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A Survival Guide

Posted , 9 users are following.

margaret22251
margaret22251

I have started to read the survival guide book by Dr Kate Gilbert and can recommend it also the royalties for the book go to the PMRGCAUK so another reason to buy it.

Can anybody tell me please if they have lost weight since taking pred, i know i had a bad cough and chest early this year for a month and did not eat as much!, and also since then i dont seem to eat as much, i have lost a stone, which is no bad thing for me.

Also i notice some of you dont eat a lot of carbs, which carbs dont you eat as i thought our bodies need some.

I must admit i love bread, potatoes, more so sweet potatoe, i like rye bread made only with flour, salt  and water, should i be cutting more carbs out, would love to hear from you on this subject please.

1 like, 28 replies

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  • pauline36422
    pauline36422 margaret22251

    Posted

    when i get ae i will look for the book in down load  form so i will hve something to read on my hols.    as for  carbs i did   cut  down on  potatoes   an dont eat any bread.   maybe   4  brown lices  per  week,  and  after  saying that  my food intake

    dropped,    i  dont ever  feel    hungery. no  longer want big  meals. only  sunday

    unch   is the  only big  meal     i have

  • andrea93419
    andrea93419 margaret22251

    Posted

    Hello Margaret, I lost about half a stone when I first became ill with PMR I also picked up some sort of a bug that made quite ill and I took to my bed for a few days! Since then being on 20mg pred I have cut out bread and potatoes altogether! And have maintained that  weight. It's coming up to Easter thou and there's lots of preparation including chocolate and I bake quite a bit so the temptation for chocolate is all too much for me at the moment! So hopefully after Easter I'd like to TRY to loose a little bit more weight as I become more mobile!! Hope is good advice! Xx
  • MrsO-UK_Surrey
    MrsO-UK_Surrey margaret22251

    Posted

    Margaret, I think many people on steroids would feel quite envious of anyone who actually loses weight on them!  You say that having lost a stone, that "is no bad thing" for you, so enjoy the fact that you are not experiencing steroid-induced weight gain!smile

    Carbs are fine as long as you avoid/reduce refined carbs such as white bread/potatoes (they turn to sugar in our bodies), replacing them with sweet potatoes and wholegrain versions of bread, rice, pasta, etc.  Oat based cereals are excellent.

     

    • MrsO-UK_Surrey
      MrsO-UK_Surrey

      Posted

      I meant to add that I've also got Kate Gilbert's book - just so wish that it had been arund when I was first diagnosed.  You never know, if you leave it sitting in a prominent position, Margaret, even that hubby of your's will eventually realise what you are going through!wink
    • margaret22251
      margaret22251 MrsO-UK_Surrey

      Posted

      thank you MrsO, one lives in hope, still it cant be pleasant living with me at the moment.i will  cut out white potaoes, and i do eat brown bread ,  spelt pasta and wholewheat pasta as well.cool
  • Jersey_Royal
    Jersey_Royal margaret22251

    Posted

    Hello Margaret,

    thankyou for for recommending Dr Kate Gilbert's Book, which I will buy,

    but looking at the reviews on Amazon, it seems it's  about PMR

    I have GCA does she cover that?

    JR

    • MrsO-UK_Surrey
      MrsO-UK_Surrey Jersey_Royal

      Posted

      JR (that reminds me of Dallas days!).  Yes, Kates' book very definitely covers GCA - page 53 onwards.  I had both PMR and GCA and I would have found this book so helpful during my journey with these conditions.
    • margaret22251
      margaret22251 Jersey_Royal

      Posted

      yes she does Jersey royal and i was a bot scard to read, but it is very formative for you, its a must if you have GCA, take carebiggrin Margaret
    • Jersey_Royal
      Jersey_Royal MrsO-UK_Surrey

      Posted

      Thanks I have just ordered it,  I remember Dallas too, loved it.

      as for red wine and dark chocolate. -  Happy Days.

       

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