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6 weeks of constant headaches - no relief / going crazy

Posted , 43 users are following.

riclee37
riclee37

Hi everyone. I'm after some possible insight / advice on what I'm currently going through. I will go through as many symptoms as possible, although I'm aware some might be from something different entirely. I started getting a heavy pressure at the back of my head around 6/7 weeks ago, was primarily at the back and kind of felt like my head had a big weight hanging from the back and someone was pushing hard against my skull from the inside. In the next few days this was accompanied by very frequent and fairly severe headaches. These have now been part of my life for the past 6 weeks. The headaches and pains I get differentiate. Mostly it's a dull throbbing at the back of my head. But recently quite often I get what I can only explain as a very sore burning pain on a small area of my forehead and sides of head. I get pains on both sides although i would probably crown the right side for most pain caused. I do get dizzy when I stand up from a relaxed position and have noticed that my face goes red a lot now, as if I've stepped indoors from cold to boiling. I have no energy to do any exercise and feel constantly fatigued and tired. My sleep isn't great as I wake up a lot through the night (may I add that it's not the headaches that wake me up, they seem non existent as I sleep and for the first half hour in the morning when I awake. But from then on its relentless. Painkillers do jack squat, even co-codomol doesn't touch it when that used to be my saving grace whenever I got a bad head. This is much different to headaches I have had before. Last think as well. I went to watch my football team play today and tried to do a warm up with them. Since then my head ache is worse and my brow and temples feel bruised and tender to touch.

I apologise for the length of this but i didn't want to leave much out. I hope someone is able to helps with this as it's wearing me out now... Physically and mentally. Got an MRI on weds but I know results can take a while. Was just hoping for some feedback before hand.

Thanks for reading. Take care all.

Richard

2 likes, 54 replies

54 Replies

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  • Phoebe604
    Phoebe604 riclee37

    Posted

    Been to see GP and she had booked an MRI for me.  She says this mainly for reassurance.  She did my neuro obs and looked behind my eyes, I have also have a thorough check by the optician, and they can't see anything.  I am on codeine, amitriptyline and gabapentin.  Let's wait and see if they find anything on the scan.  Good luck to everyone else
  • lchhimwal
    lchhimwal riclee37

    Posted

    I am also going through the same one sided headache (right side), Did CT Scan, doctor said nothing, All electrolyte Blood test, Doc found nothing. 4 weeks contineous headach. changed 3 doctors. if anyone got relieved by any medicine. Pls help.
  • kendra1004
    kendra1004 riclee37

    Posted

    I've had something similar for 5 years. May have finally found the answer. Try looking up Hemicrania Continua, also occipital neuritis. Good luck to you
  • lchhimwal
    lchhimwal riclee37

    Posted

    Kendra, Thanks for your reply. I believe what you have suggested is right.

    My 4th Doc who is a renowned Neurologist has diagnosed it as Migraine and has given me olfen-diclofenac which is NSAID and creates stomach pain. Whenever I take medicine, I don't feel pain for 5-6 Hrs but it starts again. After googling I found that "Hemicrania Continua" is a disorder and there is no permanent cure for it. Don't know till what time I have to bear this pain. Hoping for more replies n results.

     

    • kendra1004
      kendra1004 lchhimwal

      Posted

      The primary treatment here for hemicrania continua is a med

      called Indocin. It to can be rough on the stomach so is prescribed with 2 stomach meds to protect it. I have not had any problems with it though. It comes in a dose as low as 25mg, which is what I'm starting on. I've had a little

      relief so far and am told as it builds up I'll see even more. The Mayo clinic as well as John's Hopkins both have info on this

      condition and recommend the same med. I pray you find

      some relief. I've been miserable for so long and was losing

      hope until i saw this migraine specialist. i have a horrible

      Disequilibrium with mine and lose my balance quite easy. I'm

      hoping this will save me.

    • lchhimwal
      lchhimwal kendra1004

      Posted

      Thanks for your help and explaination kendra..wish for good health.

      I understand the irritation this headache gives.

  • cog
    cog riclee37

    Posted

    Any chance you were using sildenafil or other phosphodiesterase inhibitor?
  • tamara69822
    tamara69822 riclee37

    Posted

    So am here thinking that I was going crazy.. I been having the same severe headache for the past month.  I had migraines before but not like these.

    So I end up going to the ER and they just treated it like a Tension headache. I was fine when they gave me some heavy drug and put me to sleep but when the medicine wear out, the headache came right back.. They run a CT scan on me and it came out at I had a cyst in my brain. But then they ran a MRI and they stated that everything was fine. That again I was having a tension headache.

    They prescribed me Tylenol 3 with codeine, which made me vomit my guts out and still did not work, only put me to sleep. Then they prescribed me butalbital/acetaminophen/caff  40 MG which just made me nauseus and still I had the severe head ache.

    Every time I end up in the ER, all they want to do is give me something to put me to sleep. They told me to make a apportment with a neurologist and maybe he or she can help me because they could not do anything more other than give me IV and sedate me.  

    The pain is horrible, from the middle of my head to my whole neck. I go to sleep with the headache and wake up with the headache.  Sometimes it hurts more when I lay down so I end up sleeping sitting up. I just want this pain to go away. I end up making a appointment with the neurologist two weeks from now. But just the thought of having to spend two more weeks with the pain it's very drepressing. I just hope that he or she is able to help get rid if this pain.

    i am very sorry for the pain that you going throu, and that I hope everything turns out good for you and that you get to find a cure for your pain.

    Thankz

    Tamara  

    • darrius48093
      darrius48093 tamara69822

      Posted

      Diclofenac is a nonsteroidal anti-inflammatory drug (NSAID). This medicine works by reducing substances in the body that cause pain and inflammation. Is what my doctor prescribed me.but I'm scared to take it because of the dangerous symptoms.

      She gave me migraine medicine it also didn't work. I've taken every over the counter pain reliever. I've had mine for 3 weeks now. Have you heard of anything yet?

    • miguel01251
      miguel01251 tamara69822

      Posted

      Hello Tammy,

      This sounds exactly like the problem I am having. How are you doing? Did the headaches concluded? Did they diagnosed you what your problem was?

      I will greatly appreciate your answers.. I am extremely worried and I want to follow any advice.

  • Bubbie
    Bubbie riclee37

    Posted

    Hello all! I went through many of the symptoms described by the members in this thread....the headaches/ earaches on the right side of my head were the final symptom before diagnosis thank goodness. I want to share because these sites help me press on for an answer, although my diagnosis may be different than yours keep looking.....you will find answers!

    I'm 50 and have been growing more lethargic and irritable over the past decade, not my resilient self and increased ADD tendencies which hindered me where it used to almost be my " super power" to get things done. Insomnia so bad I have been on the couch for a year so I don't bother Hubby. Mysterious symptoms would cycle....first eye twitches and broken vessels in my eye for a few months unexplained by eye doc, then ulcer like feeling which left just as I scheduled a visit with a specialist, short term memory issues cycled, then the headaches....many of my symptoms mimicked menopause, stress reactions and just plain aging. When the headache started it would be on my right side above and behind my ear. It was almost like an alarm clock at 1 am each night.....I was researching cluster headaches 

     

  • Akin1990
    Akin1990 riclee37

    Posted

    Pls i have had continous headache for the past three months. Just same as you described. Pls have you been able to solve your headache problem and if sohow? Thanks
    • Phoebe604
      Phoebe604 Akin1990

      Posted

      You sound very anxious.  I have health anxiety so whenever I have something wrong it's always fatal.  I just started with a headache that would not go away.  Because I was focusing on it the headaches got worse.  I went to see an optician and now if they look into the back of your eyes if there is anything sinister, which I doubt, they will see pressure.  Have you any other symptoms?  I think it's a case of catch 22.  If you get reassurance I am sure, like me, that your pain will improve.  If you are that worried ask your doctor to refer you for an MRI scan.  A colleague at work has a brain tumour and her first symptoms were problems with her leg.  The most common reason for headaches is stress and worry fuels it.  Take care and let me know how you get on.  Mary 

       

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