Anyone have 100% success with Ablation?
Posted , 21 users are following.
Hi,
My name is Danielle, I just joined the forums for some support. I am 31 years old and had my first catheter ablation about 6 weeks ago for ventricular tachycardia. I've been reading a lot of different stories online about those who have had ablation and I have yet to read at least one story that resulted in 100% success. It seems like many people have still had issues after the surgery and others have had 2 or 3 more ablations. I had a really great doctor and he assured me that he got all the areas that were causing the arrhythmia. I went from have several really bad episodes a day to none at all but just a few days ago the palpitations returned, not severe like they were but I constantly feel dizzy or light headed. I would be so disappointed if the surgery didn't work. It's only been a little over a month since the surgery and I don't go back to the cardiologist until another two months so the heart is still healing and these recent palpitations might be nothing to worry about but I am just wondering how many people have had full success with their ablation? How long have you been cured? And did you have episodes in between your healing before they were finally gone for good?
1 like, 80 replies
e59734 Rawwrr
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Rawwrr
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Well the ER was extremely busy, I was there for hours. They did a ct scan on my head, they did a X-ray of my heart, they ran some blood test and urine sample and had me hooked up to a monitor, checked my blood pressure in several different positions and in the end all my test came back normal and they sent me home with a 48 heart monitor and told me to follow up with cardiologist. I didn't get a specific answer but I do find relief in knowing that I don't have a brain tumor or some kind blood pool lingering somewhere. I was watching my heart rhythm on the monitor and it appeAred to be perfect, it wasn't throwing off pvc's or offbeats like it was the before the surgery. That was also a relief. So now I'm in a position where I hope whatever this presyncope issue is, I hope it's temporary and not something I will never find the answers to. The worst is when all these doctors and nurses think your crazy and it's all in your head. It's not though and that's upsetting but hopefully my cardio can give me more definite answers within the week. I don't think I'm dying though so that's a plus.
mary90 Rawwrr
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ciaran33745 Rawwrr
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Danielle, like Mary said, it sounds a lot more positive than it does negative. Its good that the scans didn't reveal any physical cause for the symptoms you've been having. And its also good that you're now back in the medical process until you get the right treatment for this. Keep in touch to let us know how its all going
Rawwrr
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Thanks for your support and encouragement. I'm not sure when I will see my cardiologist, seems impossible to be seen right away but I will give an update when I have one. The anxiety might be triggering some bizarre symptoms but I've had some pretty stressful moments in my life and it never seemed like my anxiety could overcome me and cause such symptoms. But then again I never expected the SVT to take over either. The nurse at the hospital tried to say it was allergies, I completely lost respect for her at that moment and thanked the gods when a new nurse took over. Anyways thanks for listening, it is so nice to talk to people who truly get it.
ciaran33745 Rawwrr
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Hey, you're welcome
Going to the hospital was definitely the best thing to do because you got all those tests done.
I don't think you said you'd been back to your GP. If not, I would definitely do that too. Not only to keep them 'in the loop' but also to discuss the anxiety issues again with someone who knows you for a while.
You might also discuss the 'anxiety medication' that you said had been stopped recently. I don't know what type of medication it was or how long you were on it, and you are well read and thorough so you've probably taken it into account, but just in case its worth remembering that withdrawal symptoms from such things can be pretty awful and last a long time.
I was on a benzo called Ativan for a few months about four years ago. It was prescribed to help me cope with the stress of a rapidly fatal diagnosis I got for a rare blood cancer and the strong chemo/steroid treatment that followed (I was one of the lucky few that have survived it because of early diagnosis).
The benzo made a huge difference I'm really grateful for, and wouldn't do anything much differently if I had to go through something like that again. But it took me at least a month, maybe two, of gradually reduced dosage to function calmly or nerve-lessly without it. During that time I had to increase the dosage a few times to feel less edgy before reducing it again.
Stress and anxiety can produce a pretty wide variety of unpleasant physical symptoms so it would be no harm double-checking that you're not still in withdrawal from the medication for it.
Rawwrr ciaran33745
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My anxiety went unmedicated most my life primarily because I was without insurance. About 5 years ago I found a clinic doctor and they put me on Celexa 20mg, it worked miracles for my anxiety but then after I got pregnant I stopped taking it because of all the birth defects that medications can cause. After the pregnancy I decided to go back on celexa but it didn't do anything for me at all. I gave it some time to kick in and often I was just too busy to go back to the doctor to get something different. The last time I was on it was probably back in January of 2016. I ran out of refills and just got super uninterested in treating it anymore, kind of had this note in the back of my head that I would eventually go to the doctor. Strangely enough after being off the meds for few months I had my first SVT attack and called 911 cause I thought I was going to die and I had never had a palpitation so I didn't know what was going on. I was aware that I had SVT because they discovered it after I had my daughter but at that time I had absolutely no symptoms and they thought I was crazy because I couldn't feel anything but they said the monitor was freaking out with pvc's. My cardio assured me that it was fine and they wouldn't do anything unless something changed for me. I blew it off and actually convinced myself that there was nothing wrong with my heart and the hospital was just trying to make extra money. Of course that frame of thinking all changed almost two years later when my heart nearly blew out of my chest. I stayed the night in the hospital and of course I didn't have another episode while there but just that one episode was enough for me to have the ablation. It was a two month wait so they put me on calan which worked great the first month but then I stArted having these mini 5 minute palpitations that would happen 5 to 12 times a day. While this is all happening I still was not on any anxiety medication. Fast forward to one month after the surgery but prior to the pre syncope, I did see my regular doctor and asked about going on a new anxiety medication but he said he would like to keep me off of them until my heart condition is clear. I made it very clear that I wanted to be on a safe anxiety medication that has the least risk for my type of heart condition. So the moral of the story is that I would love to go back on something but I am also terrified that it might destroy whatever progress I have made. No offense to my primary care doctor but I would rather my cardiologist tell me which drug is the better option. Primary care doctors seem to have no clue about arrhythmias. At least the ones here don't.
I personally couldn't go the benzo route because if it works really well, I would end up liking it too much and I'd have a hard time stopping them. Like you said it took you awhile to manage without it, I couldn't do that. Plus I doubt the doctors would approve it, going from such a elementary drug like celexa to a full blown sedative. They'd think I lost it. Maybe not though I dunno considering how drastic my symptoms are now.
I'm starting to believe the whole anxiety thing, I was hooked up to this holter monitor all day yesterday and didn't feel like fainting at all. I got a minor headache in the afternoon but I didn't get sick. It was a nice day for once besides this holter monitor getting in my way. So I was thinking maybe my anxiety really is that bad. The relief of all the tests they did ruled out a lot of things that were causing me anxiety. I don't know, I almost hope it is just the anxiety because that I think can be easily controlled without surgery or heart medication. I think I just need to calm down and stop getting ahead of myself. I also need to stop looking things up on google cause it's making paranoid. My newest concern are these leads on the monitor cause this tape isn't sticking and I'm worried the results are going be choppy. I don't know how they expect people to do their regular activities with these things on because I can't even sit here without losing my tape.
Goosfraba!
ciaran33745 Rawwrr
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Thanks for sharing that Danielle, I understand a little better now.
I would definitely follow your own advice and stop googling symptoms. A leaflet with a common painkiller will have a warning that it could cause liver or heart failure or something.....I don't think there's a limit to the amount of scary stuff you can find googling symptoms! We've all been there...
I have no real medical knowledge whatsoever, just whatever common sense stuff I've might have picked up through personal experience, so you can't really trust anything I say or advise. I can only guess, especially from this distance.
The mobile monitor should pick up whatever heart palpitations, flutters and jitters you get over the next few days. I now doubt that it will pick up SVT again, or any physical ailment originating within your heart. My best guess now would be that anxiety, or something else coursing through your mind and/or nervous system, is at the root of most of the symptoms you've mentioned.
If I understand you right, SVT is the only heart condition you have actually been diagnosed with? And its still up in the air what is causing other stuff like palpitations etc.?
If that's the case, and nothing to do with your heart is diagnosed from the mobile heart monitor results (i.e. in line with the reassuring scans you've just had), then I'd prioritise seeking an answer about whether anxiety is your main ailment.
Is there somewhere else to go apart from the GP you don't seem to have great faith in?
mary90 Rawwrr
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Rawwrr
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Thanks Ciaran and Mary for listening to my story. I think I have calmed down a lot since going to ER. They say to never expect a flawless heart after ablation but it's hard to not make a huge deal out of every sharp jab, flutter or kick. I have a really great primary doctor now that I like a lot, it's not that I don't trust him, he is actually the one that suggested for my cardiologist to approve an anxiety medication. Right now I'm happy with both my primary doctor and my cardiologist. Once the heart is completely healed and we know for sure that the SVT is gone then I will go back on anxiety medication. Unless my cardiologist suggests I go back on it sooner depending on the results of this holter monitor. Hopefully I will get a follow up appointment after he reads the monitor. Only four more hours to go and hardly any dizzy spells. Strange.
ciaran33745 Rawwrr
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That's good Danielle. Do try to stay positive; I'm a firm believer that is more important for recovery and healing than can be readily explained!
Wishing you much better luck than you've had recently, and let us know how you're getting on.
Rawwrr
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Turned in my holter monitor late Thursday. Hoping to hear something from the cardio on Monday. I hope and pray anyway. I'm still experiencing the same symptoms though often it feels like my heart is stopping and restarting. It feels weird, like your chest is empty. Sometimes it feels fast, sometimes it feels normal and sometimes it feels like I'm dying. I've self diagnosed myself with about 5 different conditions thus far but now I think I've got it down to two. I've completely ruled out panic attacks because I don't hyperventilate and my symptoms have progressed into more of rhythm disturbance so my number one guess is Brachycardia which will require a pacemaker and my second guess is POTS or maybe both. Still hoping for an answer. I called the cardio office and they did schedule an appointment but it's like 2 weeks out. I hope they find something on that holter monitor that tells them I need a pacemaker asap.
mary90 Rawwrr
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Wouldn't it be great if a pacemaker could be the answer to it all! Let's hope for the best Danielle. x
Rawwrr mary90
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I'm not at all terrified of a pacemaker, from what I read it doesn't take long to put it in and the recovery is much the same as an ablation.
mary90 Rawwrr
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A friend of mine had a pacemaker fitted 6 months ago. He said the procedure was painless (similar to an ablation) and from not being able to do very much because of lack of energy and very slow heartbeat he is now back to running again. Let's hope it's the answer for you too.
ciaran33745 Rawwrr
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Hi again Danielle. Mary's right, my elderly mother had a pacemaker fitted and it was no big deal, so I wouldn't worry about that if it does happen.
The sensation of heart stopping and restarting sounds quite like the flutters that people often get after an ablation. I think I mentioned that I had them for a month or so after the ablation before thay went away (or I just stopped noticing them). I guess SVT folk are so tuned into heart rhythm and beats that we probably notice minor variations that other people wouldn't. Hopefully that's all it is.
If the cardio people are happy not to see you for two weeks then that's probably a good sign. Fingers crossed for you