Anyone using natural alternatives for relief?

Posted , 12 users are following.

This discussion has been locked due to a period of inactivity. Start a new discussion

I'm newly diagnosed, though have been suffering severely for years. Could anyone tell me what relief, if any, they may get from non-steroid, non- mainstream medicines eg. Manuka honey(the real stuff)/ organic honey, olive oil, aloe vera, or anything else. I am sure a lot of experimentation must be going on.

0 likes, 25 replies

Report

25 Replies

Next
  • Posted

    I'm doing fairly well with less sugar and  daily bathing in borax.     There is a thread called an experiment with Borax on here which is worth checking out.

    Report
    • Posted

      Has anyone been told you have an over active immune system. I'm asking cause I've been taking vitamins to build my immune system. Now I get LS and Vasculitis

      Just wondering if any of you have been trying to build your immune system like I have for the last year?

      Report
    • Posted

      That's the theory, that LS is an auto immune disease.  However, I also have mal functioning adrenal glands with as a result that my immune system was very weak.  If an over active immune system is the cause of LS, then I shouldn't have LS, is my thinking.  For that reason I'm thinking that maybe LS isn't an auto immune disease, but rather some sort of imbalance of the human body which then causes skin problems. 

      ?I have LS and LP plus skin problems on hands and feet.  I have been able to keep all nicely under control with baking soda and borax mainly.  Very occasionally I use a tiny little bit of Clobetasol. 

      ?And I'm taking multple extra vitamines and more, just to boost my immune system.

      Report
    • Posted

      I just quit taking all my probiotics yesterday March 12, 2017 I'm going to see if it will help. Took all these vitamins for a long time thinking building up my immune system would be good. Now I get all this. I will see if it helps in a few weeks

      Report
  • Posted

    BAking soda and borax are my staples to keep LS at bay.  Next to dilation, hormone replacement, and coconut oil. 
    Report
  • Posted

    Well i tried to share what i use but the moderator deleted me. Funny someone else mentions a brand name and it goes through and i mention another brand name and bam, deleted. This is exactly the reason i rarely post anymore which is sad since i have had ls for 20 plus years.
    Report
    • Posted

      I've had some stuff refused, which i couldnt, for the life of me work out why.       

      Dont take it personally Dianne,  oerhaps the moderator is just habing a bad day, or is maybe a robot?   

      Report
  • Posted

    As has been mentioned, please check out the thread "An experiment with Borax" . I started using the Borax both in the bath and the saturated solution and I have not had to use the Clobetasol for almost 6 months. I use Vitamin E to keep the skin strong and olive oil, coconut oil or almond oil to moisturize. I also have a spray bottle that has a few pinches of Borax in it and spray after each toilet.

    God bless, there is a lot of positive information and great encouragement on this site.

    Report
    • Posted

      Per information from other woman on this site, I use 1/3 of cup Borax in a bath. Or if I am soaking in a Sitz bath I use about 2tsp. My gyno said when I shower, NO soap of any kind in the vulva area, just water.

      Hope that helps and Yes, moisturize all the time.

      Report
    • Posted

      What do you use for internal pain? I've been using the premarin estrogen and inserting with the applicator. Any other suggestions?

      Report
    • Posted

      I am using estrogen,buf nothing else. I do not have internal pain though. I hope others reply to you in this question!..

      God bless and guide you and check out all forums on here about LS.

      Report

Join this discussion or start a new one?

New discussion

Report as inappropriate

Thanks for your help!

We want the forums to be a useful resource for our users but it is important to remember that the forums are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the forums is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.

newnav-down newnav-up