After 8 years of PMR I have relapsed AGAIN
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I Flared up again in 09/2017. I have never been down to zero on Prednisone dose, but I was comfortable at 5 mg for years. My doctor insisted that I tapered to zero every time I increased my dosage for relapse. I have been up and down since last September. I am currently at 7 mg, but I haven't been comfortable since I was last at 10mg. I am almost as bad off as I was in 2010 with PMR. My doctor's now refuse to give anything above 7 mg, because they my blood work does not support PMR diagnosis. I would really appreciate advice on what to. Thanks
0 likes, 51 replies
ptolemy Guest
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Guest ptolemy
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Yes, it is possible to find another doctor. I have been using civialian doctors since 2010, because in the past they gave immediate help for help with PMR. I am going back to the VA for treatment. It's a slow process at the VA, but if you can get an appointment the results have always been good for me. The problem is the long wait.
ptolemy Guest
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Guest ptolemy
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I am definitely not good at writing, or communicating . I know people can tell if they read much of what I write. I cannot respond to all responses, because it takes me to much time to type. The reason I signed back in to "Patient" is that I saw a reply from Christine. I don't remember her numbers after her name. She seemed to know a lot about Prednisone dosage and tapering. I hope I will be able to get advice from her. Thanks to everyone for your replies.
Michdonn Guest
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Hi Gene, sorry to hear of your plight. I agree with most of the rest of the forum, another Rheumy would be in order. I didn't have that option, so worked hard to educate my Rheumy with the information and knowledge in learned on the forum. It not easy most feel like Gods. I over did it myself again, piriformis in my hip, cycling! Good luck, think positive and try to smile, it helps. ??
Guest Michdonn
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The doctors I see don't want me to say anything. My symptoms and thoughts only get smirks. They refuse to treat unless blood work supports PMR.
Michdonn Guest
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is this area. I stayed positive and worked to stay PMR pain free against her advice. Good luck Gene, listen to your body and do what is right for you. Smiling.☺️
Guest Michdonn
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EileenH Guest
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On day 1 you will take a new level dose, mark it in the new dose colour - then count the number of days old dose and mark them with the old dose colour. Rinse and repeat. Cross off the day as you take the tablet
Guest EileenH
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Michdonn Guest
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EileenH Guest
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Yes - should really have added: something you can rub out/erase is probably good and don't do weeks in advance - it is too complicated when you meet an obstacle which you almost inevitably do at some point!
When I was on warfarin my GP used to fill in the first week or two's pattern whe wanted me to use - in pen. I would return the next time with the rest filled in in pencil. She couldn't understand why - until the first itme it went pear-shaped. Rubbers rule! (or for our US friends: Erasers rule! Just doesn't have the same sound though...)
PS - many years ago my British daughter, living in Germany and attending the local US base church and attending Sunday Scool requested a rubber from the teacher. Who promptly dragged her to the Supervisor. Luckily that lady had also lived in the UK and explained gently
Anhaga EileenH
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Michdonn Anhaga
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EileenH Anhaga
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