A question about Lichen Sclerosis

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Hi everyone, Lichen Sclerosis is an external skin condition as I have been informed, however, I was wondering does anyone else have any internal symptoms. The opening of my vagina and inside is red raw and swollen, is this part of the Lichen? The nurse thought I had thrush before being diagnosed with LS and ruled thrush out.. TIA sad

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  • Posted

    I would start taking borax baths yes it in the inside as well if I were you I would start taking a diet switch I would not eat sugar gluten or milk dairy cheese this will take your swelling away and the borax bath will do it as well
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    • Posted

      Thanks Cheryl133619 I am taking Borax baths, not sure if you are aware of this but there is also a Borax homeopathy remedy which I took for a couple of weeks (maybe need to take again). I also have 2 other auto-immune conditions and am looking to try and make the AIP diet work for me (as I am a vegetarian but considering consuming a little animal protein via bone broth or fish for a couple of months if it helps heal my gut). I am going to make up a Borax solution in a spray bottle today for cleaning after toileting. Thank you for your feedback it really helps!
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  • Posted

    Have they checked out for other types of infections? Yeast, or lichen plains? Do you have a specialty gynecologist treating you?
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    • Posted

      Hi WIparadise, hey yes, I have battled candida over load for years. Actually went on a candida diet for four months to get rid of it. I have seen no-one in over a year, so asked a nurse recently to refer me to a gynecologist which she did, so just waiting now. Thanks for your feedback smile

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  • Posted

    yes I have the same problem, around opening and inside is all red and inflamed. At times I get it to subside some but that is my worst symptom and never have had much if any white plaques like I read about.
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    • Posted

      Hey Charlotte9559 it is so sore, isn't it? I have now got skin fusing going on which is worrying. I think diet may be the key here so will keep you all informed once I begin the AIP diet. Deffo find Borax helps too.

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  • Posted

    Hello pollygale, like others I also have had the internal redness, swelling and soreness. Not sure of your age but sometimes menopause contributes to this so just be aware. The contrast of the white areas on the labia also make the internal bits look a bit worse. As another lady has mentioned Lichen Planus can also increase soreness and I have both conditions, the treatment is the same so don't worry if this is confirmed. Once my treatment was underway the whole thing settled. I use the steroid ointment right up to the vaginal entrance but found the most improvements came when I started using pareben free shower and wash creams, stopped wearing tight or restrictive clothing. (Camando at every opportunity) and a daily moisturiser. I find coconut oil the most soothing. I also take lavender or Bicarbonate of soda baths twice weekly. These are just suggestions but you need to find what works for you. Take care.

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    • Posted

      Thank you for feedback Wero. I am going to try making a solution of Borax and bicarb and spray on regular and see how that helps. Hopefully, when I see the gynecologist they will check for other infections, or problems. Funny you should mention menopause because I have constant breast tenderness at the moment and at 48 it could well be? I also make my own creams with almond oil, shea butter, coconut oil and essential oils, but maybe just plain coconut may be better. Lavender is a blessing! Thanks again. 
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  • Posted

    I am post-menopause and yes I too have problems with being sore on the inside. Between the LS and vj atrophy my dear hubby and I have not been able to have intercourse in about 2 years now. Very sad for both of us...  Most women use clobetasol however so far I have chose not to for a couple reasons.

    1) I live in the US... I don't have insurance and the cost was well over $200.00. 

    2) I prefer to try and deal with it in the most natural possible

     

    Right now I am doing the borax bath soak for 20 minutes at least twice a week. I also do either the borax or baking soda spritz after going to the potty.  I have started adding about 3 drops of lavender oil to my spritz bottles. I like to alternate between borax and baking soda. I have found this to really be helpful. If you live in the US you may want to look for MATY'S all natural petroleum free baby ointment and give it a try for moisturizing. It is a combination of jojoba oil, coconut oil and olive oil. It isn't to expensive and it works great for me. 

    This has been such an exasperating journey for me. Trial and error, finding things that work and eliminating things that don't. I think it is a very personal and individual deal for all of us. Seems we all have underlying and contributing issues in which we all have to sort out. I try to avoid stress as much as possible however that is extremely difficult! I also have IBS so a daily dietary fiber supplement is a must.  God bless you and I wish you all the best.

    Praying for a cure!!! 

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    • Posted

      Hi Jen, have you thought about doing the sitz baths daily? In 8 days I've gone almost symptom free soaking and washing with cerve at bath time. I wasn't able to have sex or be comfortable but now, in just 8 days for a change im great! I hope your doing much better.

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  • Posted

    Hello

    I have the same problem and it's painful. Until recently I was free of the redness and soreness inside but I had a spicy ready meal as I was in a hurry and the pain and redness flared

    up badly. Just about got this under control using borax on cotton buds as described in an experiment with borax. Borax also helping with the appearance of my clit and I think reducing the fusing.

    I have long term candidiasis causing chronic fatigue which I manage through diet. No sugar, no gluten, no alcohol etc. Does anyone else experience sweats at night. Like a fever but just on my brow and face not my whole body though it feels quite draining?

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    • Posted

      Yes I do, I thought it must be hormonal but I have been off  estrogen meds for few years and had total hysterectomy years ago so I didnt think I could still get menopause symptoms, but not sure?
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