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adenoma but normal prolactin?

Posted , 6 users are following.

maddisonmin
maddisonmin

How common is the above? Could you still have an adenoma with normal prolactin?

0 likes, 22 replies

22 Replies

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  • patty44596
    patty44596 maddisonmin

    Posted

    Not sure Im answering your question. I had a dual pituitary tumour. It was prolactin and ACTH producing. Never experienced symptoms of Prolactin.
  • esc4p3
    esc4p3 maddisonmin

    Posted

    It depends whereabouts on your pituitary gland the tumour is as to which hormones it affects. I had a 3cm macro adenoma, but it only affected my cortisol and testosterone. My prolactin levels are normal.
    • maddisonmin
      maddisonmin esc4p3

      Posted

      I have extreme galactorhea but my prl is normal. and theyve asked me to do an mri for which im not very happy about
    • kim22986
      kim22986 maddisonmin

      Posted

      Question why would you not be happy to get an MRI to confirm? Is it a money thing? Hell I would jump at a chance to get an MRI to keep an eye on what’s happening.
    • kim22986
      kim22986 esc4p3

      Posted

      May I ask why you have not had this removed 3 cm is pretty big? How is your eye sight that size I would think it would push on optic nerve.
    • courtnay26
      courtnay26 maddisonmin

      Posted

      your lucky to get an mri

      that is a good way to see a tumor

      or parasellar mass

      I would try to do it without contrast though

    • esc4p3
      esc4p3 kim22986

      Posted

      Hi Kim, yes the adenoma was removed in 2013, because it was affecting my eyesight, although I hadn't recognised how badly. Eyesight is back to normal, but cortisol and testosterone production are forever ceased. But it is easy to get an injection to replace the T, and hydrocortisone to replace the cortisol.....although the latter is a bit more tricky getting the right dose.

    • maddisonmin
      maddisonmin kim22986

      Posted

      Because im sure its not this, thats all. If it was an adenoma, it would be the best outcome for me. But im sure its not. Im just slightly depressed and tired of going to the doctors
    • courtnay26
      courtnay26 maddisonmin

      Posted

      hi Maddison

      I would not dismiss it til you know for sure

      Unless you were breastfeeding recently

      this is very odd

    • maddisonmin
      maddisonmin courtnay26

      Posted

      hi,

      no i wasnt breastfeeding. ive never breastfed. my prolactin level was 29 though, which was within normal range according to that lab. so, i think that if it was prolactinoma the levels would be off the roof 

    • courtnay26
      courtnay26 maddisonmin

      Posted

      no, not necessarily

      sometimes with large adenomas

      the prolactin level is only

      slightly raised

      your slightly above the general ref range

      I really would get the mri just to check it out

    • maddisonmin
      maddisonmin courtnay26

      Posted

      me neither. but apparently, it happens. ovarian failure is called. i wouldve preferred to have a tumor than this.
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