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After H Pylori

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tasha156
tasha156

Hi everyone,I have posted here before,I have been treated for h pylori,antibiotics and lansoprazole.Prior to treatment I had complete loss of appetite and loss of weight.Although by force feeding I am keeping my weight between 117 pounds and 118.I still have no appetite,most worrying is I am losing body fat,I am so skinny,weak,tired of fighting this,feel like giving up at times.I have a appt to see specialist but that is nearly two months away,I do not think I will make it that long.I was a size 14 now size 8-10.my skin is wrinkled,I am now just getting over vaginal thrush,but now have soreness around that area and itchy rear end.I just wonder if I might have a different infection caused by h pylori,or it has damaged my tummy so badly.I am small framed so it is very obvious of my fat loss,now wear big jumpers etc as people ask what is wrong with me all the time,has anyone ever experienced this? I would be so greatfull for any advice .Thank you.

3 likes, 70 replies

70 Replies

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  • donclaudio
    donclaudio tasha156

    Posted

    Hi,

    difficult to know exactly where to start...your in the forest

    and don't know your way out...many on this forum are in

    the same forest.

    The suggestons posted I deem "worthy" and point you in a good direction.

    You've had HP...we don't know how it was diagnosed and what prompted

    the diagnossis....

    You've probably have had tests....what?   and results?

    Exactly what was your hpylori therapy...? meds, mg/s etc..you developed a yeast infection most likely antibiotic caused..what meds were used to treat your "thrush"?

    I'll start at the bottom:  rear end...this itch could be from  several

    insults..my first "guess" would be fungal...there are antifungal suppositoriesantifungl that are effective without needing dr prescriptions,

    they contain small amount of the effecive antifungals,(a zole) usualy 1%.

    In the US, and Mexico the local pharmacist can direct us to the 

    best product, Give it a go..increase your intake of natural yogurt,

    plain wtihout fruits/sugar but not other milk product for now...let us know.

    If you can, start taking daily a small amount of bismuth before bedtime.

    (125mg to 250mg) 

    Water: force yourself to drink filtered water...its ph is about 7, if

    you can obtain 8 would be better.

    Nothing hot or cold should you put into your stomach

    Nothing raw

    Nothing difficult to diagest

    Plan your small meals around what your body needs not what you want.

    If your gut controls your good intellect..healing is either blocked or thwarted.

    Your intestinal flora is probably ineffective for proper absorption of

    needed nutrition...once you've followed the above for a week......can offer some 

    detailed suggestions, and I'm confident others on this forum will chip in and

    give you what helps their similar condition. 

    An alternative medical practioner could be your best bet...be very selective.

    Claudio 

    • audrey97605
      audrey97605 donclaudio

      Posted

      Claudio 

      I totally agree with your suggestions...

      If the flora and inflammation are out if whack along with stress makes it difficult to absorb healthy nutrients.. Be very selective as what your eating ...

      I would be truly interested in your further suggestions ??

      Audrey

    • tasha156
      tasha156 donclaudio

      Posted

      Thank you so much for all the information,I will certainly try it all,was very kind of you,so many suffering either with h pylori or its after effects,but hese forums are truly a lifeline,and I thank everyone for replying to my post.I pray we all come out of our problems
    • lomon1810
      lomon1810 tasha156

      Posted

      Tasha I just wanted to find out if you got any better? How long did it take? I am going through the same now...
    • tasha156
      tasha156 lomon1810

      Posted

      I am now 3 years from h pylori diagnosis,recent endescope shows all is fine in stomach.What has been ignored by doctors is with and after h pylori I developed 2 weeks of explosive bowel movements and to this day I experience soft greasy bowel movements,I believe there is my answer,possible lactose intolerence,polyps,some inflammatry thing going on,so I think a colonscopy might be needed,hair is not actually falling out it is breaking,I have a full head of bristles,so back to doctor to insist they investigate why i have what appears to be greasy bowel movements,although I think it is clear mucus,three years suffering because of failed tests
    • vas0131
      vas0131 donclaudio

      Posted

      Hello

      I replayed Tasha

      with all my symptoms I shared as a info.

      would you be so kind reading them and reply me please...

      Thanks you

  • donclaudio
    donclaudio tasha156

    Posted

    Hi Tash,

    The 3 anti inflammatories that have worked for some are:

    Sub lingual B12

    Bromolain/Quercetain 

    Nattokinase

    START A DAILY DIARY

    HP, inflammation, antibiotics and PPI's.

    If, you've completed the tripple therapy for the first time

    and meds were: Amoxicillin (mg?_____), Clarithomycin (mg?_____) and PPI (20mg x 2 or ?_____)

    for a period of 7 to 10 days...plus a continuation of the ppi mg?______ for how long?_______

    Any other conditons?

     disorders?  diagnosed or not?

    Because Gastritis has many "probable and possible" causes, if you know what may have caused it would be helpful.

    Audrey  came back from Cuba .. .......most likely "food toxin" but a few others as

    well.

    A tip:  good bacteria vs bad....this is a war in all living things....the biggest army wins.

    Probiotics are "good bacteria"...how to get them thru the stomach without being destroyed by stomach acids? Regardless of the muber advertised like billions and billinons...the same question applies...how?

    Long term use of any PPI is "not good" over 50% of patients lose magnesium, iron, and B 12

    High powered Antibiotics kill both good and bad bacteria,

    kill too many good guys...fungals have been sitting back

    waiiting for some help, and bingo...now they are "in charge".

    Now another med must be introduced into your system to fight

    the yeasts...

    Summary....supplement with Magnesium...sublingual B12 (several times daily)

    ....not iron...iron rich foods only...If you can get zinc gluconate...25mg daily with meal

    Many with digestive troubles, plus antibiotics become deficient in Vit D....D plus K2

    only (K2 is the copper that directs Calcium to the bone...and not elsewhere.)

    Again about food....google GAP diet....while its a very very difficult process (not really a diet) but if one is devoted to gettng back to a normal person///may be good for some...not for all. 

     bone soup...this is good stuff provided the bone has NOT BEEN GROUND..very

    important due to BMAA. We use a stainless pressure cooker to make bone soup...use the bones

    over several times extracting minerals..

    Balance balance and more balance...protein/carbs/oils.....turkey/chicken breast (preverablly ground)

    cooked vegetables puree first week....oils olive or avocado...nothing fried...poach everything first week

    or so.

    Audrey also mentioned "slippery elm"...this is good stuff pre meal. 

    Sip somthing like pomegranate juice during

    the meal..no more than 2oz blended 5050 filtered water...so 4oz total...one meal only...preferably 2nd or 3rd...not forth.

    No food 3 to 4 hours pre bedtime....slighly elevated head and shoulders

    DGL....get the chewables....when your stomach feels a tad "uncomoftable".....take one. (it has anti HP properties but is used mostly for soothing...

    For tea: chamomile is good stuff...better is "marshmallo" provided it is not imported from Inda nor China...

    a good organic mix can be used a 2nd time for a more mild taste. No mixing....just water, steep...cool to room temp or 37/38C max. Maybe althernate between the two teas?

    For those of you who have GERD....the "link" abstract would be extremely important to you and your GP, GI, or ENT

    ....take the time to read it...the ref dr J Kaufman is a New Yorker MD/ENT with all kinds of credentials..who has recently suggested a homeremedy while waiting for a better therapy.

    Claudio

    • audrey97605
      audrey97605 donclaudio

      Posted

      Claudio..

      Do you do the GAPS diet ?? Beneficial ...

      I just started making bone broth how often do you drink it daily ? With food ? Empty stomach ??

      Did your gastritis heal ? This is what I am still trying to do ... I have a holistic nutrition coming to see me Saturday ... Hope she gives me clear instructions for diet!!

    • tasha156
      tasha156 donclaudio

      Posted

      Thank you for all the information you and others have taken the time to write,I will be trying it all,am so desperate.Hopefully everyone here might benefit from every one,s input.I was on first week Metrondonzale/Clarythromicin.Lansoprazole,the first week,second week was one of the Amoxicillan plus clarythromicin/lansoprazole.on the second week.I have undagnosed Fibromylgia ,but my doctor now thinks I might have a autoimmune disorder.Spoke to another doctor yesterday and was told unless I fall ill /or signs of organ failure,I have to wait to see the specialist.Thank you again.
    • donclaudio
      donclaudio audrey97605

      Posted

      My wife is the one with Gastritis. Gaps...we do the modified..meaning we do pretty much "what" but not the lengthy process. Bones...big soup bones we purchase here in SF at asian markets because of freshness. There are good and not so good..and actually bad bones (rare)...soak in room temp water ..rinse often..when water becomes clear...takes hours...then we cook..2 ways...pressure cooker (stainless not aluminum) or in a slow non metal cooker for 2 plus hours.any fats or akkapucky on top of the liquid is removed.  We now have bone soup...can freeze in cubes to use when poaching fish and infrequent meats. We can use it as a soup, adding vegetables etc. We then sometimes take the bones and pressure cook...keep the liquid for soups as well but do not freeze in cubes. Gastritis....wife was diagnosed with Atrophic Gastritis..bad stuff..we managed to lower it to "mild gastritis"..(most recent endoscopy), Her Gastritis was sensed even with a light touch to the stomach area, and it was distended or tight light a drum head...not now...the sensation of some "inflammation" is mild and centered...suspect continuing small inflammation at the duodenum.

      There is no GERD..bloating, pains, no big discomforts immediately after nor 2 to 3 hours post a meal. She is a "non compliant" patient...and when she reverts to "her kind of food" as she puts it...she has "flare ups" that can last a day or two but then it resolves with proper food....she tries DGL during these flareups and it helps...nothing else seems to help her...only proper food. She does mild exercise post meals with deep breathing (compliant).since we differ, what works for her may not work for others and vv. The basics yet make good sense...stomach is inflammed...don't insult it with anything...so small meals..easy digestive foods..especially in the beginning...and one can always "re boot". Wife was 124lbs...dropped to 96lbs...and is now at 104lbs....we had her at 114lbs but she had to have "her food" not once but twice...and since then its been a big struggle and slow improvements....if she can remain compliant, she will recover 100%...I would guess she is presently somewhere between 70 and 100% at this time.....and hope she can refrain from allowing her tummy to dictate what's best vs her intellect. She eats 4 small meals..and a snack. I will be increasing amount of

      1 of her meals once she reaches 106 lbs would be her main meal which is her 2nd meal of the day. I still do not use garlic, onion, nor ginger...the only raw is papaya but at 106lbs will suggest fresh apple (small) amount.she does sip 50 50 pomegranate juice/filtered water during her 2nd meal....we did use digestive enzymes initially but have weened replacing with pomegranate juice...seems to work ..for her.

      A good alternative medical practioner can be of excellent help...and I'm hoping the one you've chosen can get you to normal...this isn't a fast healing process...takes a lot of time..even when one feels great for one month...may not be enough...I haven't a firm understanding of When?

      Claudio

    • audrey97605
      audrey97605 donclaudio

      Posted

      Thanks Claudio for all the great advice ..

      I was diagnosed with mild gastritis after last endoscopy .. Damages caused from hpylori infection ... I have been frustrated with trying to heal and given so much misguided information!! 

      I think I need to try to keep it simple ... I have never tries the DGL licorice and going to give that a try ...  And go back to simple eating ... Steamed veggies , soups and definetly going to make bone broth ...I was taking way to many supplements making my stomach so painful !! Totally wipes me out .. No energy!

      Your right it's a slow healing process ... 

      Hope she stays on track to healing ... Many thanks !!

    • donclaudio
      donclaudio audrey97605

      Posted

      I like your thoughts...should help....think to have missed "glutamine"...our bodies produce a heck of lot of it...so we all should be OK but my diary while not exactly specific seems she made good improvements while taking 2g x 3 daily. I chose to use this after reading some chemo cases where oncologists were using high dose iv Glutamine to "temper the nasty stomach side  effects of their chemo".. Er began cycles...1 week on...2 weeks off....thus the difficulty of knowing if it was "it" or merely "time" and other stuff.

      Keep us posted...am confident your on the right track. Claudio

    • donclaudio
      donclaudio audrey97605

      Posted

      Hi Audrey,

      It's been  a tad over a week..I am hoping you've some good improvements...and is the DGL helping? 

      our best...Claudio

       

    • audrey97605
      audrey97605 donclaudio

      Posted

      Hi Claudio,

      Nice of you to check on me . YES- it does make a big difference .. I use it 20 minutes before I eat .. The other biggest difference is I have purée all meals and everything has to be warmed .. Nothing cold...

      Many thanks ,

      Audrey

    • donclaudio
      donclaudio audrey97605

      Posted

      so comforting to hear something has made a big difference. Puree does help with digestion..(less work for the stomach) and faster or more efficient empyting into the small intestine.

      20 minutes pre meals....Hope others "pay attention" to this and to your puree plus "not too hot...not too cold....excellent IMO

      I looked back over my notes from some 10 years ago when had  several discussions with a 95 year old Chinese Traditional Medicine dr.one of his requirements was Not too hot..not too cold..nothing raw for a period of time.(I think? because each patient responded differently and he adjusted foods based on observations)...his cure time was different for nearly all of his patients...some fast and some very slow...like from 6 months to 18 months...our continued best to you...Claudio

    • donclaudio
      donclaudio tasha156

      Posted

      Hi Tasha,

      have you been able to see the "specialist"? regardless hope you are makeing some improvements....claudio

    • tasha156
      tasha156 donclaudio

      Posted

      Thank you for your kindly interest.Unfortunately my appointment is not till 29/10/14.Since last speaking to you I have gone down hill fast health wise.My legs barely hold me up,suffering severe trembling all over,cramps in my tummy,very loose bowel movements with urgency,hair falling out,nails breaking,I barely can function.My doctor said nothing he can do as he has to adhere to government guide lines,although he believes I have malabsorption problems,it could be I still have h pylori or it damaged the lining in my stomach,or it triggered something of such as ibs,celiac,food allergy,although I have been eliminating lactose but nothing changed,now I will try gluten,my tummy swells enormously as soon as I eat,to the point of being painful,getting tingling in my legs and hands,again that could be thyroid,all such a guessing game,will not truly know until a barrage of tests are done,that could take some time in itself.now getting so depressed fighting with what ever is going on with me,also my eyes keep going blurry.So much going on and increasingly new symptoms by the day.I am just worried I might get so ill from lack of nutrition that it could affect my other organs.Five weeks is a long time to wait with this,find it quite scary at times.But others are far worse of than myself,so I count myself very fortunate.Thank you for your interest and all who have replied to me.
    • donclaudio
      donclaudio tasha156

      Posted

      wow so very very sorry Tasha,

      I can only suggest what worked for us..and I would hope you could start immediately while waiting for appointment.

      1. DGL 15 minutes before any puree meal (you can alternate between

          DGL and Slippery Elm.whichever makes you feel better...I assume the 

          same..both do the same within your stomach (linning) but have 

          different pathwas.

      2. Between meals sip 9+ PH water

      3. DO not eat anything within 4 hours of bed time (changed from 3) and 

          as always elevate your head and shoulders...and SLEEP on your Left

          side.

      4. Take 500 mg of Milk Thistle pre bed time..1 hour before 250mg of

          Bismuth.

      Note: While Bismuth by itself has not shown but 60 to 70% efficacy against HP...it might reduce the volume....keeping an alkaline stomach between meals will also help.

      We cooked everything..put it thru a blender..80% alkaline foods..vegetables..leafy greens (spinach, chard, dandylion greens, limited broccoli and brussel sprouts, asparagus big time, carrots,

      minced gobo (asian market) no mushrooms, some parsley, used

      both soupbone broth and chicken breast..ocassional turkey breast.

      No spices...no sea salt but used soy or iodized salt.

      If you suspect thyroid Hypo vs hypo...at the asian market get seaweed from either Korea or Japan ONLY...if not..health food store for KELP,

      double the suggested dosage...Take during your lunch meal.

      Get back in touch once youve started so we will have a bench mark and hopefully others can help based on your initial results..Keeping my hopes up for you...Claudio

       

    • tasha156
      tasha156 donclaudio

      Posted

      Thank you so much,will ask my neighbour if she would get me these things,she is very kind to me.Will be nice if one day I can do my own shopping,in the meantime I cannot express how greatful I am to her.I like to think that somehow with all our different symptoms that we have,we will perhaps be able to help others,so they know there are kind caring people that will share their story with others,this forum provides me with hope and not feeling alone with this nasty bug.I have been taking probiotics,lots of yoghurt,and many of the other things you mentioned a little while back,we can but try anything and everything,To everyone thank you so much and take care,I do pop in frequently to see how you all are getting on,please god you are all on your way to getting better
    • lomon1810
      lomon1810 donclaudio

      Posted

      Dear Claudio, thanks for posting this here. I recently did triple therapy and after about a month the fatigue came back. As well as nausea and burning inside the stomach. I saw the gp last week and he gave me tablets for my uric acid which was too high. Other blood tests normal. Going to a GI doc tomorrow to arrange gastroscopy. And probably endoscopy as well because I have a recurring pain in my upper Colon (right side top). The ultrasound for gallbladder and liver was clear. Abdominal CT scan was clear. Blood tests for pancreas normal. I keep on feeling nausea and cramps. Bloated and tired. Weakness in my legs. I am taking magnesium and mastic. Lots of water and fresh fruit. Very good probiotic. How long will this ordeal go on? What can I use to curb the nausea and stomach burning?
    • wiz12147
      wiz12147 tasha156

      Posted

      Fibromyalgia in many cases is undiagnosed food allergies. Remove food groups for 4 weeks and reintroduce. I have food allergy list almost as long as my arm! Lol.

      My food allergies & Fibro got worse everytime I was given a injection with egg - yes the yearly flu shot they still insist I have because 'it's better as you are asthmatic' but sends why whole system haywire esp digestive system & makes asthma worse.

      Fibro & asthma much more stable, living on a diet of beef (unprocessed), fries, salad and red berries are the only things that stop Digestive flairs, gas (pain that comes with it) and Fibro - is not just physical it effects your brain "fibro fog".

      Autoimmune can and does include food allergies, I eat the unhealthiest diet I ever have but it works!

      I know my 2 morning coffees irritate my digestive system but they help my asthma, drink bottled mineral water the rest of the day.

      My local hospital have been hopeless. My GP/Dr listens to me though more than the hospital, because my experience of my body is better. I used to be bedridden most of the time sick, now I'm getting somewhere and lost stones of weight in two + years.

      Remove food groups and reintroduce is the best advice - my last ones were soya & poultry and I ended up sent to A&E by GP after 5 days in horrendous pain where even water hurt my digestive system, my intestines were in a ultrasonic spasm for 5 days on reintroducing them food groups.

      Recently I discovered Palm Oil in my dairy free spread was making my digestive system go to hell - but I didn't notice as I had never withdrawn and reintroduced .

      Now my limited unhealthy diet (of my life) has me getting better, I am walking everyday versus 18 hours sleep and rest a day.

      A text book teaches no Dr about your individual DNA and responses to food, skin prick or blood tests may not either...it is up to the individual to do a food removal/introduction.

      I also take D3 and Calcium - many ingredients in supplements can cause digestive problems too! Assuming it is doing good is nonsense - research the ingredients, if you can't handle normal food groups then the additional ingredients in supplements sure are not going to help.

      Trialling Thisle Milk tablets just now which I think is helping, raspberries and strawberries daily is definitely helping.

      Trust yourself over any medical expert, food should nourish you, if it is not doing that withdraw, I can't even have one glass of wine or beer now sad but I can walk a mile daily (even if it does exhaust me).

      Fibro is horrific.

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