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I'm a 53 year old non smoker who has suffered with supposedly 'mild' asthma since the 1990s. Various inhalers have not helped and symptoms gradually worsened (severe breathlessness when walking up even slight inclines) that I asked to be referred to a spirometrist. Spirometry test results indicated COPD rather than mild asthma, so i was referred to a pulmonary consultant, had more lung function tests and a CT scan which revealed extensive scarring and air trapping, "suggestive of obliterative bronchiolitis"; a solitary pulmonary nodule with calcification (1.8cm) was also discovered in the middle lobe of my right lung and i am now awaiting PET/CT scan results to find out if this is benign or cancerous. In the meantime, I have been taking Prednisolone 30mg/day for the last 5 weeks to see if my lung function improves at all - ie, the consultant wants to see if there is any reversibility of my symptoms, but he is not confident that this will be the case as the damage looks extensive. I have been told that my lung function is approx 50%. I would be interested to hear from any other adults on this forum who have been diagnosed with this condition, and find out how quickly the disease has progressed, what medications have helped you and what your prognosis is. I am totally petrified at the thought that even if i dont have lung cancer, this other condition could kill me within a few years.
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