4 months since surgery still in agony
Posted , 12 users are following.
HI friends really need some help here,had my surgery in January I've had nothing but problems.I need to pee every 40 mins to an hour when I do it burns not just the tip of my Penis but all of it, the pain travels between my legs to my arse.It does not stop and can last for hours it only seems to subside slightly if I lie down.I cannot go out as it feels like I have a I'd in my Penis. I have also became very constipated and have pain in my rear end.I have seen my urologist and he wants to inject botox into my bladder wall but will not give any reason for the stinging.Is there anyone out there with a similar story or with any advice.I am at my wits end I have a wife and young child and this is affecting all of us...
0 likes, 47 replies
lester90053 ally58693
Posted
ally58693 lester90053
Posted
Thank you I'm definitely going too..
Waffalobill ally58693
Posted
It's wrong when you put your trust and health in the hands of who you considered a specialist and it seems he did less than the basics. How do these ppl get away with it.
ally58693 Waffalobill
Posted
Totally agree with you but he isn't going to get away with it iam even more determined after talking to you guys on here to push for a second opinion...
jjjj57989 ally58693
Posted
I'm sorry for your sufferring.
If there's one good thing to come of it, it's can serve as a warning not to blindly trust the doctors. And maybe that we should try the least drastic treatments first.
At this point I don't think doctors understand what works or why or what factors make cases turn suceed or fail.
One of my uros recommended cutting my bladder neck, like yours did. But I decided to try PAE first as the least difficult, least painful procedure that might help.
Now I may be needing a second procedure and will try to pick the second least painful and invasive.
Actually before chosing another procedure I'm focusing again on trying combinations of meds.
Since almost all senior men have bladder and/or prostate problems I'm hoping that someone gets serious about researching possible treatments.
This won't help you Ally it may help someone else, I wish you a speedy recovery.
kenneth1955 jjjj57989
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ally58693 jjjj57989
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Thanks very much for your kind words, couldn't agree more information would advise everyone to think very carefully before committing to this sort of surgery.I wish I had but I will persevere for a pain free outcome..
jjjj57989 kenneth1955
Posted
I've been posting a log of my progress: My PAE Experience Today
Dr. Bagla's didn't say anything useful, only wanted to blow me off.
Heres a summary of my scores:
My AUA SYMPTOM SCORE
-------------------------------------
before PAE 21
30 days after 6 (excellent)
Today (6months) 26
My IIEF-5 questionaire score
-----------------------------------
?before PAE 21 (excellent)
30 days after 20 (excellent)
Today (6months) 7 (low)
I am now on (Flowmax) for 3 months
kenneth1955 jjjj57989
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jjjj57989 ally58693
Posted
ally58693 jjjj57989
Posted
I was supposed to go last week but I'm in to much pain at the moment.I hope to make the next appointment cheers...
dai12345 ally58693
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I'm so sorry about the bad treatment you have received. It's not of much help I know but there are good urologists out there (I'm in the UK). I had two and both were superb doing the right tests and measurements and the first one referred me to a superb colleague to do the HoLep which he thought was the best match for me. I don't understand why any bladder neck work needed doing other than standard GL unless you had a very specific problem. I hope you find someone who can resolve your problems.
ally58693 dai12345
Posted
Cheers daI..I'm in Scotland and it is all a mess .
waveydavey ally58693
Posted
I've been following this topic for a couple of years. I'm somewhat astonished at the lack of a general protocol in matters of BHP or prostate treatment in general. Is this experimental medicine? The various pools of knowledge and procedures combined with varying levels of expertise on the part of the physicians leaves the "state of the union" a concern. We are approaching mid 2017 and yet many approaches to the problem evoke the medieval. I've experienced the approaches of four uros over the past 25 years and I can't see substantial progress in treatment or understanding. I can't say my uros have been forthcoming with information pertaining to my circumstances. If one common understanding remains from personal accumulated knowledge? Read this Forum, educate yourself and seek a minimum of three opinions. Don't stop til you are satisfied you are getting the care you feel is in your best interest. Knowledge is power. Perhaps the uros could gain a broader approach if they read it too. There is a genuine sense of observable isolation associated with their practice based on the hundreds of testimonies submitted here. Why?
ally58693 waveydavey
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waveydavey ally58693
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jjjj57989 waveydavey
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I share your views except for where you urge Wavey to educate himself.
Or to not stop until he's satisfied.
I don't believe that is possible.
As you said, there doesn't appear to be 'progress in treatment or understanding'. The medical profession hasn't invested the time or effort to understand the problem or the solution.
As their guinea pigs, we have only results and opinions. For every good outcome on this forum there is a bad outcome. Why? Who knows?
Since every senior man will have this problem, we may do better by lobbying for better research. Look at the improvements women have achieved in treatments of gynecological and pregnancy problems, not to mention infertility.
jjjj57989 waveydavey
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Ooops meant to say 'you urge ally'.
Our problem has such a low priority in the world, we don't even have an editor on the one forum about it.
waveydavey jjjj57989
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Beg to disagree. Education is possible. Much information available through the"net". Take a list of questions to your next appt. If not satisfied - try a new specialist.
I wholeheartedly agree with respect to your comments re the advances in women's health and their awareness campaigns. "Mo-vember" is a step in the right direction. A platform to be built upon. A light needs to shine on men's health. These variances in knowledge, hit and miss treatment and a lack of centralized strategy turn men into crash test dummies. And a level of loss of quality of life that is unacceptable.
R.M. waveydavey
Posted
Yes, we need some kind of men's association to better defend our interests, and solve problems, as women do. They do it very well.