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After H Pylori

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tasha156
tasha156

Hi everyone,I have posted here before,I have been treated for h pylori,antibiotics and lansoprazole.Prior to treatment I had complete loss of appetite and loss of weight.Although by force feeding I am keeping my weight between 117 pounds and 118.I still have no appetite,most worrying is I am losing body fat,I am so skinny,weak,tired of fighting this,feel like giving up at times.I have a appt to see specialist but that is nearly two months away,I do not think I will make it that long.I was a size 14 now size 8-10.my skin is wrinkled,I am now just getting over vaginal thrush,but now have soreness around that area and itchy rear end.I just wonder if I might have a different infection caused by h pylori,or it has damaged my tummy so badly.I am small framed so it is very obvious of my fat loss,now wear big jumpers etc as people ask what is wrong with me all the time,has anyone ever experienced this? I would be so greatfull for any advice .Thank you.

3 likes, 70 replies

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  • donclaudio
    donclaudio tasha156

    Posted

    JPT in the hpylori forum thread is "on spot"...here is JPT..just passing thru's post to a member:

    JPT • 7 months agoHi Tickled or should I say tortured?

    You have been through the mill.

    just sent you a private mail with my email address.

    will send my notes as soon as you reply with yours.

    The HH you have if it is not too big will be fixed with sutures during any surgery you choose.

    I think your reference to mucus is the natural body responsew to the attack from all refluxate products.

    Acid,Pepsin, Bile salts , food, etc.

    The oesophagus can cope with some insult as it produces bicarbonate to deal with some relux.

    PS. Everyone refluxes several times a day. We just do it more often and to a higher level.

    Having low saliva production is a good reason for the insult to be much worse in your case.

    The overview I have for you is that the solution is multi -faceted.

    No one thing will fix it completely.

    Its certainly worth trying all the beneficial add-ons before you jump to surgery

    and even then its worth changing lots of lifestyle things at the same time.

    1 Try to eat your last meal of the day at least 3 hours before retiring to bed.

    2 Try eating smaller portions at regular intervals rather fewer larger meals.

    3 Eat slowly.

    4 Wear loose-fitting clothes. A tight belt will trigger reflux

    5 Avoid foods and drinks that are known to trigger heartburn symptoms, these include:

    onions, peppermint, chocolate, caffeinated drinks, citrus fruits and juices, tomatoes and

    high-fat foods.

    6 Keep a symptom diary and record when your symptoms appear and what specific

    meals and activities this relates to.

    7 Maintain a healthy weight. Keep your BMI in the normal range.

    8 Stop smoking.

    9 Learn how to breath using the diaphragm it tones the LES

    10 Avoid alcohol.

    11 Take regular gentle exercise such as walking. Avoid lifting weights.

    12 Exercise can trigger Reflux symptoms if this is a problem wait at least two hours after

    a meal before exercising.

    13 Drink plenty of water.

    14 Use PH 8.0+ alkaline water to denature Pepsin in the mouth, airways and oesophagus. Take a peptest to see what levels you are refluxing and retest to see how the levels have come down after these changes.

    15 Raise the head of your bed so that your head and chest are higher than your feet.

    16 Sleep on your left side, because of the shape of the stomach reflux happens less often in this position.

    17 Increase the speed of transition through the stomach with something like Fybogel'

    18 The pyloric sphincter at the stomach exit needs magnesium and acid to make it work. PPI stops the absorption of M and reduces acid and so is counter productive. Get off PPI and take Magnesium supplements.

    19 Use deglycyrrhizinated licorice, or DGL. But be aware too much can cause ankle swelling and hypertention.

    20 Use Probiotics to help positve gut flora aid digestion. Antibiotics kill all flora not just Hpylori.

    Best Regards JPT

    justpassingthrough

  • tasha156
    tasha156

    Posted

    Sorry I am unsure of how to pit a update on my problems,so replied to mysel! I am still losing body mass but weight for some uknown reason staying stable at eight and a half stone. I have had a strange appetite,I never feel hungry but when I eat I find at times I enjoy it.I have seen the specialist who ordered a in depth blood test,which I have had! Also on the 10/11/14 a CT Scan for cancer in ovaries/lung cancer. I never thought I would be worrying about cancer again after the stomach cancer scare.!  Still getting bloating after eating.I am now bordering on malnutrition.Been so long like this am getting scared my organs might be affected,almost all my hair is one.What I do not understand is my next appointment is on xmas eve,all that time they will know the results,if it was cancer would they not contact me earlier? Another nearly two months of my body wasting.At the age of 66 I would have thought it very dangerous to be this way!  Sorry but I am truly scared now,being on my own,wondering every day if I will get through.
  • rudy63161
    rudy63161 tasha156

    Posted

    Hi Tasha,

    Just experienced the same symptoms, however, it was not the H-Pylori that was at work; it was AL AMYLOIDOSIS.  AL is a autoimmune disease from your bone marrow.  The B2 plasma cells produce proteins that misfold, then aggregate, then deposit these agreggates throughout your organs.  I received a stem cell transplant, and now I'm completely well again.  

    Recommendation:

    1) Have your doctor order an "Electro Phoresis Blood test" to see if your 

    "Lambda:Kappa ratios are within normal parameters:

    2) A "Belly Flap Fat Biopsy" can be sent to the Mayo Clinic to determine the presence of Amyloids.  They will stain the slides with "Congo Red Dye" which will show up as Apple Green Birefringence under a polarized light during a microscope observation.

    3) A 24 Hour urine test for the presence of proteins.

    AT LEAST RULE IT OUT.  There are 5 different kinds of AMYLOIDOSIS, one type, Secondary AMYLOIDOSIS, can develop after an infection such as H-Pylori. DONT WASTE TIME, IT WILL TAKE YOUR LIFE IF UNTREATED WITHIN 3-5 years.

    Rudy C

     

  • Razielmcallen
    Razielmcallen tasha156

    Posted

    Greetins from texas

    I have no clue how i got hoylori but its causing some crazy things to my body

    I havent lost weight

    I havent lost my appetite

    All my test for anything else came back positive

    But

    I feel like i cant breathe at times

    Trouble swalloing

    Chest pain

    My left side and feet fall asleep

    My BP shoots way up from time to time

    Stiff neck

    I cant be out in the sun for to long cause it makes me feel like sh*t like 1-2 hrs later

    I have acute joint pains

    Im tired all the time

    Abdominal midsection pains

    Back pains

    And my throat feels like its fighting an infection

    • DaniB1989
      DaniB1989 Razielmcallen

      Posted

      Hello, most of the symptoms you explained sound like you may have GERD as well. It's very common with H.Pylori, as is what I'm dealing with atm. My main concern is mild abdominal pains and fatigue, my endoscopy came back clear with no signs of pylori anymore. I just don't know if maybe my stomach is still in the healing process and that causes my symptoms or the acid suppressing meds (zantac)
    • nicoliseal93654
      nicoliseal93654 Razielmcallen

      Posted

      Razielmcallen - I know it's been a while since your post but my symptoms are exactly like yours plus a few more.  I have been researching constantly.  Had H Pylori ended up with thrush etc etc.  taking candida powder plus the diet.  Now suspected autoimmune due to ulcers....  just wondering if you found a resolution.  Thanks!  

  • u77819
    u77819 tasha156

    Posted

    Hi,

    Contact to A1 Herbal Surrey.

    1-604-445-4700

    For H-Pylori

  • Icycanadian
    Icycanadian tasha156

    Posted

    Hello I read this thread and wanted to check in a different see how you were doing. I hope all is well these days 😊

    • tasha156
      tasha156 Icycanadian

      Posted

      Waiting to be honest for one of my organs to fail,no hair left,my bones are protruding,veins showing through my skin same old tests over and over again,they will not move on from my stomach,even though a recent endescope showed nothing wrong,so tired now have given up
    • Randomguy153
      Randomguy153 tasha156

      Posted

      They deleted my comment. But i got over my h pylori. I had put what I used. It was 2 rounds of anti biotics from the doctor. But in between I read online and used coconut oil and mastic gum.

      I'm so sorry to hear tht Tasha. But i dont think h pylori do that. I feel it's something else.

    • tasha156
      tasha156 Randomguy153

      Posted

      Your correct it is something else,my recent endescope was clear of h pylori.They will not look anywhere else,put it down continually to stress,all in the mind,anxiety rubbish.Only a matter of time before I end up in hospital.We all know our own bodies.My weight stays normal now,but lost most of my subcutaneous fat,having nother thyroid test soon,they always come back normal, Unfortunately NHS only do what I call a surface test,do not check T3/T4,only way I can get these checked is pay ,it could be my gallbladder full of stones,but scans show all is fine,yet it is still possible bile is not getting through,the fact that my hair is gone,permanent distended stomach,teeth falling out,cannot breathe through my nose,no sense of taste/smell,going deaf,protruding bones,loose bowel movements,their diagnosis is age!!! 
    • Randomguy153
      Randomguy153 tasha156

      Posted

      I think a blood, urine tests can tell all about your vital organs.

      a full CT scan could look for anything else.

      Like they missed my kidney stone with the ultrasound and I switched doctors and he did a CT and tht showed it. Then I redid an ultrasound by a next place and they saw it.

      So it all depends on the personnel .

      If u can afford it, get some tests done elsewhere..blood work and urine micro analysis

    • inomgod
      inomgod tasha156

      Posted

      If you had H pylori, You are probable deficient in important minerals and vitamins, Please dont buy anxiety/depression theory, That may be there because we are sick, not otherwise. After one year going forth and backward, I found out my iron stores were exausted, HP eats away iron, my blood iron and Hb were normal, but decreasng ferritin level showed it, Besides iron, look for Magensium, folate, Vota, folate, If possible all vitamins,  Zinc, Moylbdenum , Vit D, Try to match your symptoms, you will get he answers. Good luck. And always rember there are lots of people around you, you are not alone.

       

  • mek88163
    mek88163 tasha156

    Posted

    hi Tasha . I got the same problem after treatment I lose 10 pound weight. I still got burn sensation . i losse complete appetite
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