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Hi there. I'm new here and i'd like a little bit of advice if at all possible. I gave up smoking at new year, just over two years ago. My dad died from emphysema when he has 60, and i always said that if i ever got a cough that reminded me of my dad i would quit. It got to the point where i was coughing myself to sleep each night, and i realised this wasn't just a cold that was going away, so i set myself a smoking deadline of new year (this was in the autumn) and did just that. Well 90% of my cough went away virtually overnight, but i was left with a niggly throat clearing thing, which wasn't too much hassle. Felt pretty good, and pleased with myself. So anyway, a couple of weeks ago i was doing a meditation app, and the instruction was to take a deep breath and hold it. It kind of took me by surprise, and the next day my back was hurting. So i made an appointment for the docs and she booked me in for a chest xray and prescribed me a peak flow meter and some ventolin. 3 times a day i have to do a best of 3 reading, take two puffs of ventolin, then twenty mins later do another best of 3 reading. After three days of doing so i'm feeling constantly breathless, worse than i ever did, i still have that pain in the left side of my back, and i am sure now that indeed i have emphysema like my dad. I feel like crying all the time yet i'm putting a brave face on for everyone. I don't have any kids, and my boyfriend still smokes in the house. I try not to be around it, bit it's only a small house and difficult to avoid. He didn't see the long horrible death my dad had, both his parents are still fit and healthy. My morning peak flow reading is 350 and the other two (noon and night) are roughly 370 with hardly any difference from the ventolin except i think its giving me a dry throat. I guess my question is, has anyone else had COPD from age 40 and still lived a long time? How bearable is it? Because my dad carried on smoking quite far into his (he gave up when he went on oxygen) i'm finding it hard to expect anything different than he got. Also is it possible for the peak flow tests to be making me breathless? Thankyou for any advice, i'm so down right now i just don't know what to do. I'm dreading the xray results, i should get them some time next week. I've read loads on the internet, and alot say it doesn't get too much worse if you quit, but then everyone on the forum's experiences suggest otherwise. I'm scared and confused, thank you in advance

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  • Posted

    Hello Wendy. There is another thread just started, for  "fed-up" - who has a later stage COPD.  Maybe you could go over there as a few people are discussing this horrible innness ?  Good Luck Wendy -- Jay
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  • Posted

    Hi Wendy.

    Firstly well done on kicking the habit. You are NOW well on the way to improving your chances of a better life.

    Now the next stage is to Google COPD and show some of the best results to your B/F in order to convince him that your LIFE is at risk with any further inhalation of the irritants that are contained in Fags. If he isn't happy then that is sad for you as he will be a victim of your problem, but it will be a choice that he has.

    Now, you CAN continue albeit with an encumbered life, for many many years yet. most sufferers die WITH COPD - NOT from it. 

    Sadly, you will need to greive the loss of your previous life and understand that many things that you took for granted will one day, not be there for you to enjoy but you are still young so nothing to stop you from getting the bike out or going to the Gym and pushing the boundaries as much as you can. The more you do whilst able the more you will be able to do when old(er).

    Research time will pay dividends so let google be a close companion for a while and remember that we are all very annoyed at being chosen.

    Big ((Hugs)) from me, anyway.xx

     

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    • Posted

      Thank you so much for your reply. I'm so angry with myself that i ever smoked, i regret every ladt one right now so bitterly. I really did think that i was going to last to be a jolly little old lady. Not any more. I'm so sorry for being such a downer, i'm sure you've got better things to do that listen to what must seem like trivial problems. I used to jog but i got tendonitis which won't go, but i will find some exercise to do, even if it's only walking. Thank you for listening
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  • Posted

    Hi Wendy,you were at the doctor and she didn't mention copd or emphysema so i hope you have a chest infection,you didn't say you were coughing up sputum,that is also a very good thing.Also you are only 40.I well understand the tears and I opened a forum today as I am also scared and very confused and  you are right, the internet says one thing on one site and another on a different site.I hope you get good  results and I don't think you have left things as long as I did.Either way I will be thinking of you and I wish you all the very best.Take care of yourselfresults and I don't think you have left things as long as I did so you may just have caught everything in time.Wish I went as early as you
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    • Posted

      Thankyou for reading, and understanding. I had read your post, but i feel so down i didn't feel like i could be any help. I do have a cough, but it never coughs all the way up, if that makes sense. I know this sounds daft but even if she says i don't have it i won't believe her. It's an axe i've always been waiting for, i took the death of my dad badly, he'd always been my hero. Believe it or not, i'm generally a happy person but not at the moment. I'm not even sure that getting diagnosed early is actually any help, as they seem pretty helpless to do anything apart from make people more comfortable. I wish i could do something to help you. 
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    • Posted

      Hi again,I understand your cough,but if you are at stage 1 or 2 I believe and was told that giving up cigarettesvand doing pulmonary rehab would halt progression.My dad also had emphysema but did not die from it,but like you I thought it could never happen to me.Listen we would all love to be able to take this pain from oneanother but it is great to be abke to chat about all the stuff   that is on our mind,you know I cried way kess today as I was busy readind and replying to all the kind people who took the time to reply to my post.It means so much to think that there are people out there whovare in thd same pkace but take the time to help others.Take care and my fingers are crossed for youthat is on our minds
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    • Posted

      I hope so much that that is true. Thank you so much for giving me a glimmer of hope, i know i am wallowing in my own self pity when others are way more worse off than me. Your replies have really helped me pull myself together when i've been crumbling. Thank you a hundred times over X
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  • Posted

    Dear Wendy. 

    Good for you for quitting the ugly habit. I smoked for 37 yrs but gave it up 23 yrs ago 

    if you are looking for some sage advice I would tell your partner he cannot smoke in the house. Second smoke will damage your lungs as if you were smoking. Also if you are looking for an exercise that will help your lungs start a swimming program. Believe me these two suggestions will help. If yourpartner won't smoke outside you may have another decision to make   

    All the best,  Mary Ann from new Westminster BC. Canada. 

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    • Posted

      Thank you so much. I understand that advice completely, it is something i've considered too. Also there is a swimming pool where i work, i've never been because i don't want my colleagues to see me in my bathing costume, i may have to reconsider that. Thank you again
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  • Posted

    If you pack up smoking, and keep away from secondary smoking your emphysema will not get any worse, but once you have it it will not get any better either. Let us know how your x ray results go.
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    • Posted

      Hi Kevin, i've read this too, and i hope and pray that it's true, but i've read lots of peoples stories over the last few days, and some say they gave up smoking as soon as they were diagnosed and they still progressed. It's so confusing. I will definitely let you know what my xrays show. Considering its such a big killer there seems to be so little hard and fast information on what to expect. I still don't know if it's possible for these peak flow tests to cause this sudden breathlessness. I guess my lungs are not used to blowing all the time like that so its possible, but i've never seen anyone mention it in all the other pages i've visited. Thank you for taking the time to reply, i really do appreciate it
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    • Posted

      I got my xray results today, and i'm told that my result was normal. I'm 70% relieved because this must mean even if i do have copd, it must be at an early stage. I have another appointment to see the doc, and will still ask for spirometry tests, as i know they can detect signs before xrays can. If the doc says i can't, hopefully the hospital will let me pay to have it done anyway, i won't rest until i see those results. I still don't know whats causing my breathlessness and the pain in the top of my back, but at least i'm not as far along the road as i feared, although i'll always be waiting for it stll. I'm wondering if i need counselling for this fear. I'm going to take the excellent forum advice and make a LIST before my appointment so i don't forget anything i want to say. Thank you to you, and of course everyone who took the time to give me advice and made me feel so welcome. I feel kind of guilty coming in with good news, but also i'm hoping a (hopefully) good luck story might give you a smile :-) 
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    • Posted

      Hi Wendy i am new here and yet to post .I have had asthma since i was 18 i am now 51 i can tell you that during my experience of peak flow measuring at my docs it used to be taken on the result of three blows . Recently though one blow is all i get . But to cut to the chase yes if you use your peak flow metre a lot it can irritate your airways i find that it makes me feel tighter certainly and sore also . Hope this helps regards Alan .
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  • Posted

    Wendy you have been so smart to quit at a relatively early age - i waited until i was 59 - some of the people on this site are in their seventies and eighties and are still leading vital enjoyable lives - you have certainly come to the right spot - we're all in the same boat here - you can live a very long life even if the diagnosis is copd - you've done the hardest part and that is quitting smoking - we're all rooting for you - keep in touch xoxo
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    • Posted

      Hi,I know yoy replied to Wendy but as I spend another sleepless night I saw your post.I opened one yesterday and while I agree with you on age,I hope quality improves.As I said in my post I am 58 and good life does not enter my thoughts.I can go nowhere as am worn out after shower and dressing,am hugh after meds,am depressed and crying maybe due to copd ,can't sleep due to ?.I stopped smoking but found that ok as my breath was so bad I really was not able to smoke.Wendy I am sorry fo say all this but as I said to you I am hopeful you have been caught in time and as you stopoed smoking around 40 are in a much better state than me.Margaret is your life better than mine or am I just unlucky.Do you sleep usually,as when i saw yoh posted at around 3 I thought you were like me.Hope I am wrong.Take care.
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    • Posted

      Hi margaret, thank you so much for your reply. I'm sorry we had to meet in these circumstances. I've read quite alot of posts from people in their 70's but most of those seemed to only get diagnosed late in life. I'm worried that if i'm having symptoms now, even though they're not that debilitating right now, it means i'm going to get bad early, like my dad who was 60 and had been seriously ill with it for at least 5 years before he died. I keep trying to rack my brains to think about his symptoms, but i was only 7 when he was the age i am now so i can't really remember. I'm trying not to think about it all, but i can't help it. I'm thinking of asking the doc when i go back if i can be referred for counselling, i've obviously never got over what happened, and this is my worst nightmare coming true. Thankyou so much for being there and listening x x x
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