At the moment the future looks grey
Posted , 7 users are following.
I was diagnosed with CS about 8 years ago in C5 & C6, this was probably down to an injury I sustained about 20 years ago. To be honest the pain hasn't been too bad and I thought I was getting away with it compared to other sufferers.
About 18 months ago I started with a pain in my neck that is constant and I saw at least 3 GPs and they shrugged their shoulders and said, go for some physio and it'll go away. Well I did and it didn't and eventually 2 weeks ago I screamed at another GP and he referred me for an MRI.
Got my results on Friday and C4 is now involved, I have a bulging disc and a straightening of the spine at the top. I knew something wasn't right but as usual the GPs haven't got a clue and don't really care. He told me there is no cure, which obviously I knew, but didn't suggest anything to help me. The pain in the right hand side of my neck is, I suppose, referred pain from the CS, but the stiffness I get now is terrible, I can't tip my head back and when I lean forward I get terrible pain trying to straighten up again. I am 47 and in theory could only be halfway through my life, the thought of living with this for the rest of my life is pretty depressing and presumably it will only get worse if it has over the last 8 years.
I also suffer from migraines which of course the CS makes them more frequent. I just don't know where to turn next, the GP has more or less said go away and live the rest of your life the best way you can.
I have a very supportive husband who does help, but we both have own business so I work fulltime and there is no possibility of me giving work up, not that I'd want to.
Is there any light at the end of tunnel, does anyone find they have times of remission??
Thanks
I've tried physio but it makes it worse
0 likes, 22 replies
paulajo YorkshireLass1
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YorkshireLass1 paulajo
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Thanks for your reply, sorry to hear you've had your problems aswell, it's so difficult to know which way to turn when the very people that are supposed to be there to help, won't. I've been put on amitriptyline and propanolol, neither work so at the moment I'm not taking anything as I'm sick of pumping my body full of drugs that don't work.
Trouble is they won't give us the drugs that work because it costs money and on the surface we look fine, we don't look as though we are suffering, I have private medical care and it doesn't seem to be any different, I can't get anyone to help me.
Good luck at the docs, hope he gives you something stronger.
Benggo YorkshireLass1
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I am in my second year with C/S and at times it drives me daft,at the moment I have pain up the back of my head on the right hand side and right hand side of my jaw.When I started with it,I had phisio and after eight weks I called a halt as like you it made it worse.
When I get busy doing something it seems to feel a bit better as my mind is occupied.Like yourself and Paulajo I find my GP. isn't all that interested and I had to practically demand to be sent for an xray at the start of my trouble.
One thing for sure we are not on our own with C/S,I sincerely hope you suffer less pain.
YorkshireLass1 Benggo
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Coming on here certainly does make you realise that you are not on your own, good luck to you too.
Benggo YorkshireLass1
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I put a lot of my trouble with my neck,knees and shoulders down to heavy lifting at work,years of it.When Ian Duncan Smith,Tory ####### says "work is good for you"I could show him how work is not all good,thankfully I am retired.
YorkshireLass1 Benggo
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Benggo YorkshireLass1
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Shauno44 Benggo
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YorkshireLass1 Shauno44
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Benggo Shauno44
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it is sharp pain in my jaw and a sharp pain up the back of my head,I sometimes wonder if it's punishment of some kind.
No feeling of cramp or ringing in the ears.
donna38091 Shauno44
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Shauno44 YorkshireLass1
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Shauno44 YorkshireLass1
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YorkshireLass1 Shauno44
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Shauno44 YorkshireLass1
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