Are these test results normal? High EBV viral load at 11 months?

Posted , 7 users are following.

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Here are my symptoms at 11 months:

-Stool is finally normal (was yellow and pale for the last 10 months)

-Foggy head - feel like i'm having tunnel vision

-Twitches through my body (arms, legs)

-Hands, feet and arms getting numb and cold

-My tongue is turning white (looks exactly like hairy oral leukoplakia)

-Throat is still as red as day 1.

-SEVERE KNEE PAIN

-Heart flutters and sometimes pain in my heart

-Resting heart rate is high.

(HIV tests are all negative) EBV is a horrible virus.

Anti-nuclear test was borderline also 😕

Am i gonna get better? Could i be getting lupus?

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  • Posted

    also this is my ANA -- what does this mean?

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  • Posted

    I am 8 months in and still have most if not all of those symptoms still. I actually have a low rest heart rate thought somewhere between 50-65 depending on the day. I also have headaches and eye pain. I struggle from day to do with different symptoms and work is extremely hard some days but from what most people have said you get over it 100% at some point. I believe lupus has a rash symptom that is on your face and very noticable something about a butterfly shape.

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  • Posted

    Hey John. I just hit the two year mark and my EBV numbers are still high. My nuclear antigen is negative though- which is bizarre. But my Igg early antigen is a 13 and my Ab VCA is over 600. I've taken various antivirals (valtrex, acyclovir) for 2 months and it brought my early antigen down to a 9 but it's back up now.

    I'm still sick- (no where near the intial sickness) but I have what would be considered chronic fatigue syndrome. I relapse, then get better, then relapse again. It's pretty frustrating. I've now been diagnosed with lyme disease and am trying treatment for that.

    Hang in there. There's a doc out of Alabama that treats fibro and cfs with a combo of an antiviral and an anti-inflammatory that's had huge success. He's in a stage three drug trial for it. Might be something to bring up to your doc.

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  • Posted

    Where at in alabama i am actually from South alabama myself.

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  • Posted

    Dr. Skip Pridgen from Tuscaloosa. You can read about him if you google it. There's also the Stanford Chronic Fatigue Clinic but they aren't taking anyone right now- even on a waitlist. I've been trying. But both treat with antivirals. Dr. Pridgen's is way less harsh though.

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  • Posted

    Mine where about the same as yours after 14 months of this hell virus and my white blood cell count was around 18,000 . The only thing that has helped me out is ozone therapy and i tried everything out there . I'm at about 18 months now and about 80% recovered .

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    • Posted

      Hey David – did you do the injections or IV ozone? It’s one of the only therapies I haven’t tried and I’m super curious about it. But also a little scared that I will herx bad on it.

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    • Posted

      Lisa , I started with (1) 10 pass IV a week and didn't herx to bad . I worked my way up to (3) 10 pass IV treatments a week and thats when i herxed bad for one full month May 2019 . I am now doing (1) 10 pass a week and i also started home RI therapy . This virus is hell and its causes so many problems in your body . I have had extensive blood testing and worked with some of the best doctors around . All i can say is ozone therapy is giving my life back .

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    • Posted

      John , I tried all the same stuff for a year and didn't get any better as a matter of fact i was getting a bit worse . The moderator keeps holding my posts for whatever bs reason . The only thing that has helped me recover is ozone therapy ! Hope good health for you and everyone else fighting this hell virus ....

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    • Posted

      thank you so much. i literally dont know whwre id be without this site right now. losing my mind. this is so frsutrating. i cant go to the gym. i feel high all the time. i lost 5 pounds last week. im so miserable, im trying to stay positive but the constant twitching sometimes is unbareable

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    • Posted

      Hang in there John, this virus really gets you this way - I think most people on here can relate to how you are feeling, it's just makes you feel awful and there's no words to describe it. But you will get through it man, truly you will - there is recovery from this, just so frustrating it can take a bit of time but believe me man you will get there - just take it a day at a time that's all you can do when feeling that way (or feeling any way for that matter), and hoping this can be a more settled weekend for you.

      Craig

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  • Posted

    hey john i am 7 months into the virus and have symptoms like yours..the soft stools and pain in stomach off and on the twitching in random areas all over body, white tounge, occasional heart flutters (use to happen more they dont happen as often as they use to), my left foot has numbness at the top of it my feet and legs have been getting cold also...just letting you know my doctor had told me even after you start to feel better your numbers can still show high for up to a year

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    • Posted

      im glad im not alone in this... thank you for replying. this virus is the devil. i am miserable. im glad that someone else is having similar stmptoms i thought i was going crazy 😦

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    • Posted

      some days are worse than others. i just want my life back. do you guys think all these supplements are bad? they seem to be helping

      i forgot to add im also taking elderberry

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    • Posted

      i feel the same way john i have some days that are worse than others too which maybe is a good thing hopefully that means its trying to settle down.. i have only been taking a multivitamin and vitamin c and tried echanacia but it made me feel funny so stopped...i would say as long as its not making you feel bad and it seems to be helping then i dont see why not but im no doctor lol ive heard others saying they took herbs or monolaurin and it helped them to get through it

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    • Posted

      well good that something is helping! and yes drink plenty of water ive been drinking alot of water and started drinking green tea also..stay hydrated expecially if you run fever ive been having low grade fever

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