Age

49 years old. It took about 8 weeks for a diagnosis. It was a dermatologist that figured it out.

52 and a total of 12 showing different people the 12th person at the GUM clinic knew immediately. Took 8 months to be diagnosed and even paying private I didnt get diagnosed correctly.

Around 13, diagnosed at 22. I am now 54 and still hanging in there but it has been a roller coaster.

I was 42 and diagnosed by a GP .... I started to get symptoms after coming off the pill when I was around 36. Another GP misdiagnosed me and just gave me aqueous cream before the final diagnosis which made things worse.I was referred to a gynaecologist after issues with the steroid creams but now have no monitoring at all except my own.

I've had it all my life, diagnosis wasnt until I was 18 though.

I think I had it starting when I was 48 but wasn't diagnosed until 58 when damage was apparent.

I WAS 44 AND DIAGNOSED PRETTY QUICKLY.

Diagnosed at 58, shortly after symptoms began. I am now 59. It's been a year and not under control yet.

hi, i was diagnosed in my 60s and am 73 now. it has only been only in the past 3 years that i have become quite damaged down under.

hi, i was 22 when i was diagnosed. im 25 now, still haven't had any major issues or symptoms yet.

i was diagnosed after my pap smear check up and my doc found the skin down there to be a bit lighter than usual.

biopsy confirmed it was LS

I have had it since I was at least 17, with long periods of remission. I was diagnosed at 29.

My daughter had symptoms at age 4 and was diagnosed at age 5.

I had mild night time itchiness at age 40 and a sudden onset of symptoms (my first flare) at age 42.

Hi, I was 51 although looking back I now see that I had symptoms of LS ten years earlier but I just didn't connect it to LS at the time as I had no idea LS existed even though I was diagnosed with Oral Lichen planus years earlier, no one mentioned that there was a 'sister' illness called Lichen Sclerosus.

I just thought I would mention here that I am starting a Transpersonal Crystal Healing course which is going to keep me very busy, but obviously if I pick up any nuggets of information that can help any of us with our LS I will let you all know. I recently had a spiritual awakening through meditation and I am now going through the Kundalini ascension/awakening process which I believe is going to enable me to heal many people.

I am excited, and so I wont be posting on here quite as much as I used to do but I will stay in contact for sure. x

70 and 71