accepting fibromyalgia

Hi Ses

Like you say it is the trouble of getting dummy away when they are older.

Amy did the same as you with Molly and said dummy fairy was coming to take it for the little babies.

I hope your appointment with gp goes ok tomorrow. :lol:

Love Tess x x

hi tess and ses

what a shock i got today my best friend has been ill for a a while and really thought she had ms and went to hospital today and she has fibro to... i cant believe it i have had my suspicians but two best friends living 6 doors apart to have the same illness is really unbelievable..

i bought a book of the net today..living with fibro so cant wait to start reading it and see what she has got to say about it all...

slept last night the first in about 4 nights till 4am . had visitors for 4 hours today and by t time the fatigue started then the pains... but im feelin a bit better now i have rested... i will be busy all day tomorrow trying to work out what to say at this tribunal on wed.. so wish me luck girls xxx.. di x

HI Di,

Yes I do wish you luck hun xxxxxx

and I hope you can sleep too along with everyone else xxxx

Sweet dreams too and gentle hugs xxxx

Hi Everyone,

Hope all is well with u and urs.

Everything hunky dory this neck of the woods. Apart from the aches and pains...hey ho...what can u do :roll:

Just plodding away at work , counting the days til Im off on holiday. Finish up on the 15th December,,,,,and it can`t come quick enough.. :lol:

Hopefully going to finish off my Christmas shopping next week (pay day). I like hunting around for the little nik naks and stocking fillers, as long as all the \"main\" presents are in...which they are thank goodness.

Good Luck with GP SES and with ur tribunal Di. Fingers crossed for u both.

Catch up soon

Lindy..x

Hi there Skye, Tess, Linda, Helen and everyone else......

I went to the doctor today and he was brilliant, he said he will not treat me until he has took my file home and read through my notes and so he has requested up to date blood tests to ensure nothing else and then once they come back I am to see him again and then he will help me as from there..... I think this is so good as other doctors I have seen do not know anything about my history so at least my new doctor wants to know about me instead of treating me just for the sake of it!!!! I am having RF and C Protein etc done on Friday....... he has given me a full cause of anti-biotics for my water infection as the other doctor I saw gave me a three day course and it did not work.......

I do not know how anyone with fibro manages working, I do not sleep very well and so my concentration would be effected if I was still working..... I used to work in the financial industry and loved my job so much but due to the fibrofog there was no way I could continue due to mistakes and pain I had since 2006...... so to this I admire anyone still working so well done Lindy x and anyone else out there that is able to work!!!!!

Take care everyone xxxxxxx

Hello everyone, Linda here,

I am with you on this Ses, I too admire anyone who can work with Fibro. I know that no two people are the same with this condition and that we all suffer different levels of different symtoms, so there will be people who can work just like Lindy. I had to give up my job last March, which I had done for 22yrs. I was a teaching assisant, and got so much joy from the children I miss them terribly. I hope you can continue to work for as long as you want to Lindy. It can be very lonely at home all day!

I`m glad you got on well with your new GP Ses, it makes you feel better just knowing that someone cares enough to read through your history before prescribing drugs that are not always necessary.

Can I ask a question of you Ses, its not for me but a young girl who lives next door with two small children? She is quite ill at the moment. not Fibro related, but is really too sick to get her boys to and from school without help. She is finding it very difficult to accept that she can`t do these things and I just wondered how you managed with your little boy and if you have any tips or advice I could pass on.

Many thanks, hope your pain etc. is not too unbearable today.

Love Linda

HI Gals,

Hope ur all ok.

Remember, Ive not been diagnosed yet with fibromyalgia, but I have to say, after reading all ur posts....I feel bl**dy lucky.

I get stiff and achey, but the last couple of days my right elbow has been total agony. Im having problems weight bearing with my right arm...just no strength and ruddy painful. Just moving and bending it is difficult. What the hells going on I ask myself?

The fatigue hasnt been as bad the last week or so....so Im thankful for that. Its swings and roundabouts with me. Maybe its just the \"start\" of fibromyalgia....or maybe its something different....god only knows. Hopefully when I see the rheumatologist, I`ll get some answers. I need rubbed out and drawn in again... :D

Take Care

Lindy..x

Hi there everyone xx

Well Linda I get help from the NCH as they pay for Ethan to goto nursery on a Wednesday and a Friday and I get help off others to pick him up from school, but when I was re-assessed this week they are going to get someone to drive him home so I don't have to depend on others helping..... Mike starts at two in the afternoon and the majority of the time Ethan has a nap then so I look after him on a Monday and a Thursday for an hour and half as Olivia school is not far and neither is my hubby work as he works two streets away so not far neither. When I had Ethan and he was having his 18month check up I saw my health visitor and explained to her that I was having difficulties and so she applied to Surestart as it was then (now changed to NCH) and so he has been there since around feb 08. He starts nursery in april 09 so this will be better !!!!

Lindy, Fibro moves around as one minute it can be in your big toe and another time you can get it in your head so it is annoying......I have Osteo arthritis and it is a different pain as it is there constant and it is like toothache burning inside but it feels not as hot on the outside????? I have had this constant pain in my hip/spine since oct 06 and so I knew it wasn't the FM before I had the x-rays!!!! Writing a diary is a good thing for your rhuemo too so he/she can get a picture of how things effect you? and then maybe you can also see what is possibly that is your main problems so you can explain to the Rhuemotologist, god luck anyway with your appointment, it won't be long now will it? I knew I had FM before I was diagnosed by reading on here!!!! I have 18/18 tenderpoints so that is why I have probably constant pain 24/7 :sad:

I do hope you all are having a good night? take care everyone and thinking of you all xxxx

Hi there. It's sad to accept ur life has now changed. I have both Fibromyalgia and M.E quite a serious type I've been told by the nhs specialists.

I was diagnosed when I was 27 yrs old.

I'm not going to sugar coat this for u as I feel it's right to b completely honest and open.

I cried a lot and felt scared at that time. How was i going to keep a roof over my head when I can't work? I had no one. My family just did not help but that's another story. I kept having dreams about my job. This illnesses took away my independence and that was frightening.

I have lost friends since being diagnosed but also met new friends that understand.

I don't like the words .....It's incurable u will have this for the rest of ur life. ..... how do they know that. Are they psychic? U have to rethink everything in ur life. What are the stressor in my life?

Don't cloud ur mind with boundaries keep it open and as positive as possible. I have good positive days but yes I have the more difficult days.

U will come through this and eventually may even see it was possible that this changed ur life for the better in some cases.

I never ever find it ok that I can't work but I have to expect that this is now.

Even chats with friends will change. Some people find it very difficult to understand what ur feeling. One of my new friends became my best friend. She has M.S which does have some similarities and so we have our own little language and it feels like a huge relief to talk to someone that really gets it.

Even now I'm still not close to my family and some have never even spoken to me about my illness or asked how I am. But I have to accept that this is my journey and they have theirs. U will feel disappointed in some relationships and froendships as they do change. Some better others saying goodbye.

Find ur own strength. Maybe ur husband will take longer to understand you. But this will test ur friendships and relationships. It will. I hope the people that matter to u will start to understand.

Look up the 10 spoon theory. It will give u ways of saying what it's like for u everyday. The pain side of Fibro is harder to explain.

Best advise from me......is

Find a friend with a related illness. It will help u so very much. Learn how much u can do or not so u dont yoyo.

I'm now 40. So I'm a long way on from the start. U are more than welcome to email anytime. That's if this has helped. Lol.

Be strong. U know what u are feeling they don't.

Zoe. 😊

Hi Everyone,

I am new to this group and have recently (June) been diagnosed with Fibromyalgia, although like many others on this site I think I think I have been suffering for years. I was always told I was suffering from depression, and that was causing my insomnia, which then caused my body to be tired and hurt...and had I thought about trying yoga and deep breathing !!!

After many blood tests and appointments and 16 / 18 tender points I was finally given a name for what was wrong with me !!

At first I was relieved to have this diagnosis and really believed that if I avoided stress and didn't over do things I would be back to semi normality... how wrong was I. I am finding the pain ,aches and fatigue  disabling at any random time. I have no control over it at all lately! The insomnia is at an all time worst, sometimes no sleep at all and finaly fall asleep about 5 - 6 the following morning, and the slightest thing wakes me up again !. Fibro fog has also become a constant companion .

I have been prescribed 10mgs of Amitriptiline with permission to find my ideal dose between 10mgs up to 20mgs (liquid form) by my doctor, but have been very nervous of taking it, but I think I am going to have to give it a try !

Any info on amitrptiline side effects and results would be appreciated !

Also any info on how you get your head around the fact you could feel like this forever would be so welcome..because right now I am struggling with that one