Any advice gratefully received..
Posted , 9 users are following.
After not really getting anywhere after my diagnosis ,I paid to see a pain management consultant,who deals with Fibro,in the hope of getting some options.
She was very good,but basically I have been referred back to my go,with her suggestions.
She has suggested Pregabalin( have I spelt that right!) Trigger point injections,and intravenous infusions. It is up to me and my go as to which,if any we try.
Initially I was so pleased to have someone care and be interested in helping. So on Monday I go to my go.
Thing is unless I go privately( which I don't want to really the two later options would mean a referral to the pain clinic and a very long wait.Trying the tablets makes most sense,but I am really worried about it as I'm very sensitive to drugs,I invariably get bad side effects. She suggested starting me on a child's dose for 5 days and then increasing.
Anyone who has this condition will understand that the one thing I fear is taking anything at all that makes me feel worse than I already do!
All I take now is a codine at night( no good for pain but helps sleep) and ibruprofin,not much use either!
I'm scared of anything making me more tired too.
Anyone take them ? Or any thoughts,I'd be really grateful to help me decide?
Also why do they prescribe anti imflammatories,and people try anti inflammatory diets, if there is no inflammation in fibromyalgia??( just curious on that one!!)
Thank you.x
0 likes, 16 replies
loxie Lillychiff
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Lillychiff loxie
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leona18728 Lillychiff
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I've had it for many years and I'm now in my late 50's and getting much worse,
I saw my consultant last week who admitted there is noting they can give to make it go away it's just trial and error
I had nearly six months off work with a huge flare up and Gabapentin 400mg x3 and Brufen retard 800mg got me back to work
I still take Gabapentin and Hydroxychiloroquine sulphate x 2
To keep me ticking over but I have just come out of another big flare up
I just ride along with them these days the pain never goes away it just settles on times or moves somewhere else,
I'm actually feeling good right now, ( still in pain but bearable )
I believe it's because I've gone Gluten free and almost wheat free for 5 weeks
I know they say it can take six months but what a difference already
I also started magnesium and B12 at the same time
I'm trying to cut down on my coffee intake,I'm finding it hard but it will really help,
I really don't have any answers for you sorry if I did I'd use them for myself and everyone else on here,
Hope you find some relief soon
But don't waist money if you have to wait so be it because if you pay they will only send you back to GP
Chin up positivity at all times even though it hurst like hell
Light excesise is good to, I forgot to say I've just got my Powerplate back out to tone up but it seems to help with my neck and shoulder pain
Gentle hugs being sent.
Lillychiff leona18728
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Bee70 Lillychiff
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You are not alone. Here on this forum we all understand each other and the pains. I personally don't like meds. I am trying herbal remedies which are in the early stages which are part of ayruvedic treatments. I will report back soon to all, but have found some relief.
I also have been on CBT ( Cognitive Behaviour Therapy ) which was arranged through my GP and found this method of Mindfulness very helpful, although it hasn't taken the pains away but helped with the daily thought process in how one goes about their daily routine. It reminds me that I need to take breaks and to live the moment and enjoy the time and experience of that day and NOT to be a robot to try and complete everything in one go. We all do it !!
I have learnt to deal with a day at a time and live for the moment !!
Hope you have a great day too !!
Lillychiff Bee70
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TeresaJS Lillychiff
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Lillychiff TeresaJS
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TeresaJS Lillychiff
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anne90395 Lillychiff
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This is such atricky condition, and what works for one doesn't work for another. So what to do? I do think there are people on truckloads of painkillers, and they are still in pain and still tired. Or they are putting up with horrible side effects. From what I have been advised by the pain clinic I attend, meds are not the answer! They advocate pacing, listening to your body. CBT, meditation, mindfulness - lifestyle changes and changing your thinking - this is the new normal. Hard to accept I know, sorry I couldn't be more helpful.
Take care, Anne
christine26761 Lillychiff
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Hiya Lynda. Amithriptilyne is the only med I take for Fibro...gives me a great pain free sleep..- no pain..still feel a tad drowsy waking up...but that sleep is what makes this Fibro manageable for me..only get flare ups now..once it was just constant pain almost everywhere and sleepless nights..I take it 7pm before bed..it really does work wonders ( for me..that is,) we are all very different..I take 25 mg...never had it increased either ...started on 50mg but I was like a zombie...all the next day..dropped to 10mg for a while-still not too good but 25 mg is perfect for me..it is actually an antidepressant that works excellent for pain..it numbs the nerve ends and stops the pain from jumping on to the next nerve..hence a very painful body...the antidepressant is probably a lil bonus as most of get depressed from time to time..yes it does knock me out to give me that great sleep which is just sooo needed, to be able to deal with the pain etc the next day..but once I'm up and dressed..I'm fine.....Its great...16yrs down the track..have to be woken up in the morning..but once up and about I'm just fine.....when I was first on them I was like a zombie..but it's like a miracle med for me... it takes a while to settle in. ..also, please remember that less stress is the key to Fibro....be blessed..have a lovely day..:-) xxx
Lillychiff christine26761
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thanks everyone. X
christine26761 Lillychiff
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Angel51 Lillychiff
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Long and short is that all react differently so everything is trial and error. I hope you find it works for you, good luck Lynda.
Angie
HOTpicks99 Lillychiff
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