Adult Cytomegalovirus/CMV Mono?

I’m so sorry to hear abt your anxiety. I know it is a right pain a I also suffer from this. My anxiety came on for the first time abt 13 mos ago - shortly after I start feeling it. Now I still get anxious but it’s not an all day every day feeling at the moment. I am hoping it will disappear completely soon.

Hello Sam,

Thanks for the best wishes, I really appreciate it bro. Still a bit up and down, things a bit more sorer today just hoping things can settle again just trusting God to bring me through this. 

Oh goodness I do empathise Sam, it is only understandable that anxiety is there after what you've been through. I've been the same myself if I don't keep myself in a routine or whatever, I start to feel overwhelmed and tearful and emotional and anxious and it's awful. 

It really is a truly horrible feeling Sam, just want you to know I'm thinking about you and keeping you in my thoughts and prayers. This virus does that by trying to tear a strip of your confidence, it's natural that this is affected and to go through some anxiety, but don't panic because this will pass it really will. This virus is also great at trying to make you think it's something else when it's just the horrible effects of the virus itself, it's always wise to check in with the docs for blood tests etc regularly I found just for reassurance and peace of mind as much as anything. 

But absolutely this thing does get better Sam - and as you physically feel better the anxiety and stress and worry will lift too - just hang in there though and remember God is there and He wants you well and is going to pull you through this, I do truly believe that and praying for you still.

Craig

How long did it take for your anxiety to go completely? Mine has been on and off for about 13 months though I would say the first 6-7 months it was almost continuous. I think this is the most annoying symptom for me.

Hi Kay,

Glad that you had a better sleep last night, yeah you just need to be careful right now - what you've done in your holiday and going straight back into work would be a lot for a fully fit person to cope with never mind someone recovering from mono! So just remember do things are your own pace, don't let work or anyone pressurise you to go to a level that's not right for you yet and things will get better and grow stronger with time.

The anxiety I had I think was very much relative to the physical symptoms I had. When I felt a little better it kind of eased and got worse when was feeling much worse. It really just drains your confidence going through all that I know for sure Kay - it took me a while to build that back up again even after I was starting to feel well, you're still on edge not sure if it's still going to be up or down or not. I guess just trying to focus on the present and in the good moments and spells just be grateful for those and not think far ahead and remember in the harder periods that it's not going to last that it's just a temporary blip.

All easy to say I know Kay but so hard to put into practice when you're feeling anxious and stressed. But absolutely as time goes on and the symptoms fade (which they definitely will Kay) then you will feel better and the anxiety will fade away and confidence return again - hang in there and believe in yourself Kay, you're going to get there and God is with you through all this and is not gonna let this thing beat you, you are gonna have the victory!

Thinking of you and hoping for a good day today!

Craig

Thanks very much for your kind works Craig. It does really mean alot. Today i am feeling abit groggy as I didn't sleep that great lastnight. Maybe the holiday is now catching up on me.

Will aim to take it as easy as possible for the rest of this week and for the weekend.

Hope you are feeling better now.

Thanks Kay your kind words are appreciated too, thanks to God have been a bit more settled this week, I know I still a long way to go man but just grateful not to be feeling as dreadful as I did the two weeks before this. I need His help for everything, times like that just remind me so much and how much take for granted.

Yeah Kay your body is most likely just adjusting with sleep patterns and things after the holiday, hoping you can get some rest and that the weekend is a time when you can catch up on some sleep and rest.

Still rooting for you Kay and remember hang in there - I'm still believing in your full recovery and that healthy and happy times are ahead and that Year 2 is your year of recovery - I do believe that.

Craig

Thanks Craig 😃

You're welcome Kay, hoping for a good and settled weekend and remember take it easy! 😃

Yes, I am looking forward to a relaxing weekend. This week has been abit tiring to be honest. The sleep also could have been better. Feeling abit groggy today.

Hope you get a good sleep tonight Kay and don't have to get up early tomorrow, and can rest when you need to over the weekend.

The sleep wasn't great lastnight - had abt 4 hours. Got up early and went to parkrun though walked the 5k instead of running. Relaxing tomorrow.

Well that was still a lot you did today the 5k walk after such a hectic and busy few weeks - just make sure you're not overdoing it!! Hoping you get a better sleep tonight Kay and still thinking about you!

Thanks Craig. I should have listened to you. I have felt dreadful all day. Sleep wasn't great again lastnight, so that's abt a week now it has been bad. I think the recent holiday did upset my sleep pattern. Today spent most of the day on the sofa.

Hi Kay,

Oh goodness I really do hope that this can be a much better week than last week for you. Remember don't beat yourself up for anything or trying to do things or whatever, when your body feels a bit stronger it's only natural you want to do things and be more active - just so frustrating when your body pays for it afterwards and feels so bad.

Just want you to know your body won't always feel that way Kay - the stage does come with this when your body can be active again and cope with more activity and stress levels without feeling terrible and exhausted to extreme levels afterwards. I know you must be so weary after 14 months, I'm still thinking about you Kay and will keep you in my thoughts and prayers definitely.

God has been helping me and had a better and more settled week last week, but again a bit shaky yesterday and this morning, sciatica bothering me more and my mood and attitude not been so good again. Hoping things can settle again I'm just quite fragile too right now with everything going on in my life Kay, hoping and praying God can have mercy on us in all our hard times, I know I've messed so much of how I've handled my situation up and need God's help and mercy more than ever.

Thinking about you Kay and remember don't let others put pressure on you - just go at your own pace right now, even if it means not being so productive at work or getting as much things done as normal - that's okay - your health is priority right now and you will get back to being at full tilt again, I absolutely truly believe that.

Craig

Thank you Craig for always sending me these reassuring words. I have to remind myself all the time that I should take it easy. Woke up this morning feeling great (was in bed by 8:30pm), and even did 35 mins yoga at home before work. It's bn a busy day at work so far though and the challenges of people always p*****g you off is there so have to take a deep breath at times.

I will definitely try my hardest to take it as easy as possible this week - though might be a challenge with 2 or my work colleague off on holiday!

I had to turn down an invitation to go out with a group for a friend's birthday this coming thursday night because I know if I do I am going to be a right mess on Friday.

Hi Kay,

Well done on doing some yoga that sounds great, just remember though don't overdo it!! (I know I sound like a broken record!). I just remember myself overdoing it at times during recovery and, even though I was getting better overall, I had to go through these kind of dips of days and sometimes even weeks at a time where just was set back a bit, but it won't stop overall progress Kay just so frustrating that it's 2 steps forward 1 back, another 1 forward, 2 back then 2 forward and so on at times!! But think of it like a graph with peaks and dips, but the overall trend will move upwards and towards the words 'full recovery'.

Been feeling a bit low myself last few days, just finding it hard to breakthrough the situation I'm in, it's so hard when you can't see change and you feel it's you who is the one whose not stepping out in faith but it's hard when you have health challenges and just hoping and praying God can help us all! I so much want to feel well again too and just be back working in some capacity, but at the moment I'm just quite isolated and not really taking as many steps forward as I would have hoped and worry I am becoming lazy and won't ever move forward. Praying for God to intervene and help us where we really need the help right now!

So sorry to hear you're missing your friend's birthday this Thursday. It's these kind of things that can be the most painful I know, when you see others seemingly enjoying themselves and doing the things freely you wish you could be doing. Would it be something you could go along to even for an hour or so early on and then get home for an early night? Even if not, don't worry because you will be able to do these things again freely in the future Kay because you will be feeling a new level of wellness that you've not reached yet but are going to reach soon.

Hoping for a better day and hoping things at work are better today.

Craig

Hi Craig,

Thanks for your msg. I know exactly what you mean by 2 steps forward and 1 back. this seems to be the story of my life. Had a rubbish night sleep lastnight and so definitely feeling abit groggy and low today (similar to how i felt on Sunday) though yday I felt ok for most of the day. What a weird illness! How can it change you from day to day like this.

Regarding my friends birthday, her birthday is actually Friday and I already told her last week that I will go out for dinner with her Friday after work as I have all weekend to recover. She contacted me on Sunday and told me that a couple other friends convinced her to go to see a film on Thursday night for her birthday. The film is starting at 8:45pm! so I imagine it won't be done until at least 11pm and I won't be home before midnight. Lucky for them, she has the Friday off work and one of the other persons going is retired and the other works flexible hours.

Hi Kay,

Ah that makes sense well that is great that you are planning to go for dinner on the Friday, that is a much better plan and as you say gives you the weekend to recover! Your friends sound like mine too, we used to go the cinema a lot more so when I was younger but always wanted to go late on when I had work the next day, I didn't like getting in at around 11 when got work the next day even when fit and well!

I do hope that your sleep pattern can return to normal soon Kay, it must be so frustrating. Yeah the whole thing is so frustrating because when you see some progress you start to get some hope and then it can feel like it's being taken away when you have a dip again - it's an emotional rollercoaster that's for sure. I still believe you're going to get through this altogether and that your body will emerge from this phase strong and stable again and able to live a normal and full life. I still believe it Kay, trusting that God is working still and you will see the manifestations of full recovery. Thinking about you and hoping for a better day!

Craig

Thanks very much Craig. You always seem to put a smile on my face after reading your msgs.

I too don't like getting home too late if I have an early start the next day. The main issue for me is it takes me sometime to wind down and if I get home at about midnight, I don't just get home and jump in bed. The whole showering, winding down and getting ready for bed is going to take maybe another hour.

Oh thanks Kay I very much enjoy reading your messages too, everyone that posts on the forum here are really good and genuine people and just us messaging to support and encourage each other is something really positive and something I'm grateful for!

I know what you mean about winding down and being prepared for the next day. These days I'm a ridiculously early bedder unless there's something on or I'm out somewhere, which isn't too often at nights these days to be fair. Most nights I'm in bed for somewhere around 9 or before 10 anyway and maybe watch tv for a short time before sleep!

Craig

The best nights I have are the ones when I am in bed by about 9 - 9:30. Lastnight I wasn't in bed until shortly after 11 and I have been awake before 4am.

It's so hard when your sleep pattern is knocked out Kay, I do hope so much this settles down soon. I remember when I had the virus I was in bed early but also kept waking up during the night and having periods of being awake even though I was so tired - didn't seem to make a lot of sense.

Sometimes even just something like a bath with epsom salts in it shortly before bed can be good and help your body relax, something that I've found helpful at times for sure.

It's always been tablets I've taken Kay, oregano tablets from Holland and Barrett too. I think I must be their best customer goodness I've spent so much in that shop over the years!

Hope you manage to make it out for dinner with your friend tonight and it can help lift your spirits a bit - you deserve a nice evening after a hard couple of weeks.

Craig

thanks Craig. I will look into the oregano tablets.

I went in revital yday and spent £88!

I bought some D-Ribose which was recommended by one of their specialist in store. Apparently it has great reviews for chronic fatigue and they told me about someone who they recommended it to who had glandular fever and was still feeling horrible 2 years on when they came in store and it helped within a matter of weeks.

I saw my chiropractor this morning and he suggested I also try cbd oil. I just ordered some online so will see how that goes.

Good luck with the D-Ribose Kay! That's one I've read about before and I thought about taking it at one point for something or other, I don't think I did take it in the end if I remember rightly, but certainly sounds worth a go!

Oh I know I've spent that kind of money on supplements too, I know they say you shouldn't but sometimes you're just desperate to give yourself something to try and some new hope and to give your body the best possible chance of fighting this thing. I certainly know that I would be willing to pay a lot of what I could afford on a form of treatment / herbs if I knew it would help - your health is your wealth and is priceless that's for sure!

i totally agree with you craig - you can't put a price on health. today was one of those days when i felt almost normal. such a change from yday when i felt really rough.

Oh that was good you felt a bit better today Kay, hoping that continues into the weekend! You take it easy mind!

will do, thanks