1. Community
  2. Ears, nose, throat and mouth
  3. Vertigo and Dizziness

All 6 doctors say everything looks ok!!

Posted , 7 users are following.

jerry70
jerry70

I've had inner ear infections from time to time all my life (I'm 70).  In April 2013 I had my left knee replaced.  I was fine till the young boy who pushed my bed from recovery to my room.  He thought it was a race.  I was dizzy and throwing up by the time I got to my room.  This presisted for 5 months. Every once in awhile I'll get the symptoms when sitting or laying down but mostly if I get up and move around for more then 5 or 10 mins. I have to sit and wait for it to pass.  Just thought it was inner ear.  Well, it started again about 4 mos ago.  Went to GP who treated for inner ear.  Didn't help at all.  He sent me to an ENT.  He did an MRI of my brain.  Nothing.  He sent me to a neurologist. He said there was a shadow on the MRI so did 2 more.  Finally said there was a cyst on my spine.  Sent me to a Neurological Surgeon. (Oh and my GP sent me for an endoscopy because she thinks it;s my stomach...no way.  Found nothing). The surgeon looked at all the MRI's, Cat Scan.  She said the cyst was small and not a problem.  She sent me to another ENT who does work with Vestibular issues.  They did the test for that.  Called me today and said....inner ear is normal.  No idea!  I can't walk through my house without getting nauseous and dizzy.  What do I do now? I own a 24/7/365 Answering Service...for 37 yrs.  If no one can tell me anything I'm just going to assume that God has a reason for this and wait for the answer.  Any ideas?

1 like, 27 replies

27 Replies

Prev
  • Dizzy_P
    Dizzy_P jerry70

    Posted

    Hello Jerry,

    I have a lifetime of problems with the spine, inner ear, migraine, balance etc. I am NOT A DOCTOR, nor do I profess to know what is wrong with you, as I have never met you, nor do I know your medical history. What I would say is that all the usual things like BPPV, mini stroke after surgery should have been ruled out with your further tests at Neuro and ENT.

    I would, therefore, be interested to know if you perhaps had an epidural for your surgery and also where the cyst is located. Rather than have you reply and then me write back - if these all add up, so to speak, I might suggest that the cyst, though small, could be something called a TARLOV CYST. If it is, it can be caused by epidural injection, or a previous one, it can make you nauseous, dizzy, off balance, and also cause headaches - spinal headaches (migraine). Of course, the cysts can form without epidural and all along the spine at any level, but as you mentioned surgery.

    As I have already said, I am NOT A DOCTOR, and this is a shot in the dark, from your brief original summary. But, I had to reply to you - all the very best. I hope it all works out for the best.

  • marci1987
    marci1987 jerry70

    Posted

    Sounds pretty aweful😦. Have you been tested for carotid artery? Heart is o.k? Like one person said the location of the cyst?

    It is so frustrating when you are faced with health issues that can not be answered. Keep trying. .it can't be just nothing? I wish you the best in finding the issue.

  • marci1987
    marci1987 jerry70

    Posted

    Sounds pretty aweful😦. Have you been tested for carotid artery? Heart is o.k? Like one person said the location of the cyst?

    It is so frustrating when you are faced with health issues that can not be answered. Keep trying. .it can't be just nothing? I wish you the best in finding the issue.

    • jerry70
      jerry70 marci1987

      Posted

      No new meds that they have given me except protonic and this started months before that.  The only meds I take are B-12 shot once a month and thyroid that I've taken for years.  No heart issues.  I'm really in pretty good shape for the shape I'm in *L*.
  • marci1987
    marci1987 jerry70

    Posted

    Not sure what medications you are on but if you are on a few or anything new since problems began. Have a chat with your pharmacist sometimes they are excellent at finding issues that involve side effects to medications.
    • jerry70
      jerry70 marci1987

      Posted

      All I know about the cyse is it's on my spine not too far down.  I can NOT remember what they called that area.  However, the Neurology surgeon showed us a grey streek down 1 side of my spine and said she had NO idea what that was but since it didn't hurt she wouldn't reccomend any surgery.  I wasn't planning on any*L*. They did 3 MRI's a Cat Scan, Endoscopy and the vestibular testing.
  • genine5564
    genine5564 jerry70

    Posted

    1. Not all doctors are created equal.  Sad, but true.  Did you have a CT scan of your sinuses and vestibular area?  Was that included on the MRI?  Do you potentially have arterial schlerosis?  (Another potential cause!)  Did they test you for BPPV?  (It's a simple, five minute test in the exam room).  GET A SECOND OPINION~
  • jerry70
    jerry70

    Posted

    Dizzy, I just looked up that Tarlov Cyst and it triggered my old memory of where my cyst is.....it's in the Thorcic spine...not spelled like that but I remember then saying that.
    • Dizzy_P
      Dizzy_P jerry70

      Posted

      Thought it was worth mentioning, it just could be - maybe ask the specialist next time you see them. An epidural could causeit, or it could form for no known reason. Hope you find an answer and a solution. Al the very best.
Back to top
Prev

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.