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A.V misery

Posted , 11 users are following.

kay13657
kay13657

Hi Folks 

im thinking of seeing a specialist having avoided the prospect for ages , can anyone give me any encouragement in terms of the treatment you've received and did it help any ? I don't have much confidence in all honesty and don't want probing n poking about if there's no point .

Any feedback gratefully received 

Kay 

1 like, 41 replies

41 Replies

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  • nancyo
    nancyo kay13657

    Posted

    Hi:  I couldn't stand feeling ill all the time, and having continuing UTI's   so after three years of antibiotics and estrogen cream I had a treatment called Mona Lisa, its a laster the regenerates the area.  thats my story though I am still battling again recently  and now need treatments closer together  fo

    • kay13657
      kay13657 nancyo

      Posted

      Hi Nancyo

      Thankyou for your advise I am looking into the Mona Lisa option and o believe there's a new procedure called Diva . I'm going to ask for the referral to a specialist and take it from there thankyou for taking time to respond

      Kay

    • nancyo
      nancyo kay13657

      Posted

      Diva is replacing Mona like sa. That will be my next job treatment.  Good luck and keep me posted 
  • tracy12090
    tracy12090 kay13657

    Posted

    Hi I think it was the best thing I ever did as I am now fairly comfortable after 2 years. I use Ovestin x2 weekly plus tibolone 2.5 mg and 10mg Nortriptoltyline for the Vulvodynia. I was getting nowhere with the GP. I can now manage although I can't let the meds slip or symptoms are back within a week its the lowest doses I can personally get away with. I had a total hysterectomy plus ovaries and tubes which had a drastic effect on me within days. I hope the specialist can find your solution for you, don't leave any details out as this is the best opportunity to get the right treatment that GPs can't offer.

    • kay13657
      kay13657 tracy12090

      Posted

      Hi Tracey

      I've decided I will ask for a referral thankyou for your advise I'm going to look into all my options hope you continue to manage this horrible condition

      Kay

  • Suki_girl
    Suki_girl kay13657

    Posted

    Have you oh tried a local oestrogen cream or pessary, like I said in the other post? Worked wonders for me.
    • kay13657
      kay13657 Suki_girl

      Posted

      Hi Suki

      No I haven't , I'm a bit confused as to which way to go I know that no creams even the steroid ones work for me so maybe pessaries will , I need to see a specialist so thankyou you've helped me decide hope u continue to manage your condition

      Kay

  • carol16664
    carol16664 kay13657

    Posted

    Hello, I think I have this condition although I haven't actually been diagnosed by my GP.  I have been using Replens for two months now but my symptoms just seem to be getting worse.  The burning, itching and tenderness seems to be outside of my vagina but intercourse is painful to at times.  Have any of you tried any other named creams? I have just compared the ingredients from Replens and Vagisan and the only common ingredient to both is water, every other ingredient is different.

     

    • kay13657
      kay13657 carol16664

      Posted

      Hi Carol

      I have been useing a steroid cream called clobaderm it helped at first but has little effect now . I'd urge you to see your gp and get diagnosed I have the same symptoms and have been diagnosed with Atrophic Vaginitis I am now going to ask for a referral to see if a specialist can help

      Good luck hope you get the help you need for this distressing condition

      Kay

    • Suki_girl
      Suki_girl carol16664

      Posted

      Hi Carol, you really do need to get a proper diagnosis because if your pain is on the outside then it could be vulvodynia. The way to test this is take a cotton bud and gently press it on the area around the vulva. If that touch is painful then the nerves in that area are hyperactive and hypersensitive and are registering touch as pain which is vulvodynia. Of course it is possible, actually quite likely, to have vulvodynia at the same time as vaginal atrophy and the symptoms are similar so it is difficult to sort out one from the other in women of menopausal age. Drs often assume, if you are of a certain age, that the symptoms are caused by VA and the vulvodynia goes untreated. Vulvodynia is very difficult to get rid of (it took me 2 years) - I have put up a post in the vulvar conditions group explaining how I cured my vulvodynia.
    • carol16664
      carol16664 Suki_girl

      Posted

      Hello Suki,

      Thank you for that information.  I had no idea what I was experiencing was even a condition thought it was just an infection of some sort.  This group page has been so helpful and I will definitely make a GP appointment.

      Have a good weekend.

      regards

      Carol

    • kay13657
      kay13657 carol16664

      Posted

      Good that you're seeing your gp , I asked to see a nurse as it's so personal and she diagnosed me following my test results she was brilliant and empathetic being a woman 

      Hope you get the help you need 

      Kay

  • carol16664
    carol16664 kay13657

    Posted

    Hello Kay,

    Thank you you for replying.  I will try the cream you suggested but will book an appointment with my GP.  Hopefully your recommended cream will help me out until a referral appointment comes through.

    regards

    Carol

  • Suki_girl
    Suki_girl kay13657

    Posted

    Like Tracy, I use ovestin but I have been on amitriptyline for over 4 years because I had vulvodynia in 2013 (cured after 2 years), then when the vaginal dryness set in the GP told me to stay on the amitriptyline because it would help with the pain from VA. I have never had any pain with VA (only discomfort during intercourse) so perhaps that is why.
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