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After 6 weeks post surgery, my prolapse is back

Posted , 9 users are following.

dorothy03601
dorothy03601

I had a Cystocele repair 6 weeks ago, and have been following the restrictions 100%.  I saw my surgeon yesterday, and she said the prolapse was back...but only half as big as before surgery.  She didn't want to discuss if it would get worse, or what she could do to fix it..if anything.  She just said "baby  yourself and don't lift over 5 pounds" and I'll see you again  3 weeks.  I am so upset!  Also my kidneys were enlarged because the urine was backing up, due to the prolapse.  Now I'm afraid that will happen again.. And I was told if it remained swollen, called hydronephrosis, it would eventually lead to kidney failure.  Have any of you had the prolapse return so soon after surgery!  Or has any of you had it return at any time?  What was done to fix it.?  I am losing my mind with worry.  Please someone respond.

0 likes, 30 replies

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  • chris00938
    chris00938 dorothy03601

    Posted

    Dorothy, I'm so sorry to hear what's happened.  I can imagine your disappointment.  I had a cystocele repair in November 2014 at the same time as a hysterectomy and my repair had failed by last summer (2015) so I've gone back to having a prolapse pessary.  I had one for years before the repair, and because I've also got a posterior prolapse AND now the vaginal vault is coming down too, and I have a connective tissue disorder, I'm not a good candidate for further surgery, so I'm very pleased that they found a suitable prolapse pessary again for me.  I'm perfectly happy with that and they tend to stop prolapses getting worse, so I'm hoping to have that for the rest of my life now.  I hope you can find someone who will talk through your options now.
    • dorothy03601
      dorothy03601 debra25218

      Posted

      It is a repair of a prolapsed bladder.  I don't have the technical name, but the doctor lifts the bladder with sewing it and lifting it it, because it has dropped. And uses a mesh sling to hold it in place.  Thanks for asking
    • dorothy03601
      dorothy03601 chris00938

      Posted

      Thank you for your reply.  Unfortunately a Pessary is not an option for me.  There is not enough tissue left to insert it.  
    • dorothy03601
      dorothy03601 chris00938

      Posted

      Thanks for responding.  I'm glad that you have a solution. I'm praying thatI have one as well.  I just wonder how many women have unsuccessful surgeries?  And how many bladders fall again so soon after surgery?
    • chris00938
      chris00938 debra25218

      Posted

      I didn't have a sling or mesh to repair my bulge into the vagina from the bladder, but just the bulge stitched together to tighten the vagina in that area.
    • chris00938
      chris00938 dorothy03601

      Posted

      Dorothy there is another procedure that they do on VERY elderly women where they actually close up the vagina to stop anything dropping down but I know this is a last resort.
    • chris00938
      chris00938 dorothy03601

      Posted

      I think roughly one third of prolapse surgeries fail within five years. 
    • dorothy03601
      dorothy03601 chris00938

      Posted

      Chris,  that is what she was suppose to do, because  my husband had prostate cancer, and we agreed to it.  But now I'm thinking that she didn't do it. She is a young woman, only 35 and maybe didn't have much experience. I hope other women contemplating this type of surgery will learn to ask many questions, especially how many of these surgeries has the doctor performed.  
    • chris00938
      chris00938 dorothy03601

      Posted

      Dorothy, I'd suggest phoning her secretary and asking exactly what she did do, because you need to know.  I think the problem is, we often don't know what to ask unless we've been on a group beforehand and read all about it.  This might make you laugh.  When I saw my consultant before my op I was asking so many things that she asked if I was a doctor 'because I seemed to have medical knowledge'  My reply was that I'd been in touch with Dr Google LOL!
    • chris00938
      chris00938 dorothy03601

      Posted

      Unfortunately though, Dorothy, I learned the hard way and it resulted in a lack of trust in doctors!  If they've done vaginal obliteration on you, I'm not sure how anything can prolapse now though so I'm a bit confused.  This is the description of vaginal obliteration: Vaginal obliteration is done by removing the entire vaginal lining except for 1 in. (2.54 cm) to 1.5 in. (3.81 cm). The vagina is then sewn shut. If the uterus is still present, a small opening is left in the vagina to allow fluids to drain from the uterus.  If they did this, then what is coming down now?
    • dorothy03601
      dorothy03601 chris00938

      Posted

      Chris, you raised a good point.  It seems to me she didn't do a vaginal obliteration as she promised.  I will look into it for sure.  The surgical consent listed it as a colpoclrisis and sling placement.  I asked if it was the same as a Vaginal Obliteration in pre admission Testing and they weren't sure..so I refused to sign the consent until I talked with the surgeon.  On the day of surgery , she told me that it was, so I signed it...now I am wondering.  I got the surgery record, and the procedure was listed, but not the name of the surgery.  I wonder why?  I'll get to the bottom of this.  Thanks for your concern
    • chris00938
      chris00938 dorothy03601

      Posted

      I had a bit of confusion on the day of my surgery too Dorothy.  I'd been told they were going to repair the prolapses at the same time at the hysterectomy but then the surgeon who had booked me in forgot to include the repairs in the allotted time and the surgeon who was taking over from him told me she didn't know if there would be time to do it!  But she did the worst one, so I was grateful for that, even though it failed 8 months later.  But it shows how easy it is for things to get changed or missed.  But I think if you contact the secretary of your surgeon you should be able to find out exactly what was done.  In fact, they should have sent the details to your GP, so you might just be able to find out from them?  Just a thought.
    • dorothy03601
      dorothy03601 chris00938

      Posted

      Thanks Chris.  I called Medical Records, and they had the whole procedure explained, but no name of th surgery on the Surigal report itself.  I've got  a lot of investigating to get answers I'm afraid.  I do plan to,pin the doc down for answers when I see her in three weeks, or maybe before if this gets any worse.  
    • chris00938
      chris00938 dorothy03601

      Posted

      I can only wish you luck Dorothy and hope you get the answers, and then get it sorted properly.  Do keep us updated.  In the meantime it seems you have no choice but to rest and pass the time making the best of it until you go, so I'd get some books and DVD's handy, and something you enjoy eating, and try not to worry.  I know this is all stressful for you but hopefully it can be sorted out in a straightforward way before too long.
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