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I thinking about going the IV iron infusion route. It's sad to say that just the stress of trying to feel better is using up iron too.
Im taking double iron (25mg each) of Gentle Iron because of this blood type, iron drains me and makes me even sicker. My GP doesn't have a clue about this blood type and I'm unable to find a dr that does. We are such a small group of people that I can only assume no one would fund the research in this area.
I was noticing just yesterday how exhausting it is just to try and towel dry my short hair. Omg, takes my breath away and I've only been down for two weeks. Been real low for a long time but it finally dropped and been in bed for the past two weeks.
Is there anyone out there with this rare blood type too, RH- ??? I'm just curious if an iron infusion will even help since I'm unable to store iron. Wish I could meet someone that is in this same boat. Please speak out. I'm in my 50s feeling like I'm in my 90s and there's still so much living I'm wanting to do.
If you know someone that has negative blood, please just ask them to log on and respond. I'm feeling very alone.
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