Anxiety has taken over

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Did anyone suffer with almost debilitating anxiety while they had mono? Most of my symptoms are gone, I have had mono for 7 weeks. About 3 weeks ago I started having awful trouble sleeping and it hasnt gone away. It started with a few random nights of night sweats in early January, around when they finally figured out I had mono. I now have anxiety about going to bed, because I lay awake thinking something is seriously wrong with me. I'll fall asleep for maybe an hour but then I have an awful dream and I wake up having a hot flash. It's not even night sweats anymore I'm not sweaty, I wake up very suddenly and just hot like how I've felt during a panic attack. And then my anxiety is super high and my brain just races with scary thoughts and I toss and turn. My stomach has been upset from being in this constant state of high alert every day. I've had a few ok days but then I just go back to this feeling like a pit in my stomach and my stomach feels upset and gurgle which is also freaking me out. I have an appointment to start with a therapist next week and I'm hoping it will help. I just don't understand why this virus set me off into this awful period of anxiety and I dont know how to get out of it. I miss looking forward to bed time and sleeping more than 2 hours and not waking up hot and panicky. I know its anxiety bc I have some xanax and i will take half of one and feel a little better. I think its causing me to be a little depressed too. I just feel like I'm never going to feel normal. I also went crazy checking my body for lumps ans bumps thinking I must have some awful illness and I actually bruised my stomach from pressing on it. I've convinced myself I've had every serious illness possible through this virus. As soon as I get over thinking I have one disease, I start to fixate on a new one an that's what's keeping me in this state of super high anxiety. I cant calm down. I considered checking myself into the hospital for mental health problems but I have a career and twin babies I cant be away. Did anyone go thru anything this bad?!

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  • Posted

    I never tested positive for mono however I did test positive for an active EBV infection. I never had the sore throat or swollen glands in my neck I just had a vast array of very strange symptoms effecting just about everything in my body. The first few months I had horrible anxiety and insomnia. I read a lot of people have the anxiety I don’t know if it’s from the virus or is just caused by worrying about all of the weird symptoms and the length of time it last. I’m almost positive if my symptoms would go away so would the anxiety I think it’s more of a cause instead of an effect. The insomnia slowly got better, but I can’t shake the anxiety and I think it’s because I still experience some pretty strange symptoms. I can totally relate to worrying about more serious conditions I’ve gone from worrying about cancer, MS, rheumatoid arthritis, lyme disease, lupus, lymphoma as soon as I quit worrying about one I start worrying about another. This has been going on for about a year now though I’ve seen good improvement it’s still hanging around. A supplement that I have found to combat the anxiety is called ashwagandha my doctor has tried several times to put me on anti-depressants but I refuse to take them my body doesn’t need dangerous chemicals in it it’s already sick.

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    • Posted

      I too had the cancer.....MS worrying. Went and saw a neurologist the other day to quell the MS fear. The cancer fear I am still dealing with but all my tests have come back fine.

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  • Posted

    100% the anxiety is from the mono. Ive never been anxious but when this first started i felt like i was on another planet for the first month or 2.. Just do your best to calm down. I went to the hospital during one of the attacks and they ran tests and sent me home with no new info just a $4000 bill.

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  • Posted

    I am 9 months in and the anxiety has been the worst part to overcome to be honest. I take Klonapin occasionally to help but I don't want to become dependent on it. I too considered checking myself in to the hospital for mental problems.....but the meds helped on those days. If you doctor suggests something for the anxiety take him/her up on it. Don't try to be a hero.

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    • Posted

      And I had issues with sleep. Which would make my anxiety worse. I always know when a relapse is coming.....because of the sleeplessness.

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    • Posted

      Yes I think the sweating at night and waking up startled and having insomnia is making everything worse. I lay awake analyzing my body and thinking something must be seriously wrong with me. I had a full blood panel done at urgent care and my new dr looked at it and both told me everything is perfect besides positive mono test. I didn't think a virus could cause these awful feelings. I do think it's a combo for me of not being diagnosed til 5 weeks in so I didnt know what was wrong and that's when I got really anxious. Then around 4 weeks into mono the night sweats hit (still didn't know I had mono yet) and that had me so anxious i was borderline having a panic attack every time I woke up sweaty. Now I think I'm waking up sweaty from the anxiety coming out as I try to fall asleep. It happens every hour. I go to bed so anxious and hyped up, as soon as I start to fall asleep I jolt awake and I feel like I'm on fire but not drenched in sweat maybe just a tiny dampness on my chest. A lot of times I'll be having a nightmare and wake up startled and hot...its got to be anxiety doing that

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  • Posted

    Oh and your digestive issues. That was one of my main symptoms. I have stomach pain.....stomach spasms....gurgling etc etc. I was told it was from the EBV and anxiety. I have lost 24 pounds since I had my recurrence 9 months ago. It comes and goes but it makes me freak out because I keep thinking I have stomach cancer. I keep seeing specialists to rule everything out. My blood calcium got really high because I was bedridden for so long but since I have been more active the last few months that has calmed.

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  • Posted

    yes the anxiety is awful its affecting my life terriblly. i can only drive close to home and if i go further i cant breathe panic just so terrifying. i had ebv before 11 years ago and once i got better the hardest part was the anxiety i never really went back to normal just learned to manage it . now i have it again and its all a nightmare

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    • Posted

      Oh gosh lori that is terrible. Yes I cant stand going anywhere I rush home from work and dread when I have to leave my house. My anxiety has mostly been that there is something wrong with me deeper than mono but I know there isnt. I had all the onset symptoms, I tested positive. So simple so why cant I stop my brain from this

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    • Posted

      yes the anxiety is the worst and especially with this virus your world becomes very small ... theres many symptoms of this virus so try not to worry about it and if youre making it to work youre not doing too badly at all... most of us are bedridden with the fatigue and just overall ill feeling

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  • Posted

    i had HORRIBLE anxiety! it was my first symptom and it snowballed into the big mess that was this virus. I didn't know what was wrong with me and couldnt ease the anxiousness in my body even though there was nothing to worry about. I really thought i was becoming depressed and had developed some sort of anxiety disorder seemingly out of nowhere. so yes, this virus can cause some pretty weird anxiety and worries that usually would not be the case for us. but, to reassure you, i am writing this now 9 months later and my anxiety is nowhere to be seen. some physical symptoms persist, but they are such a breeze to overcome when i am not worried. i am sure that you will overcome this, everyone does. its just another, horrible stage of this virus and you are not the only one who has suffered with this! please keep that in mind when your mind is trying to deceive you.. you are not alone!

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  • Posted

    Hi Jenna,

    I'm so sorry to hear you are going through this awful time with anxiety. I definitely was full of worry and had some real lows of depression, anxiety and fear when I went through mono. It really is an awful experience and want to know that I empathise.

    This virus is so horrible in that the symptoms are so intense and debilitating that it is natural that you start worrying and thinking something else is wrong. Please be reassured Jenna that in the vast majority of cases it is just the mono and that it does get better with time. I too was so worried I had something else and it's when you start googling and everything your mind really can get overwhelmed and it's an awful feeling Jenna.

    I do hope that meeting your therapist can help, and of course don't hesitate to go and discuss your fears and concerns with your doctor too, and hoping they can put your mind at rest. Remember this virus does get better Jenna, it can take a little time but you will get there I truly believe it.

    Hoping so much you can get much better sleep at night. For the past 3 years or so I've been taking a low dose of amitrypyline at night, which is a anti-depressant which also is used for pain relief, but it really has helped me get good sleep at night and be more relaxed in the evening, although it can leave you feeling a bit more tired in the morning if you take it too close to bed time. It can also help with lifting your mood too, which I know for sure I needed when I went through mono. I know it's not something you would want to jump onto lightly, and of course only anything like that after discussion / consideration with doctor, etc.

    Hang in there Jenna - hoping and praying that this tough time you are going through settles down and remember mono does go away and get better with time. Thinking about you and hoping for a settled weekend for you.

    Craig

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  • Posted

    Jenna,

    When I read this, i could not believe how similar your story is to mine.

    About 2 months from my first symptom and 1 month after diagnosis, I suffered about a week of debilitating anxiety. One night I literally thought I was dying. I swore I had Gillian Barre because my legs were weak and I had a strange sensation. I thought I had SO many different things because I could not believe a virus would cause so many odd symptoms for so long. My doctor threw anxiety meds at me. I never took them because I was scared of them too. I could not sleep for weeks (in fact I posted about that on here). if you were to go back and read my old post, you would see all the same fears that were in me that are now in you.

    Heres the good news...it will pass. I had insomnia for about a month. I couldn't sleep, has swollen eyes, looked horrid. slowly my sleeping patterns improved and now I'm sleeping pretty well. It did take time though. I'm also on a ton of supplements.

    I still have a lot of weird symptoms and although feeling a lot better, I still have moments that I wonder if something else is wrong.

    One thing I want to suggest is melatonin. i had a sleep study a month ago (not because of mono, but because I grind my teeth) and the doctor showed me my brain test. I was having micro burst throughout the night and the doctor said that was due to the virus. he said the nervous system is not working like normal so during the night it sends signals to our brain to stay alert and wake up. I could see it on the test, when the Burst would happen. anyway, he told me to get on melatonin and I told him I tried that. he said its not an overnight fix, but it will assist in getting your body back in to the correct rhythm. he said it was a gradual but successful fix. He was right. Might be worth a try for you.

    I truly hope you start feeling better. I completely understand where you are in this timeline and it sucks, I know. but it WILL get better, I promise.

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    • Posted

      Hi Jen,

      You really have been through such a torrid few months, I just wanted you to know was still thinking about you and absolutely as you say for Jenna that you too will also get to the stage of full recovery. It is good to hear that things have been a bit more stable, getting through this initial few months after infection was for me one of the hardest things I've had to go through and believe me Jen it does get easier as time goes on and you do reach a stage where your body resilience and general feeling of wellness fully returns again.

      Thinking of you and remember there is light at the end of the tunnel with this and there is recovery - even if it's just bit by bit at the moment you ARE going to get there, I truly believe it. Hang in there Jen and hoping for a good and settled week for you.

      Craig

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    • Posted

      Omg jen we have had a very similar course of the virus for sure. I am in week 8 now. And on week 3 or 4 of the awful anxiety and sleep disturbances. The micro burst thing makes so much sense that's literally what I feel. An hour after I fall asleep I wake very suddenly almost like I'm wide awake. I'm usually very hot like I am having an anxiety hot flash and sometimes I've been sweaty on my back of neck or my chest. Night sweats are a huge anxiety trigger for me and why I cant get the cancer fear out of my head. This pattern of waking began after about 4 weeks ago when I had 2 nights of bad night sweats where I was so drenched I had to change. It made me start to fear my bed/sleep time so I've been getting anxious just going to bed wondering if I am going to have insomnia and sweats and wake up all night. It's like q terrible cycle. I was waking up almost every hour, but now I have been taking a lavender bath before bed plus using CBD oil and melatonin and I only wake up once or twice and I am less panicked. I had 3 good nights but then last night an hour after falling asleep I did wake up very hot and anxious. I think I only woke up one more time after that but i fell right back asleep and wasnt sweaty. I'm just making myself crazy wondering is this anxiety, the virus, something worse. I actually am meeting with a therapist today to try and help myself get out of my head.

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