All 6 doctors say everything looks ok!!

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I've had inner ear infections from time to time all my life (I'm 70).  In April 2013 I had my left knee replaced.  I was fine till the young boy who pushed my bed from recovery to my room.  He thought it was a race.  I was dizzy and throwing up by the time I got to my room.  This presisted for 5 months. Every once in awhile I'll get the symptoms when sitting or laying down but mostly if I get up and move around for more then 5 or 10 mins. I have to sit and wait for it to pass.  Just thought it was inner ear.  Well, it started again about 4 mos ago.  Went to GP who treated for inner ear.  Didn't help at all.  He sent me to an ENT.  He did an MRI of my brain.  Nothing.  He sent me to a neurologist. He said there was a shadow on the MRI so did 2 more.  Finally said there was a cyst on my spine.  Sent me to a Neurological Surgeon. (Oh and my GP sent me for an endoscopy because she thinks it;s my stomach...no way.  Found nothing). The surgeon looked at all the MRI's, Cat Scan.  She said the cyst was small and not a problem.  She sent me to another ENT who does work with Vestibular issues.  They did the test for that.  Called me today and said....inner ear is normal.  No idea!  I can't walk through my house without getting nauseous and dizzy.  What do I do now? I own a 24/7/365 Answering Service...for 37 yrs.  If no one can tell me anything I'm just going to assume that God has a reason for this and wait for the answer.  Any ideas?

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  • Posted

    They say dizziness comes from ear brain or it could even be your eyes......What teets did they do for the ear?????
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    • Posted

      The woman who did the test said you have 3 body system to keep you balanced...eyes, ears and your legs.  First they did a hearing test which was fine.  Then a 1 1/2 hrs test.  They put goggles on me and the room was very low light.  There was a bar on the wall and red lights ran across or vertical and I had to follow them with my eyes.  Another was laying me back in the chair and bringing me up quickly.  Yes it made me a little dizzy but then, I'm 70 yrs old *L*.  I laid there and the computer was working and she asked me questions. 

      She said you aren't scored on them it's just a distraction so I think it's to keep your brain active so the computer and measure stuff.  Things like that.  That was Friday.  This morning the nurse called said the doctor had watched the test and everything in my inner ear and brain are fine.  Wanted to send me to a Neurologist and I told them she sent me to him.  So everyone says nothing is wrong with my ears, eyes but I still can't move around for more then 5 to 10 mins without getting deathly sick and dizzy.  If I don't sit or lay down I will begin to heave and throw up.  It's hard to get anything done.  Thanks for asking.  Have you had this?

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    • Posted

      OMG i had MRI MRA with and  without contrast balance test caloric test gaze test rotary chair  2 ent drs...one was an idiot......lol  one neurologist who refered me over to a specialist for headaches.....according to drs I have vestibular migraines....acoording to me they have no idea whats going on...this dr I am seeing now I like alot very thorough...first she said oh its this  then she said oh its this and now she thinks its something else....but we are going to get to the bottom of this...meanwhile she doesnt accept my insurance   The Mra i had of front and back of neck was fine  she was the second dr that looked at it....now she is saying one artery is wide opened and the other one is opened but its narrow...but it does fall into normal range    sending me for more MRI and MRA  didnt even call today   I got so scared whwn she said this   dont smoke drink cholestral good.....blood pressure basically pre hypertension....can you guess why?????   On a very low dose.........I heard of something called vertical heterophia... mimic vestibular disorders...oh vestibular rehab 3 months..........couldnt drive 5 months........
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    • Posted

      never threw up  but God the vertigo was so bad  last year dec 23 in ER.......and I had xmas dinner to do....Thought I would be good this year....ok better but this is horrible horrible.....only people going through this understands....BY the way  70 years young.........lol
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    • Posted

      Here's the thing.  The dizziness is only a little for me.  But every doctor I went to was excited about testing that issue.  Till finally I got mad and told one that I didn't give a fig about that I wanted something to stop the damn nausea!  But nothing works for it.  I will NOT stop till I get an answer especially after reading that More Vertigo Potential post.  That's scary.  Keep me updated on you and I will on me.  Thanks so much. It's good to talk to someone who understands.  My son went to all dr appts with me because he knew I wouldn't remember all that doctor speak *L*.  But he told the doc....you don't understand my Mom is a pusher.  She will push herself to exhaustion to finish something so she's throwing up a lot.  But God showed me I MUST slow down.  It's not easy though *L*. I'll be praying for you Sweetie!
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    • Posted

      I just Googled that vertical heterophia...sounds weird *L*.  But then my best friend says that in the dictionary next to the word weird is my picture *L*.  I've lived my life with the idea that if it can't happen, it will happen to me *L*.  don't give up Sweetie.  We will beat this....if it's God's will and I think it is.

       

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    • Posted

      thank you so much....most encouraging words I have heard so far....Glad someone is going with you........This whole situation is weird....ok keep posting.........Alot of people are suffering with this....I never realized how many people this is affecting..........I just happened to go on and now I talk to more people than ever.....Its a good thing.........
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    • Posted

      Read about how eyes play a role in your balance.  Although DIZZINESS can result from new glasses/contacts, and they are part of the system that tells your brain information, eye problems don't "normally" play a HUGE role in causing actual VERTIGO.  Not sure if you're getting dizziness or spinning (vertigo).  Trust me, those are two different things!
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    • Posted

      remember Jerry70, that more vertigo potential causes is for VERTIGO, not dizziness.  Vertigo is spinning that doesn't cease for up to several days.  Any movement causes inability to do anything but lay in bed, since you can't tell where in the world you are!  Sounds like something that can be manageable and less severe.  Hope you get better!
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    • Posted

      hi Genine....I heard of something called vertical heterophia that can gice you the same symptoms as vestibular issues...Do you know anything about it...Any information is helpful
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    • Posted

      I looked in an encyclopedia and it said:  Heterophoria is a type of eye condition in which the directions that the eyes are pointing at rest position, when not performing binocular fusion, are not consistent with each other. It is also known as 'latent squint' because tendency of the eyes to deviate is kept latent by fusion.

      Not sure what that means exactly but you can Google it.

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    • Posted

      Wow you still have enyclopedias??????   Coolcheesygrin basically the eyes are not in alignment with each other and you cant see it with the naked eye if it is off by a little.........You are so lucky that your daughter in law is a nurse.....she could advise you
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    • Posted

      *L* No, I don't have an encylo0pedia, I have Wikipedia *L*.  Yes, I am a very lucky woman.  I have an amazing son who "takes  care of me".  I don't know what he thinks I did before he was old enough to do it *L*.  My d-in-l is a sweetheart!  She has a servants heart for taking care of the elderly.  She REALLY helped me when I cared for my Mother the last 7 yrs of her life.  I'll let you know when I get more info. I'm a demon when I don't feel good so I will be doing whatever I can. *L*
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    • Posted

      Genine, hello. I have a quick question. My ENT dr. said that true dizziness = vertigo = room-spinning. I know this is a confusing term but I am pretty sure that off-balance is a separate thing, which is often what people mean when they say the are "dizzy". I have both, so it doesn't really matter to me - lol. And then there is light-headedness which is another word for feeling like you are going to faint. But I am pretty sure that vertigo is the term for true dizziness.
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