Anyone else have Meniere's?

Posted , 6 users are following.

I followed up with my ENT/Neurotologist after vestibular testing and he dx'd me with Meniere's disease. He thinks I also have BPPV. 

His recommendation is low-salt, low-caffeine, low-alcohol diet. I have a heart/vascular condition that requires a high salt diet, so I've cut back, but not entirely.

I began taking low-dose multivitamins a few weeks ago when our family took a vacation trip, and my 7-week daily/constant dizziness stopped during that trip. So far, so good.

In the meantime, I'm wondering what Meniere's (if his diagnosis is correct) might have in store for me.

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14 Replies

  • Posted

    Have a look at VEDA website, the cover all the vertigo related problems and are a ine of infrmation.  they also have a Facebook page you can interract on.
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  • Posted


    I have viritgo and my sister has menieres 

    But we were both given the same medication! And we  both had that special man-over done on us that really does work to correct inner ear problems.

    You can get the exercises off the Internet that you can do at home which are just as good as what a specialist does.

    Hope this help you.

    Best wishes



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  • Posted

    I think Vertigo is a symptom of balance/dizziness problems, not the actual illness as for example BPPV, or Menieres etc etc.

    Can you tell us exactly what 'man over' exercises are?  sounds intriguing - hope you don't mean the desensitising ones where you move head back and forth and up and down etc as a lot of us on here have done all those without any result.

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  • Posted

    I was diagnosed with Menderes disease in 1973 and gad frequent episodes until probably 1985 after my son was born. The episodes were then less frequent until 2005 when I realised I had not had an episode for 1 year and I have not had any since. I have no,idea why it suddenly disappeared but I do know that when I was having regular episodes it was always connected with stress
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  • Posted

    VEDA is a great place to go for information about all the different types of vertigo. BPPV is another form that is commonly assoicated with Meniere. It is possible to have both. I have a friend who has both. She says that the Meniere's did't always bother her, but that her postional veritog did. Did your doctor try any head manverours to confirm that it's also bppv? That's how they tell if there are loose ear rocks. If you want to read up on what your dealing with, VEDA is great and they cover all different types vertigo but I also was just mentioning yesterday on the forum that I found a facebook group called simbalance that offers information talored to postional vertigo. Just rememebr your not a lone. We all know what your going through. Hang in there! 
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  • Posted

    I was diagonesed 10 years ago.  It's gotten a lot worse within the last year.  The doctor gave me that water pill, diutetic (tramtramine) I know that' snow how you spell it.  Any ways, dizzy spells have gotten so bad I can't work.  I went to a new doctor and he tested my blood and the diuretic lowered my sodium to danderous low levesl.  I went and saw a specialist (just an ear doc) and he gave me another prescription, I took it 3 times and I was so sick I thought I was going to die.  This medication took away all my sodium and potassium.  It was another diuretic but without the additive to protect potassium.  For the last month my head has been buzzing and I've been so dizzy I forgot what a normal life is all about.  No-one can seem t help me and for some reason the diuretics are just bad for me.  Please be careful and get your blood checked periodically to check your electrolytes.
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