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Additional Symptoms of Tietze's Syndrome

Posted , 11 users are following.

James2108
James2108

I have been suffering from Tietze's Syndrome for over three months now and every day i'm experiencing additional symptoms.

Now I know I'm probably suffering from Anxiety as well as the above, but I just thought id tell you what other symptoms i'm experiencing to see if it relates to anyone else out there.

As well as getting a painful chest along the breast bone, i'm having palpitations, numb arms, sore neck, back and ribs, muscle twitching, headaches, sore ears along with what feels like palpitations in my ears, tiredness, sharp pains around the nipples area, sore stomach and pains at the bottom of the rib cage.

My pain in my chest comes and goes, I wouldn't describe it as a constant pain, just the odd sharp shooting pain along with what feels like my chest being stretched at times, very odd, but according to the rheumatologist this is symptoms of Tietze's Syndrome.

Let me know if you are experiencing any symptoms that are similar to mines as this would put my mind at rest!

0 likes, 31 replies

31 Replies

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  • James2108
    James2108

    Posted

    It also feels as though my chest is cold and numb, anyone had that also?
  • cristen75330
    cristen75330 James2108

    Posted

    I’ve had almost all of that this past month- except the ears. And also the cold thing, across the top of my chest. I have no idea which symptoms are from Tietze’s and which are anxiety, but pretty much all of this sounds like what I’ve read of other people’s experience with both of those things as well. 
    • James2108
      James2108 cristen75330

      Posted

      Yeah its really annoying me not knowing what symptoms are from what, im guessing everything apart from chest, back, arms and neck are anxiety! 

      Just wish somehow I could get better and get back on with my life, being bed bound for almost three months has really made me feel down about the whole thing!

  • MeganeJaggers12
    MeganeJaggers12 James2108

    Posted

    I’ve had most of these aswell. Im a female btw. Also had twinges in neck,jaw,face and legs. But I know I’m suffering from anxiety 
    • James2108
      James2108 MeganeJaggers12

      Posted

      Yeah I think a lot of my additional problems are definitely anxiety related.

      I'm going to see a physio tomorrow re therapeutic ultrasound, as this is meant to be very good for Tietze's Syndrome, so hopefully I begin to make progress!

  • pamie28299
    pamie28299 James2108

    Posted

    Yep, sounds familiar! I have been having painful esophagus spasms also, which are not food related. I swear, it seems to set off all the rest of it! Been going on for a year now. I also have fibro and my doctor decided to stop all pain pills from his chronic pain patients, so that's been fun!!! i am 66 and my doc is under 40. We always got along well, I thought, but he seems to blow off a lot of my problems with "sorry"! Me-"Doctor, I have extreme anxiety" Doc-"sorry" Me-"very depressed and worried sick about these gastric issues" Doc- "sorry"!!!rolleyes I actually went six whole weeks over the holidays with just my usual pain from fibro. Go figure!! As my Great Grandma used to say, "sorry, won't feed the bulldog"!lol I hope you will find some reassurance from this board! 

    • James2108
      James2108 pamie28299

      Posted

      Thanks for your reply Pamie!

      It's reassuring to know that these symptoms are related to a lot of people suffering from this horrible problem.

      I just wish for the sake of all of us that they find something that can help this sooner rather than later!

    • shelley_11097
      shelley_11097 James2108

      Posted

      Hi James. Can relate to all of your symptoms. I see my rheumatologist on Tuesday so fingers crossed I get some answers 🤞

    • shelley_11097
      shelley_11097 James2108

      Posted

      HI James. I’m going to tomorrow so will let you know. Hope you are having a better day 
    • shelley_11097
      shelley_11097

      Posted

      Hi James. Saw my rheumatologist today and everything points to Costochondritis. I’m on an immune suppresent to stop the inflammation. He was pretty vague didn’t really get a lot of answers. Had a steroid injection in my bum it’s throbbing now. That should start to work on the inflammation in around 3 days. See him again in 4 months. He hasn’t got a clue about the lump I feel in my throat he said I need a referral to ent. Sometimes I think it’s hit and miss. After 8 weeks of rest I do feel I’m turning a corner. Guess we just need to keep asking for answers 
    • James2108
      James2108 shelley_11097

      Posted

      Shelley,

      Thanks for letting me know how it went. 

      I also feel as though my rheumatologist was very vague also. I wish he sat with me longer to explain everything!

      I just had a bad bad episode of palpitations where my heart rate sat between 80-100 and I’m just lying in bed comfortable, lasted for around 25-30mins so not sure what that was all about. 

      Hopefully we all get on the mend and back to normality soon! 

    • shelley_11097
      shelley_11097 James2108

      Posted

      HI James. Oh no hope you’re ok now. I did ask about the palpitations my heart was racing one night and reached 180bpm he said that’s due to pain or inflammation and not heart related 
    • James2108
      James2108 shelley_11097

      Posted

      Feeling a bit better but heart rate is still a little higher than usual, but hopefully it’ll settle down shortly. 

      Do you ever get like a stretching feeling or popping feeling in your chest?

    • shelley_11097
      shelley_11097 James2108

      Posted

      I get a stretching feeling in my neck but not my chest. Glad it’s settled down a bit just a worry I know. I have heard of other people getting a popping feeling in the chest/rib area 
    • marge41105
      marge41105 pamie28299

      Posted

      Hi Pamie... I have been researching for so long for info on any relation between esophageal spasms and Tietze. I was diagnosed at age 15 with both, but don't remember being told of any correlation. That was a long time ago, as I am now 71! Once I was assured they were nothing serious and I convinced myself I was not dying of rib cancer, well I was 15, I just learned to live with it, as we all do. I went on with my life and it was just sort of there in the background. It acted up "lightly" now and then. I did learn, the hard way, not to drink anything extremely hot or cold...esophagus goes crazy until I fear the pain will make me pass out. It is horrid and then the pain radiates along my right rib. Just recently, I have started having a lot of belching and that hurts in the area of the esophagus and rib (frankly, they go together like peanut butter and jelly for me on the pain spectrum) and radiating now to the side under the armpit. It also seems to go through to the right shoulder blade, but I really hope I'm imagining this new symptom as I'm now afraid of gall bladder problems, or worse. As you said, this is not food related. No rhyme or reason. I feel so bad for all of us first because of the pain, and second because of all the worry the symptoms cause us. All these websites say it goes away, but I'm still waiting after 56 years. My apologies to all of you newly diagnosed; don't give up hope. And, of course, I have to wonder nowadays if it is really costochondritis. Also like you, I have fibromyalgia. Well I will see how this new symptom does in the next few days...I really detest the thought of all those tests! Best of luck to all Tietze/costochondritis sufferers, as we need it!

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