57 African American Female who made have lichen sclerosis.

Don't know whether I'm understanding correctly: You know already that you have LS, or you are going to see your gyno to see if you have indeed LS? 

?There is lots of good info on this site - check for instance the discussion on Borax. 

?Many of us are following a certain diet - for instance, sugar is a trigger for many.  I myself am careful to not consume any added sugar, no gluten, no alcohol, no caffeine and limited dairy.  It makes the load lighter. 

?Hope this gets you on your way.

Angela please don’t loose heart 🙏🏻?? 

LS   IS  manageable 🤗

have you seen a doctor who suspects LS and has referred you to a gynaecologist?  

If so she/he may do a little biopsy to confirm whether it is LS   Once you have that diagnosis you will be able with their advice to start the treatment which is best for you.  

I totally agree with Hanny who I think we are following a pretty similar diet.  (Except I drink a 🍷or two of wine at weekends 🙊 )

Angela you will be fine once you know what you dealing with X

Sorry to hear all your health problems. I think it is important to keep in mind that you CAN get help with LS and your doctor can do this. There a treatments that will help you such as creams to really help with the soreness and pain. Hope your appointment goes well.

Angela,

sorry to hear about your medical problems. Yes, LS can be scary but with the right doc and his/her help you can start on the right treatment. Once you do that and you see and feel the difference that soreness and pain is subsiding you will see that there is life with LS. As far as future realationships you should not give up hope. I think this site is wonderful. It helps to see that you are not alone with this disease. There is a lot of information on this site and it has been very helpful to me. You seem like a strong person with all the medical issu es you are dealing with. Have the biopsy and once you know for sure you will be able to start treatment. I agree with Sedg, once you know for sure what you are dealing with you will be fine.

I don't know if I should tell you that I have had LS for 30 years!!! But I am telling you because for 30 years I haven't spoken about it to anyone else but my husband and all my gynie prescribed was a steroid cream which I have used continually for 30 years.............. I don't know how many times a week! I can't begin to tell you how thin my skin is and how much I have been suffering. BUT here is the good news!! Since finding this forum about 6 weeks ago my life is all the better for it. I am now using a mixture of 4 tablespoons of Organic Castor Oil, 2 DROPS Lavender Essence oil and 1 DROP of Lemon Grass oil and the itching has completely GONE... gone, gone. It is like a miracle. I have also bought some Borax which I have started to put in my bath water but I am going to buy a spray bottle and mix 1/8 tsp of Borax into 1 litre of warm water and use that instead as it is much cheaper. A LOT of ladies have been assisted by using Borax. I am now using the steroid cream once a week as I I have found over the past 6 weeks, for the first time, that I am now "fusing". This hasn't happened to me before and I think it is because I stopped the steroid cream completely about a year ago. I used Desitin baby cream instead which was OK but not as effective as the steroid cream. If you try the Organic Castor oil mixture it is VITALLY important that you don't exceed the DROPS and use a small dropper. Some ladies have complained that it burns and I think that can only be from exceeding the drops and perhaps using a bigger dropper than I have used. I use a dropper from a nasal decongestant bottle. 

Good luck and please try different remedies on this forum to find something that will suit you......... I am sure you will find something. I have tried various "diets" over the years (tried the no sugar for 2 years), cutting things out, and nothing has made any difference to me. Maybe spices, wine and tomatoes........... the jury is still out on these

ingredients!

Jan

Hello everyone. I went to see my new gyno on 11/01/17. I was super nervous about our discussion, but she tried to put me at ease. After my exam, she said it could be one of two things; Vitiligo or LS. She said my genital area looked normal despite the fact of change in color. She did perform a biopsy because she said that would enable her to give a more accurate diagnosis. I'm still recovering from that cut. Also tested to see if the itching may be a result of a yeast infection. I won't know the results of the biopsy for 1-2 weeks. I am trying to focus on other things while I wait, though the itching is a bit of a reminder. After reading your stories, I realize that whatever happens, I should be thankful that whatever I have, is happening at 57 (almost 58), instead of many years ago. Some of you have been dealing with this for a long time and for that I am truly sorry, but also grateful that you shared your stories and offered me comfort, after my first post. God Bless.