Adenoma malignum
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Hi all,
I was just told yesterday by my OB/GYN that I more than likely have an extremely rare form of cervical cancer that isn’t detected via pap smear. It’s called Adenoma malignum. I am only 29 and am very scared. I was wondering if anyone on here has had this and what they did for it. Thanks.
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jane96717 Guest
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I'm sorry I can't be of any help as I don't know what it is, but if you are on Facebook there is an excellent closed group called 'The Teal Ladies', there are women on there that would answer your questions.
All the best too you!!
erika90744 Guest
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erika90744 Guest
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erika90744 Guest
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Guest erika90744
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erika90744 Guest
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I hope nothing is wrong and its just hormonal
I have been having spotting between periods but this been happening for 3 years now. No explanation my hormone and testosterone are normal. I am 20 so i had to pay private for a pap which came out normal i had a ct scan and transvaginal us 3 times and nothing was found. Not even fibroids. I went to get a transvaginal us today and it was terrible my anxiety is in the roof i hope is all good with you. I looked it up it says usually older women get that type of cancer so i hope not.
erika90744 Guest
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Guest erika90744
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And I had my fair share of ob/gyns not take me serious. She’s doing the biopsy because I really do have EVERY single symptom. Even if it ends up not being cancer, we need to figure out why my cervix is so inflamed without an infection. I’ve had excruciating pain down there for a really long time and I’ve already had every single test other than this so I would kinda like to figure it out!
yvonne81394 Guest
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Hi there. From what I've been reading on some of the studies of this particular kind of CC, it is no worse of a prognosis if not slightly better than adenocarcinoma or squamous cell of the cervix it's just that the cervix can show no abnormalities on colpo or pap investigations hence delaying appropriate treatment. The cervix can present with what appears to be benign Nabothian cysts which are also a benign finding. The most prominent clinical signs or symptoms of this type of CC are profuse vaginal discharge of either a watery or mucoid nature and maybe abnormal bleeding may be present. The discharge is of a degree that a panty liner or pad is necessary in these cases and can send a woman to the ER in some cases for investigation. A lot of your symptoms also suggest things like severe cervicitis too pelvic inflammatory disease. I have nothing else to offer other than at the very least you seem to have caught it early if it is indeed AM and the prognosis is very good and seldom is adjuvant therapies needed. I would, however and this is just me, get a second opinion if you can with a gyn oncologist since there are so many benign causes of your symptoms as well. Good luck to you!
yvonne81394 Guest
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erika90744 Guest
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Guest erika90744
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Got my biopsy report back today and there were no cancer cells. Just severe inflammation. So my gynecologist thinks it’s “cystic cervicitis”. Since I have several cysts on my cervix, it’s causing chronic inflammation. Unfortunately, since there are so many cysts, they would have to remove a good chunk of my cervix in order to ensure all of the cysts are out. So she’s recommending that I have my cervix removed completely