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A Really Bad Day

Posted , 10 users are following.

Flowerlady
Flowerlady

Hi all Fibro pals. I am having a  bad day today. I can hardly move around, as I am sore all over. Its making me feel really lowfrown.. Just need someone to talk to please..

1 like, 39 replies

39 Replies

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  • wendidly643
    wendidly643 Flowerlady

    Posted

    Hi Anne   Sorry to hear that youare having a bad day  Dont get too down  Remember we are all here for you and tomorrow will be a better day x 
  • wendidly643
    wendidly643 Flowerlady

    Posted

    I am just back from seeing my GP  I went asking for painkillers as I only take paracetolmol and ibrupfren   He refused to give me codeine etc as said these are addictive and he is sure that I can cope with the pain without stronger painkillers???   Guess I  am going to have to try   Stress makes me so much worse and having to complete my PIP form (which is more like a book than a form) is stressing me terribly    Has stress triggered you feeling worse today? 
    • Flowerlady
      Flowerlady wendidly643

      Posted

      Morning Wendy. I only take Paracetamol and Oramorph..It takes the edge off. I would not say I were stressed really, I am so sore all over and its that I think thats getting at me, even trying to enter the kitchen to make a cuppa brings tears to my eyes today..Never felt this rough before. I have filled in the PIP weeks ago, it took me and my husband 3 weeks to complete as I were just getting myself very confused with it. anyway, now I have had the assesment last week. I had that at home as I refused to travel to Stafford much too far..Will wait and see now.
    • christine58469
      christine58469 Flowerlady

      Posted

      hi anne

      Could i please ask you for some advise on a pip home visit. I know the questions about eating, walking, dressing yourself etc but do they give you an examination and do they want to watch you get up and walk also do they look around your house to see what aids you have (hand rails in toilet)?. My doc diagnosed me on friday after 1&1/2 years of pain. Does a definit diagnoses from your doc help getting pip?

      Any advise would be helpfull as my visit is on 17th of this month and i'm stressing already and is making my pain worse. I take co-codamel, gabapentin and Amitriptyline 20mg at bedtime and i find this only takes edge of pain.... dont know how anybody can manage pain on Paracetamol alone.

      I think i have a very good doc after reading some posts here. My symtoms have been getting worse every month for a year now as i said to my doc it's like a creeping fungus attacking my body and theres nothing you can do but fight the pain. Any advise on my home visit would be very welcome as i've never claimed any benifits before having worked for 38 years this is all new to me and very scary.

      thanks Christine

    • hazel70459
      hazel70459 wendidly643

      Posted

      Hi , Dont just just wish doctors or anyone who thinks it cant be that bad, could feel your pain for a few mins, i bet they would feel differently towards you,and try and help ease pain instead of causing stress which makes it worse. I have found shelf products do sweet fanny adams. I am on duloxatine and amatriptalene and i am still in pain . At night i have taken a sleeping tab ( herbal) so i can be knocked out so i dont feel pain sort of works. hugs and good look with pip book , i mean form ha ha. what is it pip anyway?. 
    • Carinaeta
      Carinaeta christine58469

      Posted

      Hi Christine. They dont examine you and they dont make you walk about or check for aids etc. Try not to stress about the visit. I have heard some horror stories but my assessment wasnt too bad at all. Just try to imagine youre having a really bad day and answer the questions honestly based on that. I say honestly, im not implying that anyone lies about this condition, its just that it must be difficult to assess an invisible condition and im sure that some people lay it on a bit thick when being assessed, i was advised by some people to not get dressed or tidy the house etc on the day of my visit, but i always do and i wouldve felt daft if I hadnt and I think the assessor wouldve seen right through that, so just be yourself, be honest and answer the questions based on a bad day, which it probably will be becuase being interviewed is stressful anyway. Good luck, xx
    • tiswas24537
      tiswas24537 hazel70459

      Posted

      just would love all those people who think its made up to have one full day of flare pain and see then if they think its made up.sad
    • christine58469
      christine58469 Carinaeta

      Posted

      hi carinaeta

      Many thanks for your advise i spend all day in my jim jams anyway so it'll be no different on day....i've been on a site called youreable and somebody had a visit from a horrible women who was a nurse and procceded to tell her she did'nt think this condition exists and it was all in her head.....is this typical, my assessor is from Capita

      christine

    • christine58469
      christine58469 hazel70459

      Posted

      hi hazel

      pip is personel independence payment....extra money to help with day to day living expences.... its replacing DLA.... i lost my job august last year because of this horrible disease and have been surviving on ESA which is a pittance.

      christine

    • Carinaeta
      Carinaeta christine58469

      Posted

      It wasnt my experience. the lady who came was v reasonable, it seems irresponsible to send someone who doesnt believe in the condition, they are going to be a bit biased and i would think it would be a v good point to appeal on. My assessor was v good at weeding out the facts, such as ; she asked if i was able to wash myself, yes i can, yes i can have a bath, but its got steep sides and if im having a bad day its difficult to get in and out but i manage, i explained that i dont have showers becuase it hurts my shoulders and arms so much, so while i was thinking that im perfectly capable of washing and bathing, she explained that actually im not becuase i cant shower, there may come a day when i cant get into the bath or up the stairs at all, so potentially one day i wont be able to manage it, it was a bit shocking becuase i realised that shes right, my bathroom is upstairs, if i ever cant get upstairs im screwed!  Yet i'd not realised myself because "im managing". She was really helpful and nice. She said they try and "build a picture" from your answers.
    • tiswas24537
      tiswas24537 Carinaeta

      Posted

      its not that they want to turn people down 

      they work for the goverment

      and the goverment wants 20 out of every hundred turned down 

      so thats what they do .mad

    • Flowerlady
      Flowerlady christine58469

      Posted

      Hi Christine..I have never claimed anything before, and were advised to.So I did, took me three weeks to fill in the forms with the help of my husband. I could not get my head around the questions 'fibro fog' and then after about two weeks I had a letter for an assesment at stafford. I paniced, as I am unable to travel far because of the discomfort.My husband phoned them and explained why I could not travel, and asked could I have a home visit. This was arranged. On the previous night ofcourse I could not sleep due to worrying, and next am were in teriffic pain. When she arrived, I could not have met a more plesant and very understanding lady. She went through questions like on the form, eating, washing , dressing etc. I told the truth, no point in lying. And then she asked me to lift my arms, which I could a little, can I raise them above my head, behind my back etc,as I were in so much pain the answers were no. After one and half hour interview she asked could I stand so she could see me walk, and I could not get out of the chair as my back was so painful. She did'nt force me to do anything. There was no physical examination at all. That was it really, nothing at all to worry about. Hope all goes well for you too..Regards, Anne
    • christine58469
      christine58469 Flowerlady

      Posted

      thanks to everybody who has taken the time to give me advise on my pip home visit.My visit is at 10.30 am so he/she is going to see me at my worse ...as you all know mornings are the most painfull time of the day.

      Can i ask if anybody has been succefull with thier claims...don't mean to be cheeky just want to know if assessers believe this condition is genuin

      i only know of 1 women who got it

      christine

  • tiswas24537
    tiswas24537 Flowerlady

    Posted

    i no hun it feels like someone has taken a cricket bat to your body in the night .every movement is torture iv just come thru 4 weeks of a pain flare .

    and went straight into constipation mode.talk about torture.

    get some sea bed magneisum flakes and have a long soak it will help . if you cant get hold of these quickly use some epsom salts pro tem. 

    hope your day improvesbiggrin

    • Flowerlady
      Flowerlady tiswas24537

      Posted

      Hi Tiswas..You ok today? Thanks for info, but I am unable to get into a bath..wish I could I would love a nice long soak..
    • tiswas24537
      tiswas24537 Flowerlady

      Posted

      try using magneisum oil rub it on all your limbs will sting a little but it does help relax the muscles ,

      i miss my bath to i had a fall last year and i couldnt get in and out of the bath because i broke a bone in my hand so couldnt push myself up out of the bath. so we put a shower in .

      we are hoping to move house this year so hoping to have both i really miss my mag flake bath soak . have you tried infra red lamp .they help alot at getting heat in to the muscles aiding  relaxation of the muscles razz

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