57 African American Female who made have lichen sclerosis.

Posted , 13 users are following.

I replied to a post that was 3 years old. I have an appointment with a gynecologist, next week. Been celibate for almost 4 years and have been dealing with uncontrolled high blood pressure, congestive heart failure and severe sleep apnea. I have worked so heart to get these conditions at a manageable level and now this!! I'm afraid to go to the doctor and even more afraid not too. Anybody, out there. Please help.

1 like, 21 replies

21 Replies

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  • Posted

    Hi Angela, Please don't give up hope. I have had LS for 30 years and never thought to look for a solution on the internet until a couple of months ago. Through lots of advice on this forum I feel as if my life is starting over at 67 years of age!! There is so much that you can try to make yourself better ..... yes you can get better. One lady posted that she used Borax for 18 months and finally her "parts" unfused!!! It might take some time but if you are diligent with trying everything you will win the race. I saw my gynie this morning and I was told to cancel the op I had scheduled for next week to have a lesion cut out! Three weeks ago my gynie told me to use an estrogen cream every night and that is what has healed the lesion!! I should have done this a long time ago to strengthen my thin skin (thin from using a steroid cream every day for nearly 30 years mind you!!) I am now spraying Borax a few times a day, using a mixture of Organic Castor Oil and Essence Oils (have given you the recipe), using the estrogen cream now 3 times a week and I am going to use a steroid cream once or twice a week to prevent the fusing happening. I actually stopped the steroid cream a year ago and that is why I now have some fusing. Other remedies that seem to have helped the ladies greatly are coconut oil, emu oil and Australian Dream Cream. Just try to find something that can work for you. The Borax spray is (people seem to have different ideas on quantities) 1/8 tsp to one glass of warm water or 1/8 tsp to a litre of warm water. Someone said a "pinch" of Borax to half a glass of warm water. Also read that you can put a tablespoon of Borax in a shallow bath and soak for 20 minutes. This cannot be done too often as it can have a drying effect. If you are not using an estrogen cream then perhaps you should be, speak to your gynie. I have had a hysterectomy so there is no threat of breast cancer for me by using this. I am also on HRT 3 times a week and my gynie said it would help my bones and it is good for preventing colon cancer!!! Can you believe that!!

    Long story, you must be exhausted reading all this but I just don't want you to cry and give up hope. Also try giving up sugar and wheat............. seen this quite a few times on this forum.

    Take care

    Jan

    • Posted

      Hi Jan, Thank you for your response. I have calmed down some. I also decided to make use of a benefit, that my job has and will begin seeing a counselor who specializes in patients dealing with chronic illnesses. Not sure if she know about L.S., but I'm struggling and while I am blessed to have a good support system (my siblings, a couple of close friends and now this forum) but I need more. I woke up last night with itching in the area, where I had my biopsy and the realization of this disease has resurfaced. I put some coconut oil, on the area and that made it feel much better and I was able to go back to sleep. There is SO MUCH information, in this forum and that, in itself, can be overwhelming. Right now, I'm going to stick with my ivory soap, use the clob as directed, and use the coconut oil. You have a wonderful spirit and your words of encouragement did help. I just need to process this info and try and figure out what my new normal is.

  • Posted

    Hi Angela

    glad to hear you are feeling better and that the coconut oil seems to be working for you. Good news indeed.

    Take care

    Jan

  • Posted

    Hi Angela, happy i found this forum. I’m in Canada and not much forums on L.S. over here. I have been diagnosed over 4 years ago and my only symptoms where 2 white patches. I recall having some eczema younger and struggling for years so maybe there’s a link. Anyway there’s just so much to talk about concerning this illness to try and find a cure that it would take all night. I just wanted to say I know what it feels like.... you think about it every day and you feel different, not normal, you feel like you won’t have a normal sexual life anymore. I feel the same but being all in the same boat at least we know where not alone. Feels like we are normal after all. Let’s all try and share our new finds and tricks all together we’ll beat this.... 
    • Posted

      Thank you Brigitte!! I must say that since that post, I'm dealing with this a little better. I saw a vulva specialist. She really listened to my fears and concerns. Before that day, this forum has been a blessing. When I was diagnosed, my gynecologist gave me clob and nothing else. I am on a different steroid now, because it has been determined that I have a mild case; the clob was too strong. Thanks again for reaching out and God Bless💗

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