Adenoma malignum

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Hi all,

I was just told yesterday by my OB/GYN that I more than likely have an extremely rare form of cervical cancer that isn’t detected via pap smear. It’s called Adenoma malignum. I am only 29 and am very scared. I was wondering if anyone on here has had this and what they did for it. Thanks. 

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  • Posted

    I'm sorry I can't be of any help as I don't know what it is, but if you are on Facebook there is an excellent closed group called 'The Teal Ladies', there are women on there that would answer your questions.

    All the best too you!!

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  • Posted

    How did they tell you this did they do a biopsy?
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    • Posted

      So how do they know its cancer if it hasnt been confirmed? Im in the same boat i fear i have cancer but my gp says my cervix looks normal but i dont understand why my period is coming twice a week
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    • Posted

      She doesn’t know for sure yet and won’t know until then biopsy comes back, but she is suspecting it based on my symptoms and some other factors that are hard to explain on here. I’m trying to hope for the best because I know I’m young but honestly I would be the 1 in a billion to get this even at my age 
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    • Posted

      I have prolonged and heavy periods, weird discharge, ridiculous urinary issues, extremely painful intercourse and an inflamed cervix with no infection. Soooo yeah. Not good rolleyes
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    • Posted

      Yeah my aunt was 41 when she got cervical cancer but they caught it in time

      I hope nothing is wrong and its just hormonal

      I have been having spotting between periods but this been happening for 3 years now. No explanation my hormone and testosterone are normal. I am 20 so i had to pay private for a pap which came out normal i had a ct scan and transvaginal us 3 times and nothing was found. Not even fibroidsrolleyes. I went to get a transvaginal us today and it was terrible my anxiety is in the roof i hope is all good with you. I looked it up it says usually older women get that type of cancer so i hope not.

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    • Posted

      Since your young it even surprises me she thinks its cancer im glad she did a biopsy at least theyre taking you serious it took 3 months for an obgyn to actually listen to me
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    • Posted

      I’m sure you’ll be fine. Have you considered endometriosis?

      And I had my fair share of ob/gyns not take me serious. She’s doing the biopsy because I really do have EVERY single symptom. Even if it ends up not being cancer, we need to figure out why my cervix is so inflamed without an infection. I’ve had excruciating pain down there for a really long time and I’ve already had every single test other than this so I would kinda like to figure it out! 

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  • Posted

    Hi there.  From what I've been reading on some of the studies of this particular kind of CC, it is no worse of a prognosis if not slightly better than adenocarcinoma or squamous cell of the cervix it's just that the cervix can show no abnormalities on colpo or pap investigations hence delaying appropriate treatment.  The cervix can present with what appears to be benign Nabothian  cysts which are also a benign finding.  The most prominent clinical signs or symptoms of this type of CC are profuse vaginal discharge of either a watery or mucoid nature and maybe abnormal bleeding may be present.  The discharge is of a degree that a panty liner or pad is necessary in these cases and can send a woman to the ER in some cases for investigation.  A lot of your symptoms also suggest things like severe cervicitis too pelvic inflammatory disease.   I have nothing else to offer other than at the very least you seem to have caught it early if it is indeed AM and the prognosis is very good and seldom is adjuvant therapies needed.  I would, however and this is just me, get a second opinion if you can with a gyn oncologist since there are so many benign causes of your symptoms as well.  Good luck to you!    

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  • Posted

    Sorry, I apologize on previous post.  I meant to say that adjuvant therapies are seldom needed after initial surgical treatments, whatever kind that may involve, when AM caught at an early stage.  Seems that is better than other forms of CC in that regard.  All cases are different, of course, depending on stage of disease.  Again, good luck to you and please keep us updated.   
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    • Posted

      No pelvic inflammatory disease and I did in fact have “multiple nabothian cysts” show up on my pelvic MRI. I also have the discharge that requires a panty liner. My cervix is severely inflamed and no one has ever been able to tell me why (no infections). Everyone just basically gave up on me. All the symptoms are there. I just hope that the biopsy I had done finds something..
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    • Posted

      Did they tell you on the report about the cyst? My ct scan i got showed cyst but not on my cervix but on my ovaries and fluid in the cul de sac you had anything similiar in your report? Im still waiting for transvaginal us report sad
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    • Posted

      The cyst I had removed was called an inclusion cyst. 

      Got my biopsy report back today and there were no cancer cells. Just severe inflammation. So my gynecologist thinks it’s “cystic cervicitis”. Since I have several cysts on my cervix, it’s causing chronic inflammation. Unfortunately, since there are so many cysts, they would have to remove a good chunk of my cervix in order to ensure all of the cysts are out. So she’s recommending that I have my cervix removed completely sad

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