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A Survival Guide

Posted , 9 users are following.

margaret22251
margaret22251

I have started to read the survival guide book by Dr Kate Gilbert and can recommend it also the royalties for the book go to the PMRGCAUK so another reason to buy it.

Can anybody tell me please if they have lost weight since taking pred, i know i had a bad cough and chest early this year for a month and did not eat as much!, and also since then i dont seem to eat as much, i have lost a stone, which is no bad thing for me.

Also i notice some of you dont eat a lot of carbs, which carbs dont you eat as i thought our bodies need some.

I must admit i love bread, potatoes, more so sweet potatoe, i like rye bread made only with flour, salt  and water, should i be cutting more carbs out, would love to hear from you on this subject please.

1 like, 28 replies

28 Replies

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  • ptolemy
    ptolemy margaret22251

    Posted

    I have cut out simple carbs and gluten, although I do sometimes succumb to the odd biscuit. Fruit and veg have carbs in them as well as biscuits! It is the sugary carbs that I have tried to cut out. I have tried to include anti inflammatory foods and also foods with calcium, potassium, vit D etc. You are very lucky losing weight. Pred made me very hungry.
    • margaret22251
      margaret22251 ptolemy

      Posted

       i thought i read that parsnips convert to sugur but maybe some one will correct me on this.we surly cannot cut all things that are good for us tho.

      do you drink nettle tea oh sorry thats an histime i think, when you say anti inflammatory foods, i think turmeric is good, what else do you use.biggrin

    • MrsO-UK_Surrey
      MrsO-UK_Surrey margaret22251

      Posted

      Margaret, yes you are right, parsnips turn to sugar in our bodies.  Turmeric is a good anti-inflammatory.
    • ptolemy
      ptolemy margaret22251

      Posted

      That is correct they do suggest not to have parsnips, veg  grown above the ground is preferable. Luckily parsnips are not around all the time. I must admit I do sometimes add one to soup. I do drink green tea as well, which I have really grown to enjoy.
    • margaret22251
      margaret22251 ptolemy

      Posted

      ptolemy, have you heard of the green japanese tea called, Matcha and Tulsi, i read somehere that these are supposed to be good, you have given me a thought to look it up again, my son lived in Japen for 3 years he got us stsrted on Sencha green tea a required tatse buy  very nice.biggrin i might

      ask my son  about them too

    • ptolemy
      ptolemy margaret22251

      Posted

      I have tried various green teas such as Matcha from Waitrose, but normally get run of the mill green teas from the Co-op I am not sure what type of green teas they use, I will have a look. I have not bothered with tulsi tea as I am not really a herb tea person. 
  • erika59785
    erika59785 margaret22251

    Posted

    I have and read the book, and I can highly recommend it.  It is full of inormation about her own experience with PMR and how she survived.
    • margaret22251
      margaret22251 erika59785

      Posted

      i found as well the idea regarding reducing pred, do 5 days at the high dose two days at the low dose, till eventuall you have all 7 days on the low dose, might discuss this with my doctor
  • Juno-Irl-Dub
    Juno-Irl-Dub margaret22251

    Posted

    Margaret, I also lost over half a stone over the past year and a half yet everyone told me my weight would INcrease and I would have the 'moon face' for a period. This didn't happen either. I was aso taking Forsteo for a year after the PMR diagnosis and I thought it may be due to that med. - but neither that or Pred have listed weight loss as a side-effect !!  When I mentioned it to my doc she weighed me at that visit and said she'd  ' keep an eye on it '. The weight settled didn't continue and I am now apx. i size smaller - and one notch tighter on my jeans belt . .. . . Kind wishes and good luck.
    • margaret22251
      margaret22251 Juno-Irl-Dub

      Posted

      thank you Juno, i will tell my doctor when i see her and also am keeping a diary for my weight, incase i loose any more not worried yet .
  • pauline36422
    pauline36422 margaret22251

    Posted

    hi margaret we go to turkey on 4  may for 1 month  so i will be getting lots of sun

    we have a house there and  go  for 1 month in sept also.    to hot in july and aug

      so the  children go then   during summer  hols

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