All HIV Symptoms but tests negative

Posted , 29 users are following.

The last 5 months have been a complete night for me. I became deathly ill following a potential exposure to HIV through unprotected sexual contact.

I had all ARS symptoms including severe muscles pains, headache, sore throat, inflamed lymph nodes, nausea, pins and needles in arms and feet and oral thrush.

i then continued to develop many other symptoms including: joint pain, extremely dry mouth, mouth sores/ulcers, recurring sore throat, vaginal thrush, petechial rash (little red dots all over body), weight loss, vertigo, constipation, liver/spleen pain, geographic tongue, vibrating sensations throughout body, pelvic pain, irregular bleeding/missed periods, metallic taste in mouth ... the list goes on

I am still suffering from oral and vaginal thrush, geographic tongue, various aches and pains and liver/spleen discomfort 5 months on.

I have tested for HIV at 4,5,6,7,8,9.5,11,12,14 and 16 weeks after the incident all negative using a combination of testing methods including 4th generation duo test.

I really feel helpless now borderline suicidal as I am 100% sure I am infected but the tests have not yet picked it up. I am considering a DNA PCR but have been putting it off due to the financial expense and my doctors will not do it for me.

I should also note that my doc ran a CBC during the acute illness which showed a significant drop in my lymphocytes.

Please someone help/offer support/guidance as I am desperate. The anxiety and depression is too much to handle.

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  • Posted

    Hi thanks for replying,

    I cannot shake the fear given the multitude of symptoms I have experienced - I know anxiety can worsen existing symptoms but it cannot account for the persistent fungal infections I am currently suffering from.

    I really wish I could trust my test results, but it is very difficult to move forward when your body is saying one thing and your test results another. I don't believe there is any other explanation for all of this. I am a living nightmare.

  • Posted

    im in the excact same boat but have more symptoms too

    • Posted

      Hi Carl what symptoms are you experiencing? I'm beginning to lose all hope

    • Posted

      take it easy dear I am also scared I reach my limit at one point I'm time so please take it easy after my final test am going to start boosting my immune system

    • Posted

      jenny77918 you sound just like me but we have to be strong we going to make it through im in the same boat i promise and i been freak out alot as you but we have to keep pushing!!!

    • Posted

      Anxiety

      Depression

      Always anxious

      Brown stripe on thumb nail

      Saliva ducts in mouth raised

      Feeling nauseous

      Swollen adenoids

      Yellow loose smelly stool

      Frequent urinating

      Frequent yellow urine

      Bloated sore tummy

      Constant fatigue

      Poor broken sleep

      Knumb hands when lying down at night and morning

      Some mornings gag vomit clear mucus

      Sore shoulders

      white tongue

      Low energy

      No appetite

      No interest in anything I do anymore

      Scared of everything

      Blurred vision often

      Sore inner thighs to touch

    • Posted

      Your symptoms scream anxiety and maybe a digestive issue? I really do not think HIV is a concern for you. Have you started any medication for the depression? This may help if you havent already. I hope you soon feel better

  • Posted

    "I have tested for HIV at 4,5,6,7,8,9.5,11,12,14 and 16 weeks after the incident all negative."

    You have conclusively tested negative and certainly over-tested. You do not need NAT or any further testing for that matter.

    Your symptoms are unspecific to HIV ARS and has great resemblance to anxiety symptoms. I strongly feel that you have read a lot about HIV on the internet and now your mind is playing tricks with you. You have read so much that you constantly monitor your body almost every couple of hours and notice even minute changes that occur on daily basis. I hope you know the power of mind, it can really do a lot to your body.

    Your symptoms are your own diagnosis from reading online and they do not mean a thing. If you really had ARS symptoms, you would have been a complete wreck at an ER, with fever so high that would have needed some serious medical attention and not guess work, 101/102 F fever was not ARS fever.

    Unless you have cancer and on chemotherapy, you have no reason to suspect delayed sero-conversion.

    Suspecting a type 2 virus or undetectable viral load is also irrational because it's exactly what a HIV cyberchondriac does.

    You are clearly exhibiting abnormal behavior as testing so much is not normal. Please seek help. The problem seems to be something else, it most likely is OCD, which needs correction from the core by proper re-arrangement of thought process. There is no point in wasting these golden time of your life in fixation of a disease which is not prevailing at the first place. I repeat, please seek help for your irrational fears.

    • Posted

      Thank you for your input. I failed to mention that I did end up in A&E at one point after passing out with low blood pressure and tachycardia during this stage my lymphocytes were also low. The illness that took place was most definitely an acute viral attack. I agree my anxiety is out of control, but that only stems from not knowing what my illness is. Also i find it hard to believe anxiety can create repeat fungal infections? I am addressing my OCD with a therapist, but I remain adament that this is HIV

    • Posted

      "I remain adament that this is HIV"

      That's exactly where the problem is, you have convinced your self that it is HIV. You will have to unlearn that for any progress.

      We have established that you can't have delayed sero-converion or a rare HIV virus. You are not going in to the history books with this one. Not a chance.

      You should keep working with your mental health professional and also stop double checking that door lock every time. 😃

      You don't have HIV. I bet my house on this.

    • Posted

      I hope you are right but my gut is telling me otherwise. My body has changed so much in these last few months. I really genuinely believe I am a new rare case and I know that sounds bizzare but I know my body better than any doctor and something is not right. If not HIV then perhaps a similar virus?

    • Posted

      My expertise is limited to HIV and I can assure you it's not the virus here. If you suspect another virus, keep working with your doctor. Any other virus or whatever it is wouldn't be life threatening or your doctor would have been alarmed already.

      If you ask me, you are just another classic case of HIV cyberchondria. I have seen atleast a 1000 like you. Sample place, same testing, same thing to say and same symptoms. No one reported a positive yet in the last 12 years. You are not going to be any different.

    • Posted

      May I ask what your expertise is? I appreciate your support please stay in touch. Its people like you that get us people through these hard times

    • Posted

      I don't know much about HIV but from the small information I know you don't have HIV and there's absolutely no way that your symptoms are caused by HIV

    • Posted

      Though I am certified in HIV biology, epidemiology, and Prevention but this is internet I can profess to be Tony Soprano posting as Psyntax_Error, you shouldn't believe every thing on the internet, there is a lot of HIV info out there and you've read too much already.

      All you need to know about me is that I know a lot about you and can tell you that you don't have HIV. You can't do a thing to prove me otherwise. 😄

    • Posted

      How do you know for sure? There is a chance albeit a small one that I am that rare case. Also how do you explain the fungal infections which have not gone away at all in the entire 5 month period

    • Posted

      You are no rare case. Symptoms don't mean any thing. Stop challenging constantly. It's not going to get you any answers any further. Your answers are already here, you are HIV negative.

      Fungal infections are very common occurrence, just because you read some where online about a correlation between HIV and candida or any other fungal infection, it doesn't mean you know it all, you are not a doctor. Your own diagnosis means nothing, your issues are in your head, keep seeing your shrink. Take good care of your self, you have hygiene issues and that leads to fungal infection. Use an antifungal ointment that should help, eat a balanced diet and quit your bad habits, that should help radically.

      I am going to tell you again, you are just fixated in your head that you have HIV. I am afraid, I can't tell you that you are HIV positive, your tests have provided you with definitive result. I can't offer any more support as we have clearly established that your issue is mental health related and not HIV. You should now post in relevant forum for support.

    • Posted

      I appreciate your advice but what I will say is that I definitely do not have hygeine issues. You dont know me that well and it is quite offending. I shower daily and brush my teeth and rinse my mouth morning and night. A person can feel depressed but still care for themselves. Sorry but I disagree with you. This is a viral issue and you have not taken into consideration all my symptoms which are backed up with my blood results showing a low lymphocyte count. Doctors are easy to dismiss the idea of HIV in cases like mine which can have catastrophic consequences. You wouldnt believe me if I said I eventually tested positive because the odds are so remote. But i'll be sure to post if I do. Sure I may have anxiety and OCD which are not helping matters, but I am not crazy and know when something is wrong with my body.

    • Posted

      Also there are many cases in which HIV goes undetected and people live without knowing they are infected. So I do not agree with your claim that doctors would know already if the issue was life threatening. Often there are no clinical signs until opportunistic infections have set in which MAY indicate infection. Symptoms are highly variable amongst individuals which is why doctors should be more observant and listen to their patients.

    • Posted

      Come back here and post your positive if it ever comes back from 'this' particular incident. Or come back and tell me how you were irrational maybe 10 years later once you accept your negative. You can't surprise me ever!

      Highlights:

      1. You have conclusively tested negative.
      2. You don't have cancer to speculate delayed sero-conversion
      3. You have admitted you have OCD
      4. All your symptoms were your own assessment and has nothing to do with a professional finding or addressing it.

      Please keep working with your mental health professional, therapy and meds can certainly help. I wish you good luck and a speedy recovery. Sending healing vibes your way.

    • Posted

      One more advice, quit reading online. Your power to your argument is google.com. Doctors and HIV specialists rely on experience and expertise.

      Lymphocytes count has nothing to do with HIV infection. Only HIV tests can provide definitive result, did you not come across that while you were consuming all the available information online about HIV ?

      You should not be offended, I still didn't give up on you. The sooner you accept that you're okay, better it is for you. These time lost will never turn back, sweetheart.

      Keep working with your shrink, you're going to be alright.

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