Allodynia in fibromyalgia.

Hi Boqer Ive had this for 3 years some days are really bad sometimes it eases. I cant bare to wear a bra it hurts so much, I dont wear one in the house. only wear 1 when I go out, even wearing a silk nighty can hurt my back. it feels like Ive got a to weight on my back. I tried explaining that to drs and a specialist they looked at me as if I was mad?. its my back it affects me the most and sometimes my legs if I wear leggings. take care hun gentle hugs

It sounds like a very unpleasant symptom for you, I do favour not wearing my bra at home but that is because I get pain round my ribs from it even though it's not tight.

Take care, very gentle hugs

Hi hun no its not a very pleasent symptom to have,but nothing fibro throws at us is nice.Even the slightest touch at times on my skin is painful my poor husband is too frightened to touch me incase he causes me pain. horrid horrid condition. Hope you have a good week not too much pain. hope you are managing to sleep ok. take care gentle hugs xx

Hi Bee the slightest touch hurts its mainly on my back even wearing a silk nighty hurts. it feels like a ton weight back on my back. I cant bare wearing a bra I just wear 1 when one out. Those ayruvedic herbal remedies sound amazing. its goo when you hear of something working for us. take care gentle hugs xx

Just read a bit on it and was interested to see its connected to migraine, something luckily I've never suffered from but the word allodynia means 'other pain', ie pain experienced when there should be none, as from a light touch and that it can be experienced other than in the head area.  Very interesting and more ammo to wave at the doctors.  Thank you Kaz.  Hope you're feeling okay today hon. xx

Hi Loxie how are you hows things with you. did you have a good holiday hope your not in too much pain from it. When I went away I was ill for 3 days in loads of pain. the journey knocked me about. I get migrains, and also a stabbing pain in my head most days. Im never free from head pain of 1 sort or another.its interesting that you found it was connected to migrain. I shall have a read up on it. take care hun gentle hugs xx

Hi Kaz. Bit better today thanks.  I went on a day trip whilst away which involved a long car journey both ways and quite a bit of walking in between.  Didnt feel tired while doing it but the next day I started to ache and by the following day (day we were travelling home) I could hardly move and everything but everything hurt to hell and back.  I was so wiped out I just sat in the hotel courtyard and read a book all day, even eating was hard work and my tummy got really upset - I ate the same as everyone else so it wasn't food poisoning etc.  The plane journey was uncomfortable and a late night arrival home.  Saturday at home I couldnt move all day, just laid on the couch and drifted in and out of sleep. What a wimp!  This morning was the first time I felt any improvement and have managed to keep food down okay too.  What a flippin nightmare - it'd ridiculous that one day out should give rise to such a wipe out, I feel really annoyed that something 'invisible' and not life threatening should have such a major effect - it's totally ridiculous that we should suffer like this without any real identification of what's causing it.  I think I could probably accept it better if I'd been diagnosed with something more serious or terminal but I find it hard to rationalise it in my mind when not all doctors even recognise it as an actual condition.  GRRRR rant over

So sorry to hear you suffer from migraines, touch wood I have never had much of a problem with them, had a few as a child and mostly they were as a result of car sickness but generally I'm headache free - wish the rest of me was pain free too eh.

loxie you never fail to make me laugh poking dr up the nostril. Ive had it for a while I only wear a bra when out as it causes so much pain wearing one. wearing a silk nighty feels like I have an elephant standing on my back when I tried to explain that to a dr and also a specialist. They looked at me like I was stark raving mad.mind you I was begging to wonder my self i have to laugh or else I would cry.Im like you get so angry frustrated that when we try to do anything and try to have some enjoyment, fibro knocks us straight back down we cant do anything.It has such an impact when we do do anything.its like you said something that is invisable and not life threatning has such a big impact on us.we are fighting our enire body, our whole body is affected not just one part of it. That is alot to deal with and contend with. its a flaming hard battle day in day out. wish an end was in sight with it for us all hopefully 1 day wish it would hurry up though. take care gentle hugs x

Hi Janet,

I was just saying the same thing, do you find that even the pressure of wearing socks is too much at times?

Hi Boqer.

Most of the time yes. I find that sometimes I can wear what are just the trainer socks, so only small, other times not even them.

Having to wear tubigrip on my ankle at the moment and am in agony, but would be worse with the pain from my ankle if I didn't wear it

It's the better of two evils.

It's ok in the summer, but don't know what I'll do in the winter.

No, I agree about the winter! I just end up getting really cold feet 😑 Do your feet ever burn on the soles? Mine do often and along with the pressure of socks it's just a bit much, they also really ache in the joints and are painful to walk on.

Hi Janet thats how I sleep feet sticking out the bed, cant wear socks or bed socks hurts my feet too much. Even down to wearing shoes when I went out on frid sat sun as soon as I was in the car I took them off.only put them on again when got out the car. dont you just love fibro not. take care gentle hugs

Hi Boqer. Feet are brning on the soles at the moment, had the right one for about 1 week and the left one has started today. really painful to walk at the moment.

Going to the Gp on Thursday hopefully she will listen to what I have to say.

Take care and gentle hugs x