Achalasia and Paleo AIP Diet - Any luck?

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I am recently diagnosed with Achalasia and I am still pending test results to tell me what type I have. I have had this for 1 year before finally getting the right diagnosis. In my research, I started wondering if anyone has had any symptom improvement or even remission with an autoimmune diet such as Paleo AIP or any others? What about supplents? I appreciate any help being a new comer.

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  • Posted

    Hello JW94046, 

    Sorry to hear of your recent diagnosis, but at least you know, right? I have not had any luck with any diet, supplements, etc... what I have learned is what I tolerate best. It seems it's just trial and error.   Good luck!

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  • Posted

    Sorry to hear about your recent diagnosis. I've tried different things, but have found that everyone is different and finding what works best for YOU is the best way to go. Some days, I can eat what I want, other days the same food can stick and make me choke causing spasms. Never found a diet or supplement that helped really. Sorry! Hope you find something that does help you. Best of luck!

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    Posted

    Thank you! I think you are both right. I tried this diet for a few days and it seemed to make things worse and I got reflux every night while doing it which usually happens only once a month. Yesterday I ate the normal things I can eat and I was fine last night. What type do each of you have?
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    • Posted

      The types of achalasia can be confusing, and I am not sure that the medical profession always use them consistently, or that people always fall naturally into just one type.    But, for what it is worth, Classical, Type 1 means that there is no peristalsis - no muscle contractions - and the lower oesophageal sphincter does not relax.

      Compression, type 2 involves problems with pressure within the oesophagus, with ineffective or uncoordinated peristalsis).

      Vigorous, type 3, is called 'vigorous' causing chest pain (high amplitude pressure spikes and uncoordinated vigorous contractions).

      Some kinds of food can cause trouble more than others, like soft bread, rice and food that congeals easily, food with stringy texture that might stick more easily, or with skins like cooked tomatoes.

      The condition does appear to be associated with the nerve endings that control the swallowing muscles, so they become sensitive to overloading of food, strong tastes and other reactions.   The spasms can be very painful, and might get triggered by causes including blockages and reflux.

      It is definitely worth getting a proper analysis by a manometry test and barium swallow tines test because that tends to pinpoint exactly where the problems are occurring.

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    • Posted

      I actually had a drs appt with my gastro dr yesterday b/c I had several questions and wanted to follow up from my last endoscopy. I asked him what type I was and he said a combo of all.  Also, the only thing that has ever helped my reflux is pantaprozole. Since I started taking it, over a year ago, I haven't had a single episode of reflux. Might want to ask your dr about it. 

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  • Posted

    I work with a lot of exotic woods, so tried air purifiers. I also have a well at home so tried bottled waters. I tried no dairy, no nuts, sleep more, stress less, don’t eat this, that,try this, that... but in the end my LES and esophagus just stopped working and the weight loss was problematic and wasn’t going in a positive path. I had the HM w Dor Fundoplication.  Now, seven months past, weight is good. I’m healthy. I have to be cautious with stress triggers but generally can do everything I did prior to my symptom onset. 

    It was super scary! BUT, I made it through. This forum was a big help. I hope that helps. Do all the tests and explore your options. Best wishes!

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    • Posted

      I, too, had the HM with Dor Fundoplication in 2012. It helped so much the first 2yrs and then I started having symptoms again.  But, they're nothing like they were before the surgery. I'm thankful I can eat pretty much what I want besides things like granola, popcorn, cereal etc.  I think the forum has helped too and I think we all need to stick together and continue trying to help each other as much as we can. Best of luck!

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    Posted

    Thank you all so much! It's very overwhelming so I appreciate you all so much! I had my manometry last Tuesday, but the hospital's system is having some issue and my doctor can't download it so I am stuck waiting to find out. We are from Texas, but are living in Mississippi for the year for my husband's job and I feel out of my comfort zone getting care here with a doctor that is maybe not as familiar with this condition as someone in a bigger city. I meet with him next week to discuss my options. I would not want to have surgery here for sure, so do you think there would be harm in me doing the PD here just to get some quality of life back and then doing surgery when I get back to Texas in 6 months?

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    • Posted

      Hi, 

      Diet is a tough one when it comes to A. Everyone is different it seems...

      I do find that High Strength Magnesium and VB help to take the edge of symptoms. Others have had good results too... I also take a Calcium Channel Blocker on prescription that helps also... 

      Hope the Results come through soon. Good luck!!!! smile

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    • Posted

      Hi Alan, 

      Yes, but will put Vitamin B in the future. Mentioning this seems to be my standard response now!! smile  but I guess its a case of having to repeat advice on these forums.... Unless we all create an Advice sheet or something, but I don't think links even work on here...

      Best, 

      N  

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  • Posted

    The horrible truth is that Acalasia can't be cured (not at the moment anyway, we live in hope...)

    There are a load of surgery and not-surgery options, depending on how bad yours is.

    It will constantly get worse, the best anyone can do is manage the condition.

    I had POEM in Nov 2017 and it made a MASSIVE difference, I'm now back to normal (well, as normal as I get !).

    My GI Doc said POEM can be done up to 4 times if necc before looking into more drastic surgery.

    The first hurdle is getting diagnosed, once you've got that then as long as you have a good GI Doc you can get treatment.

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    • Posted

      My mom is the first one i've ever heard cured from achalasia. She had a depression and excessive stressful which gave achalasia. At that time she took buspar and acid reflux medication. It took her 3 yrs and she eats whatever she wants but she tells me that she is never hungry. I am her son and currently expereincing swallowing difficulties.. I dont know it this can be generic but came too soon for me. i am only 32..

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    • Posted

      Hi,

      Very interesting account! ... I have heard of anti-depressants helping A. I think there are various causes / roots behind the condition but certainly excessive stress could be one in its own right... I will look fwd to others thoughts too!....

      I hope you find a way to fend of your symptoms, and combat stress (if that might be the cause) ... Please do keep us updated on your progress!

      Wishing you healthy and relaxed karma,

      N. 

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    • Posted

      I remember reading someone's story and their whole family had it even though most of what you read says they don't know if its genetic. I definatly think stress brought mine on, but I was probably predisposed. That is the area I have been focusing on too.

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    • Posted

      I suspect that nobody knows about any genetic connections for certain, but some specialists have discussed the possibility I believe.   There may well be combinations of things that contribute to it, the permutations of which change for individuals, and in turn affect remedies.  
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