Any advice?

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Hi, I'm 22 years old and I have been suffering with pancreatitis since being little. I Have been diagnosed with all sorts of things and wasn't until I was 17 and had a biopsy that I had my 1st major attack and ended up in ICU for 2 weeks they diagnosed with pancreatitis from a birth defect. I have undergone ERCP's and nothing has helped! I have been hospitalised numerous of times where illnesses such as a cold have started an attack. Im unsure of what else can help or prevent the pain that I suffer on pretty much a daily basis. If anyone has any suggestions it would be much appreciated. Thanks

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  • Posted

    I am not sure sweetie were you are from I suffered a long time also. Until I finally found a place I travel to Tuesday it's in Omaha, Nebraska Pancreatic Clinic. They have top of the line specialist and are on the frontier of technology. They are doing tests to see what they can do for me. Look them up just put in Omaha, Nebraska Pancreatic Clinic it will come up. It's actually a huge hospital they are so warm caring and understanding. If you want numbers just message me back. I can tell you who to ask for.
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  • Posted

    hi the pain is bloody annoying some people say aloe vera but it is just a case of trail and error because we are all different. For example I can drink coffee and tea with caffeine but not decaf. if I drink water it sets yhe bugger off.

    Oranges set it off but tangerines dont. Applying heat makes its worse all seems daft when we are suffering with the same thing.

    My best advice is try different foods etc and always stick to the 5% PER 100G on most things and remember to have a treat of something resonable every now and then as we still need some bad fat in the diet. E.g. my local take away has been doing me low fat chicken and oven chipsas a treat with my family once a month. Kfc and Mcdonald are a no for me but you may tolerate it once in a while. Keep smiling and remember that you are not alone.

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    • Posted

      I went to my consultant he said if we stay on a constant low fat diet it can cause problems with your tolerance levels. so by having a bit of bad fat your body builds a safe tolerance. so if you're out with family for a meal and you have something that is moderately low in fat then you can enjony it without having a ragging attack or a loose bottom accident. Its about tolerance. The same with tea and coffee posh brands are bad for you but things like sainsbury own golden roast are fine again it's what they put in that the body tolerates. Another is tangerines rather than.oranges acidic levels.

      mad but it makes sense.

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    • Posted

      'There are four main types of fats that make up the fat in food:   

      Healthy fats (unsaturates):

      Monounsaturated fats/Monounsaturates

       Polyunsaturated fats/Polyunsaturates

      Omega-3 fat

      Omega-6 fat

      Unhealthy fats:

      Saturated fats

      Trans fats

      The different fats behave differently in our bodies, and the impact does vary on our risk for certain diseases.'

      I got this from the health check site.

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    • Posted

      I got the info off my consultant. also when I was in hospital last time I met two others who gave me the same advice and to be honest it works. I have done the full low fat diet and had increase in pain. since doing this I have reduced my pain down when eating. I can now have a treat with my kids
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    • Posted

      I was just concerned about you mentioning 'bad fats' being ok. It's all to do with the types of fats we eat. Did the consultant tell you which types of fats to eat?
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    • Posted

      His words was any fat is bad. but he explained things like a cheese sandwich or a sticky bun. not pizza etc

      basically just a basic commonsense and treat yourself self with a limit and only once in a while etc

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    • Posted

      I must admit I eat cheese every day, but it's hard goat's cheese, which is better than cows milk cheese, less lactose. It's my fetish! I eat very healthily mostly, and I'm thin with low cholesterol so I don't think it's doing me any harm. biggrin
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    • Posted

      lol I am a big cheese lover. so just having a little bit now and then is heaven. Although we all suffer with a buggered pancreas. we all need to learn our limits and make sure that you have a treat. I am doing a crumble this week. Dairy free butter as my son can't have milk. but it is healthier for the pancreasso home baking of cakes etc with my bero book lol
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    • Posted

      I didn't know there's dairy free butter! Is it nice? I don't drink milk but I do eat butter. My main naughtiness is that I drink white wine now and then. I know, bad, but I have ME and I'm stuck in bed most of the time. I have to let my hair down sometimes or go stir crazy! A friend comes round and we drink wine occassionally.
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    • Posted

      Oh no I won't use that. It's a margerine, or spread and during processing it's heated to such high temperatures that it's black and they have to dye it yellow. No nutritional value I'm afraid. I've written articles about it and I got the info from a book on Naturopathy.
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    • Posted

      if you see what they do in most meat factories and food factories to bulk up meat in a cement mixer. yes a cement mixer. And the other things they do with food products you would never eat anything again
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