seen my urologist and he wants to inject botox into my bladder wall but will not give any reason for the stinging.Is there anyone out there with a similar story or with any advice.I am at my wits end I have a wife and young child and this is affecting all of us...

0 likes, 47 replies

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  • jjjj57989
    jjjj57989 ally58693

    Posted

    Have you checked for an infection?
    • ally58693
      ally58693 jjjj57989

      Posted

      I've been on 2 course of antibiotics for a month at a time.I am still bleeding on and off and the stinging get pain is the worst thing ever.I've had prostatitis before and it was nothing like this.I can't escape from it and I'm not letting go the surgeon operate again until he can tell me what the problem is....

  • Motoman
    Motoman ally58693

    Posted

    I don't know if this would help or not. But I was put on Uribel after FLA surgery to calm down the need to urinate so often. Also a steroid pill for a week or so. But this was much closer to the actual surgery than yours. I stopped taking Uribel about three weeks ago, 6 weeks post op. 

  • dai12345
    dai12345 ally58693

    Posted

    I'm sorry to hear that. I had a HoLep (Holmium Laser) and had no pain at all after a few days and no urgency to pee since. I wonder what has happened? I think you need to challenge the urologist and insist he explains what might be causing the pain as it's not normal. I did have some constipation and used laxatives for a while as the anaesthetic etc stops the bowels working properly for a good few days.

    • ally58693
      ally58693 dai12345

      Posted

      I have seen the specialist his answer is to use botox into the bladder wall he can't or won't explain the pain my own GP has advised against this and thinks I should seek a second opinion...

    • Waffalobill
      Waffalobill ally58693

      Posted

      Botox scares me because of what it is and does. Ppl seem to use it like it's ok.

    • glenn77
      glenn77 ally58693

      Posted

      I had buring/stinging following my GL procedure in March of 2016.  I then had a second procedure, Gyrus TURP.  Worse than the stinging is the total incontinence I've had for over a year.  I finally went to a new doctor, and he found that I had two strictures located  close to the external sphincter.  I've had two procedures done (balloon dilation, and then urethrotomy about a month ago. (I had thin strictures.)  Since the last procedure, the burning/stinging has gone away, but I'm still incontinent.

    • ally58693
      ally58693 glenn77

      Posted

      I'm sorry to hear about your experiences but the stinging and burning you describe sound very familiar thanks for the info.

    • rick47445
      rick47445 ally58693

      Posted

      i say my uro about my frequency at 3 month post turp and we talked about drugs to take to slow down my frequency. when he mentioned botox last he advised sometimes it stops urination completly and you have to have a catheter for 6 months until the botox wears off. no way Jose on that one, i am taking toviaz and i am now lasting 2hours plus between having to pee.
    • ally58693
      ally58693 rick47445

      Posted

      Cheers for that Rick I'm of the same opinion on the botox,balls to that sorry for the pun..

    • Waffalobill
      Waffalobill rick47445

      Posted

      I may be wrong but from what I seen about Botox it kills the muscles or deadens the area it's injected into?? If that's true you will be cathing for sure. Could be wrong. Like I said not sure.

  • kenneth1955
    kenneth1955 ally58693

    Posted

    First of all what kind of surgery did you have and how old are you.    It sounds like  you have a form of prostatitis. Sometime it takes a while to get back to normal.  I hope things get better for you.  With any kind a surgery down there you may have a get constipated Did your doctor give you anything for it.  Also you were right to not let him inject you with botox with out a reason.   Ken
    • ally58693
      ally58693 kenneth1955

      Posted

      I had green laser surgery and a year incision on my bladder neck...
    • kenneth1955
      kenneth1955 ally58693

      Posted

      I guess you are not planning on having any more kids.  Did you look into anything else before you had the surger and get a second opinion because it seams like this surgery did not help you just caused you more pain.  I think you should get another doctors opinion in a different hospital because this doctor did you no good  Hope things get better  Ken 
    • ally58693
      ally58693 kenneth1955

      Posted

      No more kids and that's the intention is have never had my prostate measured or tested .This operation was done on the strength of prostatitis 4 years ago.To hanks for the reply...

    • kenneth1955
      kenneth1955 ally58693

      Posted

      So you never had any problem going to the bathroom  I would never have anything done like that without a problem.  My prostate was pushed together I had the urolift done to bring it apart.  I think your doctor did you wrong.  With him cutting around the bladder neck he could have cut something without knowing.Please go and see another doctor. Prostatitis is with you forever  I was told by my urologist that even if you get rid of the prostate you will still have some form of prostatitis.  Find a new doctor that care about you and not what he can cut away.  Good Luck  Ken
    • Waffalobill
      Waffalobill kenneth1955

      Posted

      Bladder neck is a no fly zone. Anything done to it is dangerous from what I have read and was told. To many nerves etc to do anything to it.
    • Waffalobill
      Waffalobill ally58693

      Posted

      Not sure about bladder neck nerves. But my brother lost the tip of his thumb. the nerves instantly try to grow back and cause unbelievable pain. They grow back but have no place to go. Wonder if that's what you feel

    • kenneth1955
      kenneth1955 ally58693

      Posted

      Sorry that your going through this.  He did a number on you Please go see another doctor that can help you. Did you doctor tell you anything about any pain after the surgery.  You most likely did not need that done.  You have to watch.  I was told this by my urologist if they can't find anything wrong they assume it the prostate and like to start cutting away and if another problem comes up they will tey to give you a pil and on and on.  Please let use know what is going on see another doctor.  I will e-mail my urologist and see if he has any sugestion.  Ken 

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