Posted , 12 users are following.
I'm newly diagnosed, though have been suffering severely for years. Could anyone tell me what relief, if any, they may get from non-steroid, non- mainstream medicines eg. Manuka honey(the real stuff)/ organic honey, olive oil, aloe vera, or anything else. I am sure a lot of experimentation must be going on.
0 likes, 25 replies
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sandra01720 Seawatch
Posted
I can mange my LS so much easier with Emuaid. I hate running out of it. I don't need near as much steroid if I use Emuaid!!
brendabuckmstrs sandra01720
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Neldog Seawatch
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I'm doing fairly well with less sugar and daily bathing in borax. There is a thread called an experiment with Borax on here which is worth checking out.
brendabuckmstrs Neldog
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I bought mule team yesterday. How do you use it? I'm thinking it would be strong as wash
brendabuckmstrs Neldog
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Has anyone been told you have an over active immune system. I'm asking cause I've been taking vitamins to build my immune system. Now I get LS and Vasculitis
Just wondering if any of you have been trying to build your immune system like I have for the last year?
hanny32508 brendabuckmstrs
Posted
That's the theory, that LS is an auto immune disease. However, I also have mal functioning adrenal glands with as a result that my immune system was very weak. If an over active immune system is the cause of LS, then I shouldn't have LS, is my thinking. For that reason I'm thinking that maybe LS isn't an auto immune disease, but rather some sort of imbalance of the human body which then causes skin problems.
?I have LS and LP plus skin problems on hands and feet. I have been able to keep all nicely under control with baking soda and borax mainly. Very occasionally I use a tiny little bit of Clobetasol.
?And I'm taking multple extra vitamines and more, just to boost my immune system.
brendabuckmstrs hanny32508
Posted
I just quit taking all my probiotics yesterday March 12, 2017 I'm going to see if it will help. Took all these vitamins for a long time thinking building up my immune system would be good. Now I get all this. I will see if it helps in a few weeks
hanny32508 Seawatch
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dianne.us Seawatch
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Neldog dianne.us
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I've had some stuff refused, which i couldnt, for the life of me work out why.
Dont take it personally Dianne, oerhaps the moderator is just habing a bad day, or is maybe a robot?
joanna43- dianne.us
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joanna43- Seawatch
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As has been mentioned, please check out the thread "An experiment with Borax" . I started using the Borax both in the bath and the saturated solution and I have not had to use the Clobetasol for almost 6 months. I use Vitamin E to keep the skin strong and olive oil, coconut oil or almond oil to moisturize. I also have a spray bottle that has a few pinches of Borax in it and spray after each toilet.
God bless, there is a lot of positive information and great encouragement on this site.
brendabuckmstrs joanna43-
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joanna43- brendabuckmstrs
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Hope that helps and Yes, moisturize all the time.
ashleyk1997 joanna43-
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What do you use for internal pain? I've been using the premarin estrogen and inserting with the applicator. Any other suggestions?
joanna43- ashleyk1997
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God bless and guide you and check out all forums on here about LS.
joanna43- brendabuckmstrs
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