Posted , 12 users are following.
I started this thread and im still suffering months later. Its improved but not where i need to be. Had 4 mona lisa treatments, used premarin, estrace, estradiol, hylauronic acid. u ladies that use vagifem, is that the magic that makes this under control. any advice is appreciated tired of suffering. will go away but always seems to return.
0 likes, 52 replies
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Dotsie Guest
Posted
Hi Fern sorry to hear you are still suffering.I have found The Well Woman Clinic which is run totally by professional women dealing with all sorts of womens problems.One of their surgeries is in Bristol ..they have a few in the Uk....not sure which country you live in..who do a procedure called the n-u V. You can book a free phone call on line.The cost is roughly the same as the Mona Lisa.The lady who called me was called Ros and very helpful.I was going to book a consultation but then i have just been refered to a specialist lady consutant in my area by my GP.I will let you know how i get on. Speaking to the very knowlegable nurse who did my smear test last week it seems the dosage of Vagifem pessaries or cream is the answer....I will be back ..keep your chin up..i know what you are going through xx
olive8 Guest
Posted
i know its been very quiet of late and I am wondering too. Mine is the same nothing works long term I use the estriol and YES VM I Constantly get the feeling of spasms in my area there and its horrible and up so many times during the night with needing toilet and stinging and burning.. I also feel my bladder is so painful and that goes a bit after I have been to the toilet but builds up again. Somebody wrote heat behind the back for a while helps well all that it did for me was burn my skin on my back - too hot I presume
will look for other replies again
wendy62425 Guest
Posted
Hello Fern
I have been using VAGIFEM now for over two years and it is what gives me quality of life. Before starting the Vagifem i felt like I had a UTI all the time....very uncomfortable.....and many times I did get UTI's ontop of that. when I started the Vagifem it took several weeks to finally feel normal again....which has been a blessing. Two weeks before starting the Vagifem my GYN had me use Estrace cream for two weeks then start the Vagifem 2x weekly. The UTI's lessened to 2 in 2 years.
I wished that I could take Vagifem for awhile and it would heal......it does .....but unfortunately my GYN said this is lifelong. If I stop the Vagifem the pain and discomfort will come back. I tried to lessen the amount to one a week and quickly felt the discomfort coming back so 2x weekly works for me...some ladies need more.
Fern, this is what works for me..... i hope you find what works for you so that you can feel quality of life! I wish you well. Please keep us posted. we are all hear for each other.
Wendy
Tezes wendy62425
Posted
Hi
i was prescribed the eostrogen pessaries for vaginal atrophy after the menopause by a gynacologist but as others have said it comes back when you stop using them. My problem is that i have terrible burning for a good 5-10 mins when ive used some of the over the counter non hormone products and ive tried a few incl replens, Ky and Boots chemist own brand gel.
wondering if anyone can recommend one that is known not to have this reaction .?
i havent tried Vagifem, Sylk or Balance Active....... any advice ?
many thanks
Suki_girl Guest
Posted
I use ovestin cream (estriol) and after just a couple of weeks of use it returned my vagina to a much younger version of itself. It is my miracle cure.
wendy62425 Suki_girl
Posted
Hi Suki
I plan on asking my GYN doctor about the estriol cream at my check up in January. my GP said that was a good option. i think I'm just afraid to switch to something else when the VAGIFEM works for me. if its healthier then maybe its worth a try.
wendy
olive8 wendy62425
Posted
well my doctor said estriol has a lot of benefits and he doesn't expect any problems with it all. He said the amount of estrogen was so small he would struggle to find any in my bloodstream. I am down to once a week although I think I probably would be better on twice weekly but am anxious of using more of it. I kept using it once a week for a while then started using half of the applicator twice a week and I think that is much better. I thought using half twice a week would be better because with the many times I visit the bathroom when I used the whole one a lot fell out and using less stayed in better. That's just me it probably makes no difference. i just know I had to do something estriol or otherwise I couldn't cope without it its such a terrible thing to live with. i
donna18720 wendy62425
Posted
every time I think this awful pain and burning is under control it comes right back and I'm miserable again. I'm doing estrace everyday for 14 days . I don't know what else to do. I had in the past been able to use norco for the pain until the estrace works it out but my doc put me on a low dose valium for insomina and I think I shouldnt take that together. I'm going to call in the morning. the burning started the day after Thanksgiving
wendy62425 donna18720
Posted
Hi Donna
Werent you using YUVAFEM for the AV? we cannot stop using the YUVAFEM or VAGIFEM otherwise the pain comes back and you have to start over again. what are you going to use after the ESTRACE CREAM for 14 days? Is this the same Donna? It takes time for the Estrace to work......after the 14 days then I started the VAGIFEM FOR 2 x WEEK.
WENDY
sheila46003 wendy62425
Posted
my doctor gyn told me to use VAGifem twicE AWEEK THEN CHange to once aweek this is, not enough so i use it twice a week what do you think.? I keep getting capitals I wonder why?
wendy62425 sheila46003
Posted
Hi Shiela...they updated Patient UK......and when they did, everytime you hit for capital letter it doesnt change back to lower case....its kind of a pain. As far as taking Vagifem 2x weekly....that is what my GYN doctor has recommended for me. If i go down to less than that the pain comes back. I need to stay on twice a week to feel normal....otherwise it is too uncomfortable and takes while to feel normal again. Is there a reason why your doctor said to go down to 1 a week?
Wendy
Suki_girl wendy62425
Posted
I believe twice a week is the norm. I hate the new patient site, like you say once you press shift it stays in upper case, also i have lost predictive text and auto correct.
donna18720 wendy62425
Posted
Yep the same Donna ! lol I was glad to see you were still on here.I started having problems with the yuvafem almost like yeast. So I went back to Estrace cream. I'm probably going to stay on the estrace. I went to see my primary care doc this morning and she put me back on norco too, sent my urine for a culture which i assume will come back neg sure feels like a UTI though. It's my own fault I have been skipping doses of estrace thinking it was fine. I should know better. Going to see a new gyn. waiting on the referral. Thought about mona lisa for awhile but I am hearing a lot of not good things about it now. Have you heard of osphena?
SInce I was last on here I have been dxed with Parkinsons. Tremors started in my right hand and have progressed quickly seeing a movement disorder specialist but not until April. So life has not been so rosy. I'm on the 5th drug to treat my tremors and balance. All have come with big time side effects. The one I'm on now is amantadine, so far it's helped slightly. My Mom had Parkinsons so I knew what it was at the first twitches.
Seems that every health issue I have is chronic and not well treated.
wendy62425 Suki_girl
Posted
Hi Suki
I agree.....i almost just feel like just doing all caps instead of shifting back and forth...or doing all lower case. The old way was getting crazy with all the advertisements.....hoping they can fix this problem so we dont have to keep shifting back and forth.
hope this finds you well......have a good day.
wendy
wendy62425 donna18720
Posted
Hi Donna
I am so sorry to hear that you are going through these health issues and hope you will get back on track with taking the ESTRACE as prescribed. AV or VA is lifelong so we just need to continue the meds that give us quality of life.....i would rather not have to take the Vagifem or the 1mg of PREDNISONE each day for my Chronic URTICARIA....but I have to....i pray I will be able to go into remission for that but know not for the AV. I will ask my GYN at my appointment in JANUARY about the compounding cream that Suki uses. I too have heard not so good things about Mona Lisa treatments for some as well. i will do the "wait and see" long term with it first. I have seen the osphena advertised but that is it.
Let us know what the urine culture results are. yes, unfortunately AV feels just like UTI when its out of control. i remember before the VAGIFEM and before knowing about AV Iwould go to doctor and urine results would come back negative....
Keep us posted....Take good care Donna.
Wendy