Are any visitors currently suffering with Globus? - My update so far
Posted , 44 users are following.
Hello,
My life with Globus continues....
It's been two years + now since I was diagnosed with Globus the only trouble is that my mind just cant accept this and always thinks that it is something more sinister..
My symptoms are / have been..
Tight / Uncomfortable sensation whilst swallowing, like there is something there.
Constant thinking about the sensation of swallowing ( due to constant throat sensations)
Clicking in throat when swallowing, worse when drinking liquid.
Stabbing pains under jaw
Feeling that there is something coating the back of my toungue
Senstations worse when tired but not as bad in a morning when i wake up
Long term tickly cough 4-5 months
Different food and drink irritates my throat
My tests/ treatment over the last two years include..
Loads of blood tests including several full tests
Six endoscopies ( camera up nose looking down at throat) with 4 different consultants
One Gastroscopy ( camera down throat & oesophagus to look for damage / anything sinister)
Lots of different Doctors and Consultants feeling my Lymph glands
CBT (Cognative Behavioural Therapy)
Clinical Psycology (Current)
Lansoprazole (in case i have silent reflux)
Two chest xrays
Diazepam
Citalopram
Propanolol
All tests came back clear.. But even after all that lot I am still no better with the Globus and have a second Gastroscopy coming up in early February to check for changes to the condition of my oesophagus and throat since the last one
Please message me if you have had or are having simlar experiences with Globus as it is driving me to distraction at the moment..
I look forward to hearing from you
Best Wishes to all fellow sufferers... I will update after next gastroscopy.
10 likes, 81 replies
ZEN.
Posted
Sedation was optional but didnt really fancy having a 3 foot camera snake put down my throat to my tum and duodenum ( beyond tum) whilst fully awake.
Absolutely no signs of cancer whatsoever thankfully.
The biopsies are just small samples of the oesophagus lining to allow the laboratory to take a microscopic look and see if I have any acid damage or anything else that would explain why I am having throat problems and a throat irritated by certain foods and drinks.
If its all clear then no follow ups from consultant and I will be back to Globus disgnosis..
Good luck with your ENT
Keep me posted and dont worry ..
Best wishes
A
Cathy25
Posted
ZEN.
Posted
The sedation option for a Gastroscopy is only to patially sedate you and not to knock you out cold as you need to swallow the camera snake when instructed by the consultant.
There were loads of times I was nearly sick as you can imagine with a three foot tube down your throat, thats why you cant eat or drink 4 hours prior to proceedure ( in case you are actually physically sick).
I have been advised that SLT (Speech language therapy) at the hospital will be able to help with throat and neck excercises to help with globus sensation but they need a report from ENT done within the last 3 months which I dont have, so I may have to have another ENT refferal to progress this one infortunately..
To be continued ...
ZEN.
Posted
I have just been told that SLT Speech Language Therapy can help with globus so..
I spoke to SLT at my local hospital who said they could only help me if I had a report from ENT dated within the last three months.. I dont as my last one was 5 months ago.
My doc tried to get past this hurdle with a direct call to SLT but they wont budge on the 3 month bit so I am now waiting for another ENT appointment to get me to SLT who will hopefully finally help with my Globus.
What a journey the last two years have been..
Still ...Always try to stay positive and keep smiling ...
Cathy25
Posted
ZEN.
Posted
My journey with Globus has been a long one and is not over yet, my throat feels really tight this afternoon which makes swallowing food feel awkward and uncomfortable.
However if just one person who reads this post benefits in any way it has been worth logging the experience, maybe when you have had your ENT appt you could skip my last two years and go straight to ask for a refferral to Speech Language Therapy at your local Hospital to help you excersise the tight muscles in your neck and throat if ENT say it's Globus..
Has your doctor actually diagnosed you with Globus?, or do you think you may have it by researching your symptoms?..
Exactly whereabouts is your neck hurting?
Did you have a look at the Health Anxiety support link that I posted?
http://www.ntw.nhs.uk/pic/leaflet.php#
Search for Anxiety then look at Health Anxiety leaflet it will help you to understand what is going on in your mind and also the fact that a certain degree of Anxiety is normal but it is easy to get a little too Anxious as I have found out..
Take care
A
Cathy25
Edited
Check nothings there! So im worryin mad, I've researched globus and I do have some o the symptoms but other ones too, my neck seems to be more tight on one side not in te middle where moat globus sufferers seem to hve it, mines more one sided on the right? Feels tight and if I turn my neck to the left it feel like the right side is pulling, it's not hurting just strange sensation there and feels like someones lightly holding my neck on that side ? Strange and hard to explain really, sometimes feels a little heavy and numb kind of feelin although if I touch it I can feel it if that makes sense to u, do u think ENT will do the endoscopy there at apt or will they just examine me and send me
Back for the camera another day? Feels swollen to me too although doc said he don't think it feels swollen x
japhetrey11991 Cathy25
Posted
I am also suffering from this condition for almost 4 months now, been on PPI's for the first 2 months as my globus is probably triggered by GERD/LPR. Never had some serious ultrasound or CAT to scan my neck. My ENT doctor just performed Laryngoscopy and found nothing in my throat but redness and that was 2 months ago. I would totally agree with you that this is all mental, but sometimes i can't help but think that my esophagos might have been damaged due to acid overflow that reaches my throat sometimes which makes me anxious all the time too.
paige401 Cathy25
Posted
GinaNTc paige401
Edited
Grisel GinaNTc
Posted
Cathy25
Posted
ZEN.
Posted
If you like this Globus chat please click the 'thumbs up' icom in the top right corner..
Ps the info on the link will definately help you understand your anxiety, have a look and let me know if it helps..
Stay positive
A
ZEN.
Posted
ZEN.
Posted
Just had 7th endoscopy all clear.
Consultant is sending me for Barium swallow and x-ray just to check my swallowing is ok ( I am still getting infrequent clicking when swallowing). He said I probably had pharyngeal spasms that we causing the discofort and tight throat feeling when swallowing..
So to summarise:
My doctor thinks it's Globus
Last consultant thinks its Dysphagia
Consultant before that thinks its silent reflux
This ENT thinks its pharyngeal spasm
Is there any wonder patients get health anxiety?
Ps .. Good news.. The result of my 8 osophageal biopsys taken 3 weeks ago after Gastroscopy have come back normal / clear