Anyone had to wait over 6 months for an appointment with a consultant

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i had been waiting for 6 months for an appointment with a consultant and then when i saw him i wasn't allowed to speak and it lasted all of 10 minutes, needless to say i have complained about him but got nowhere and this was weeks ago i am so upset that noone wants to help me with my prolapse and i have to live with it

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  • Posted

    Sorry christine but I pressed the reply button too quickly. You are entitled to a second opinion, have you requested that from your GP? I don't know the reason why you waited so long for your initial appointment because the NHS guidelines say you should only wait up to 18 weeks. I know a lot of patients wait longer but 6 months in gynae is unusual. I think you mentioned on another thread you weren't told what grade your prolapse is. Well I wasn't either and I was seen by a urogynaecologist I know! Often it's difficult to be accurate. If you're still wanting to complain then I'll happily help you with that via private messaging x

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    • Posted

      Hi Matron how do i do private messaging to you on this board i am not sure, still not got very far with my complaint someone phoned me up and fobbed me off with excuses so nothing really resolved guess that is it then i have been referred but told it will probably be another six months before i can see someone again just left again to get on with it by myself not sure if i will be alive in six months at this rate
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  • Posted

    Hi Christine just be aware you are not alone. You need to go back to your gp and ask if you can be referred to someone else if at all possible. Your story isn't rare from what I read. My story is I started to feel a lot of health problems in 2013 I gave up my full time job as a nursery nurse as it was so physically demanding and couldn't get part time work in that so got a part time cleaners job. I went to the gp's with how I was feeling around my pelvic area and hip, got referred to physio whilst doing physio one day at my job I felt everything drop at this point then I got the prolapse and hernia but I didn't get diagnosed at the time. I went to the gp within a few days as the hernia was quite apparent straight away. I had scans to confirm this and all the time I told them about underneath also. My periods stopped and after scanning I'd got cysts on my ovaries waited to see a Gynaecologist. Further scans suspected endometriosis and I'm not emptying bladder fully, laparoscopy for endometriosis. Now 2015 post op with Gynaecology I still have exactly the same pain on lower back/hip swelling underneath that's always been there, he said it's not a Gynaecology issue go back to gp. Go back to gp, and he decides to do an lumbar/sacral Mri results from that are spondylolethis and degenerative disc disease but these shouldn't give me the problems that I have but because of the results he'd got to send me to physio. Her assessment was she didn't think it was but she listened to all what I said and said it sounds like you have a prolapse. I said wouldn't they of seen it? She diagnosed I also had scoliosis. Back to gp this is now 2 years since I first went, gp diagnosed mild cystocele and referred me for physio, as waiting list was so long after about 6 weeks they give you a group appointment then if you want a solo appointment you go back on waiting. Started physio which although was helpful wasn't helping so whilst doing that went back to gp who then referred me to urogynaecolgy, physio said I should hear in 6weeks for an appointment usually within 14 weeks, started chasing it at 6 and there was issues with the local ccg and delays I didn't want to hear all this I just wanted an appointment. Then I was told the local ccg were only funding one outpatient appointment which physio couldn't understand, but she did say the appointment was only going to be about 10 minutes and he may not even examine you. I broke down at my HR at my company (I never took any time off during all this) and she said to use my husbands medical cover to see a urogynae which I did and she diagnosed a grade 3 rectocele which I had surgery for in December which I am still recovering now different story whether it's been successful but although I wish I hadn't of had to use the cover where would I have got without seeing someone and examine me etc? Sorry for the such long story but for my own experience if you don't have the option to see someone private please go back and get referred to someone else and be strong with that X Take care

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    • Posted

      Donna are you in the uk i have been messed about a lot with my rectocele no one wants to help waiting for a 2nd opinion and was told it could be 6 months before i get anappointment they just leave you i am at  a loss what to do 6 months is a long time trying to deal with the prolapse on my own itsvery difficult
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  • Posted

    Forgot to mention in surgery she said I had a grade 3 rectoenterocele and grade 1uterine she said before surgery that my back/hip problems may ease or go and those have improved for the pain of the last few years!
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    • Posted

      Hi Donna,

      Sorry to jump in here but I don't see rectoenterocele mentioned that often! I have one (don't know what grade) & I get lots of back aches. Are you saying that your back problems have improved since your op? None of the doctors I have seen will give me an answer on this, "might improve" is the best I've had. I know we are all different but I didn't have so much backache before all this prolapse business started. Thanks.

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    • Posted

      Hi yes the back/hip ache has improved-I still have it but that's why I went into my full story of recent years because I didn't know what was causing it and when I kept getting diagnosed with these different things I thought I'd get an answer to how to improve. I had to give up the nursery nursing end of 2013 because the pain was so bad but the pain is better than what it was then but saying that I'm off work sick at the moment but saying that even when I wasn't working my pain would never go. I can't guarantee it with you but for me I think it has helped a lot with the pain I had! How did you get diagnosed?

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    • Posted

      I had an anterior repair & hysterectomy 3 years ago. He said my back wall would need doing at some point too. Following the op I've had lots of bowel problems & have seen gynae & colorectal people. Matron suggested I see a urogynaecologist, she diagnosed the rectoenterocele & I also need perineum repaired & my AR has partially failed! Lots to look forward to - not. 😕

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    • Posted

      Hi I am sorry to hear that your previous surgery partially failed and that you have the prospect of future surgery but hopefully in the near future you will feel the benefit x I am 8 weeks post op posterior repair and things don't feel right, not the same. I went for my post op 2 weeks ago and urogynaecologist said stitches were still in place but I feel the swelling further back in rectum or something. I have physio linked to post surgery on Monday and shall talk it over with her but I can see I'm going to have to maybe go down the colorectal route sad It feels like it's never ending sometimes! I am glad I have found others going through similar experiences on here though and Matrons help has been a lifeline x

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    • Posted

      It's still early days for you, at 8 weeks you might still have some swelling. I've found that the gynae & colorectal people just don't communicate, if they did it would help us enormously & probably save the NHS money. One of the best people I spoke to was a specialist female physiotherapist. She was very down to earth & honest, I paid to see her privately as too long a waiting list with NHS but was worth every penny. I will probably contact her again if & when I decide to go ahead with further surgery just to get her advice. Good luck with your appointment x

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    • Posted

      My physio was brilliant too, would like to get checked before I return to work though as my job involves lots of lifting
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