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After 10 long years suffering today I was officially diagnosed with fibromyalgia advise needed.

Posted , 9 users are following.

dean150481
dean150481

after 10 years being told it's nothing but at same time putting me on tramadol for what I was saying so contradicting there selfs , then couple years ago telling me it was restless leg syndrome,today was a big relive to finally get the answer I knew all along by a great Dr who gave me one important thing his time and he listened today at the hospital I'm being referred to physiotherapy for help also to go in hydra pool and also acupuncture just wish it was sooner at times you just feel so alone .

4 likes, 29 replies

29 Replies

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  • TeresaJS
    TeresaJS dean150481

    Posted

    Hi Dean, Welcome!  Some Epsom salts on your baths might be of help. I'm on LDN (Low Dose Naltrexone)... still experimenting. If it's something you'd like to consider we can talk. Diet and foods to avoid are a must too. Take care. T.
    • dean150481
      dean150481 TeresaJS

      Posted

      Hi Teresa 

      hope your well thanks for your advice , I will try that in my bath as its one time that does help very hot bath , I do worry about the medication situation as I'm on oramorph and mst , but there wanting to now change me to duloxetine and mirtazepine with oramorph I no in bad bad days it's there . What is naltrexone and how is it helping you take care 

      Dean.

  • christine26761
    christine26761 dean150481

    Posted

    Its a real celebration to finally get that correct diagnoses isn't it? Bless you a Dean...we all have usually had this Fibro fir years befire finally a diagnosis...we finally feel validated, many of us have been told it's all in the head...mm...I winder why.,we get depressed knowing so etching is wrong anfpd having doctors say it's just thus ir that...treating the many Symtoms seperately.no wonder we have such anxiety too..well done you Dean...now you can have treatment that will help....do remember that stressless is the key to living with Fibro..all those things you are going to do now, that the hospital doctor recommended are really beneficial too..have a lovely day be blessed..:-) xxx.     I think that's really good too. that we all must be good at  LISTENING and slow to speak or make any judgement...
    • dean150481
      dean150481 christine26761

      Posted

      Hi Christine 

      i tottaly agree over 10 years I've seen Drs another Drs but no diagnosis but then in another hand they are ploughing me with tramadol since I was 22 I was taking tramadol and they stopped when I was 30 I started on one a day ending up nearly 8 a day but nothing wrong with me didn't make sense all I ever wanted is what I got yesterday a Dr at the hospital to sit down and take time he examined me head to toe talked to me I was in there nearly a hour and 100% new straight away what it was I cried as he told me with relive . I just wish I had also found this site sooner as well as only be on here hours and the surport and advise is amazing with people who are going thru the same it's great to know your not alone .

      take care Christine , dean

  • deborah07681
    deborah07681 dean150481

    Posted

    Hi dean. I was diagnosed about 8 weeks ago. I felt elated when if finally found out what was troubling me then I went through what I can only describe as a grieving for my old life but with the help of these guys on this forum I'm slowly coming out of that and embracing what my new life will bring such as a healthier diet, a calm mind and more time to enjoy my crafting.
    • kaz_40
      kaz_40 deborah07681

      Posted

      Hi deborah I found it a relif when you finally get a diagnoses and know that its not in your head. you will et support and advice on the forum should you need advice. we are all in the same boat so we know how each other is feeling and what were all going through. It is hard at first coming to terms with how we are now and sometimes you can grieve for the old you. all we can do is take a day at a time and do what we can to make our lives more bearable. take care gentle hug 
    • dean150481
      dean150481 deborah07681

      Posted

      Hi Deborah 

      im pleased your now enjoying your crafting , my goal if possible is to get bk out on my kayak I loved that , since being on here only hours I've had such great messages of advice , more importantly what is needed more then anything is people who just listen , that's all I've ever wanted , I'm looking forward to the hydra pool asheat is the main thing that helps me they have gave me to try a topical capsaicin cream which heat the painful area and numbs it will let you know how it works take care Deborah 

      dean.

    • leona18728
      leona18728 deborah07681

      Posted

      Good on you Deborah

      You can lay down or fight I really like the new me now I've adapted to it

      Positivity at all times is a good healer

      Gentle hugs.

    • deborah07681
      deborah07681 dean150481

      Posted

      I've found it so helpful having people sharing coping methods and treatments as I soon discovered one size does not fit all with this illness. Take care gentle hugs

      Deborah

  • kaz_40
    kaz_40 dean150481

    Posted

    Morning dean how are you? hope your not in too much pain. Its a relief when your finally told what the diagnoses is. I felt total relief and cried. As some specialist make you think its all in your head. fibro is a learning curve for us all it takes time to adjust from being the person you use to be, to being who you are now. we cant do anything to change the situation because as yet their is no cure. all we can do is get through it a day at atime.do all we can to find ways of making our lives a bit more bearable. I personally find that if I focus on other things other than the pain Im in it helps. Heat Ive found helps me with the pain, not all the time but most of the time. its finding ways to help us cope with the pain its trial error on alot of things.we have no choice but to get through each day and each week as best we can with help support from loved ones and the lovely people o this forum.we are all in this togeather, and togeather we will battle through it. take care gentle hug 
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