1. Community
  2. Women's health
  3. Lichen Sclerosus

Advice please

Posted , 10 users are following.

Hazel1962
Hazel1962

Am reading a lot on here about people using Bicarbonate of Soda and Baking Powder? Is that right Baking Powder not Baking Soda?

i am keen to give it a try but need to know exactly what to get and in what quantities to use it. Also do you leave it to dry on the skin after use?

4 likes, 25 replies

25 Replies

Next
  • sampleremix
    sampleremix Hazel1962

    Posted

    Hanny advised me its bicarbonate of soda? Few pinchs in a small bottle.

  • susan556
    susan556 Hazel1962

    Posted

    Morning Hazel, may i ask what the bicarbonate of soda was recommended hear for? was it UTI?
    • Hazel1962
      Hazel1962 susan556

      Posted

      Hi Susan, think I read it was used for LS along with the baking powder or soda whichever it is.
    • Hazel1962
      Hazel1962 susan556

      Posted

      Hi Susan, LS is Lichen Sclerosis, that's what this forum is all about. Sounds like you've strayed onto the wrong forum.
  • margaret7457
    margaret7457 Hazel1962

    Posted

    Is there anyone on this forum from Dublin or anywhere in Ireland?

     

    • margaret7457
      margaret7457 kate207

      Posted

      Hi Kate, I was diagnosed with LS two years ago, after suffering with the soreness and pain for about 3 years, and not knowing what was wrong. I was using caldesene power and cream, which helped for a few hours. I was prescribed dermovate cream nightly for 2 weeks after diagnoses, and the relief was amazing. I use the cream maybe twice a week now to keep the symptoms at bay. My main problem now is fusing of the skin and I don't know if anything can be done about that. Do you have any problems with that, and how do you cope

       

    • kate207
      kate207 margaret7457

      Posted

      2 weeks seems a very short lead-in time for control of LS, it's usually in the region of once or twice daily for two months.  I don't have any problems with fusing at the moment, though I did lose most of one labia minora before treatment. As i understand it, fusing occurs when raw surfaces bond together - if you continue to have these raw surfaces then perhaps your LS is not fully controlled? People on this forum say that use of an emollient cream between applications of dermovate are very helpful, and some have reported that breadsoda baths can help to partially reverse fusing. Surgery is possible to reverse fusing, you should discuss this with your Gynacologist or whoever is treating your LS. Do you have private health care? I go to see a private gynacological oncologist in Dublin because waiting lists are so long and I was really upset at the dismissive manner in which I was treated in my one appointment at a public hospital. I've also been privately to a very good dermatoligist.
    • margaret7457
      margaret7457 kate207

      Posted

      No unfortunately I don't have private health care, and I was diagnosed in The Coombe Hospital public clinic. The gynae was nice enough, but never mentioned to me about fusing, or gave me any other details about the condition, so I had to google it to find any information. I would be prepared to pay privately to see a gynae who has an interest in LS if I could find one.

       

  • cindy89869
    cindy89869 Hazel1962

    Posted

    I just use a small tub to sit in and put in a couple teaspoons, in a tub during a bad flare up I put in about a cup, im not sure if that is the correct amount but helped me.
  • hanny32508
    hanny32508 Hazel1962

    Posted

    BAKING SODA/BICARBONATE of soda.  NOT baking powder.  There is a big difference between the two. 

    1/3 cup in a bath and three pinches in a spray bottle (the kind woman receive in the hospital after giving birth)  

     

    I use the rinse after every bathroom visit and then cover the area with coconut oil. 

    The bath I do every other day.  

    Next to that I follow an alkaline diet.  

    It has been very beneficial to me.  No more fusing.  Better way of living with LS.  And use Globetasol only when early signs of LS flare up are felt.

    Any more questions - just ask. 

    • Hazel1962
      Hazel1962 hanny32508

      Posted

      Thank you Hanny, that clears the confusion. Much appreciated.
    • mborr
      mborr hanny32508

      Posted

      Hi Hanny.. I use a sitting bath, how would be the measurements for this?
    • hanny32508
      hanny32508 mborr

      Posted

      Depending on the size.  I have not realy a good idea how big the sitz bath is, but I suggest you use 1/8 of a cup to start with.  You'll have to experiment a bit here.  But remember that too much is not desirable.  
    • margaret7457
      margaret7457 hanny32508

      Posted

      Hi Hanny, I have problems with fusing, and I was wondering if there is any way of reversing the fusing. Can they do surgery to repair the damage at all

       

    • hanny32508
      hanny32508 margaret7457

      Posted

      My experience is that a procedure called dilation is your best option. (it was done after I had only a pinhole left to pass urine)  Cutting will not help, it will only make that the fusing will be soon back.  After this procedure I did my bicarbonate routine  and the rest of the fusing 'melted' gradually away.  Today I can say that almost all the fusing is gone.  Include in that also my strict alkaline diet.  Plus regular use of coconut oil to keep all moist and flexible down there.  Globetasol is still my stand by and used when the early symptoms are felt. 
    • Hazel1962
      Hazel1962 margaret7457

      Posted

      Hi Margaret, I also have problems with fusing across my clitoris, I had the fusing parted by surgery, the surgeon said the skin just pulled apart. Unfortunately the area fused together again but looking back I think I didn't do enough, I was told to use Clobestol around my clit to prevent the fusing happening again but I was so paranoid that clob would thin the skin that I didn't use enough or do it as regularly as I should have. I think if I had known about the baking soda and coconut or emu oil at the time I probably would have been ok. I've used coconut oil and emu oil for a while but I'm just starting with the baking soda so will be interesting to see if it helps with the fusing as it has with Hanny. Fingers crossed!!
    • hanny32508
      hanny32508 Hazel1962

      Posted

      That's what I'm saying as well: Would I have known at the beginning of this trip what I know today - perhaps it would have never totally fused over to begin with.  

      And who's to blame?  A person has to figure out a lot just by one's lonely self.  Luckily there is this website where we profit from other people's trial and error.  

      I observed that the coconut oil brings a healing aspect as well.  Hard to explain perhaps, as I have no medical training of any kind.  It certainly helps to keep the layers separate and more. 

      Just a few days ago there was some imbalance within my system, due to a lack of medication I use for the adrenal glands that is no longer produced.  Most likely the result of LS 'waking up' every so slightly.   

      So there's another aspect to keep an eye on.  Any weakening of the body has an effect on the LS situation.  

Back to top
Next

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.