Alternative
Posted , 9 users are following.
I was diagnosed with Lichen Sclerosis 4weeks ago, by my gynaecologist and prescribed Dermovate. This made everything much worse, and I wasn't happy about using steroids. I have been doing lots of research on this horrible condition, and have decided to use alternative/natural healing. I also have Lichen Planus in the mouth, which comes and goes and have had that for the past 30 years. Both these disorders are primarily brought on by stress, your immune system weakens and a myriad of random symptoms can occur. I firstly am tackling my diet, cutting out dairy, sugar, gluten caffeine and yeast. I am applying Emu Oil, three times a day inside and out. The supplements I am taking are L-lysine, kava kava and a very good probiotic. I am using yes products for lubricants. I feel at least that I am working toward building my immune system, to control and hopefully 'put to bed' this condition. my pharmacist has also given a probiotic which is inserted into the vagina. Which is used to normalise and put back good bacteria.
hope this helps
3 likes, 26 replies
libsan ann2402
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ann2402 libsan
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Holiday_girl ann2402
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Chrisy Holiday_girl
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Holiday_girl Chrisy
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Chrisy Holiday_girl
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Holiday_girl Chrisy
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Chrisy Holiday_girl
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On the down side I fell this afternoon and broke my foot. This is making getting to the loo a bit difficult (I'm on crutches) so I envisage a bit of a problem with leakage as I suffer from stress incontinence. I'm hoping this doesn't set me back. Hey ho!!!
Carol, I meant to ask about your pin in your foot. I hope all went well today and they can remove it this time.
marey Chrisy
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So sorry to hear about your foot....that's a blow! Might you be able to keep a shewee to hand? eg tied to your crutches with a length of cotton so:
1/ you can always find it
2/ you can always use it?
Holiday_girl Chrisy
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Chrisy marey
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Chrisy Holiday_girl
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I put a vote on you message as I think it shows people that you can get on top of this LS, and if you moisturise all the time it helps to prevent the LS from becoming active. Two weeks between treatment sounds great. I am going to aim for that if it is possible.
marey Chrisy
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Chrisy marey
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Morrell1951 ann2402
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However, when I had sort of a catastrophic LS flare last summer (had had it all my life, not noticed by any number of gynegologists and dermatologists) I was finally diagnosed. My gynae prescribed Clobetasol (Dermovate in UK) and estrogen (vaginal). I soon ditched the estrogen, which made me depressed. Instead I use lots of natural oily creams and ointments to keep everything protected from cracking and itching.
The atrophy I've experienced has me scared of ditching the Clobetasol. I'm comfortable down there. I know my stress is low and my diet is clean, because my psoriasis is 100% clear. A bit of chocolate or too much sugar will make my back door burn and I have an active tear about half the time in my perineum. I'm convinced that the prescription keeps this to a minimum, hopefully reducing my odds of getting cancer, which is higher for us.
Sex is over. The one time I tried six months ago, the friction caused a raging yeast infection. I'm just too narrow.
So, just adding my two cents for balance. You've done well to figure out what to do after Dermovate failed you. From everything I've read here over the past year, LS is extremely varied.
margaret289 Morrell1951
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interesting about your experience with oestrogen. I stopped it fairly quickly because it seemed to be making the irritation worse and there was one occasion when I had to get in the shower to wash everyting off, because the discomfort was so great. I have tried cutting down the Dermovate, but contrary to ann's exoerience, it is the only thing that works and I am using it night and morning (again) at the moment because of a stress induced flare up (of pseudo LS as I call it).
Morrell1951 margaret289
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If they're prescribing it to cancel out the skin-thinning effects of Clobetasol/Dermovate, well it's too high a price to pay (for me).