Atrophic non functioning left kidney. Should I have it removed?
Posted , 8 users are following.
Hi posted on here a while back. Eventually had appointed today with kidney specialist. I have pain in left side and microscopic blood in urine. He confirmed my kidney was totally non functioning but doesn't necessarily think it's causing the pain or the blood in urine. He has said its my choice to go ahead with the operation but by his comments I could tell he thinks I have gone with a complaint of pain they couldn't find anything else on scans etc and that this is what they did find but that's it. He in no way reassured me and it felt like he thinks I should not have it removed. I'm totally confused now and in need of some re assurance if I should or should not have this kidney out? I get bouts of intense pain in left side and feel like if anyone pushed in under the left rib I'd hit the roof. So confused.
1 like, 17 replies
Liana1984 julie77473
Posted
Thanks
julie77473 Liana1984
Posted
rhonda32879 julie77473
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My diagnosis of non functionting kidneys was given to me simply from a blood test. i don't know if I believe this or not. Was just this year treated for a raging infection and am doing better after meds for that. I do have the kidney pain when even running the sweeper though. I really don't know. I was just at the hospital for edema,swelling in feet and legs. He said my kidneys were fine.?
annie318 julie77473
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With me, I had an ultrasound which showed that my kidney had shrunk quite considerably. I also have a lump that is under my left breast that is large which is caused from an enlarged spleen, which was also seen on the ultrasound along with scattered splenic granulomas. I have a lot of pain which I don't know what is causing it but I hurt to lean over or lay on my side or if it is touched. I don't know if this may help you, but perhaps an ultrasound may help you out as well. Good luck! I am still trying to figure out what all is going on with me. Frustrating, huh?
annie318 julie77473
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I'm sorry, I got confused on who I was replying to. Julie, if you have any pain at all and your doctor is not taking you seriously, then see another doctor. YOU pay them and therefore, they should be listening to you! I would highly suggest that you get a second or if need be, a third opinion until someone listens. I know pain, trust me, I have other medical issues, and these doctors need to understand that it is NOT just in our heads! Good luck!
helen54849 julie77473
Posted
Hi,
A non functioning kidney shouldn't cause you pain that is why iCKD is called the silent disease. I have 3 kidneys 2 of my own that don't work and one of my friends. The non functioning ones don't cause me any issues at all. The only way they would remove them is if they were causing infections or other issues and as they are not they left them there.
The fact that your kidney does not function should not cause you pain, therefore before you make your decision (And it is your decision) I would try and get to the root cause of the pain first, you don't want to be in a situation where you go through the operation to remove the kidney and the pain still be there. Even though it is keyhole it is still very invasive. You have a right to request treatment of course you do and so I would ask the question "What is causing the pain" have you had your urine dipped to see if there is infection, if you have and there is not I would ask for a sample to be sent to the lab and have it cultured as some infections do not show up on a dip test. I hope you get the help that you need very soon.
karen_12358 helen54849
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That is not true I have a non functioning left kidney that was found due to acute pain and a hospital admission. I have frequent bouts of very severe pain & it makes me very tired and unwell - I am currently waiting for a nephrectomy which my consultant has advised me to have done.
annie318 karen_12358
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richard70590 helen54849
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My plan was to alter my diet, lose a little bit of weight, continue my exercise activity, continue my blood pressure control medication (bp is fine in fact low in the AM). I had a septic infection after earlier surgery in 2015 and would be very happy to to go under the knife and risk a repeat especially if the infection could spread to the good kidney. Again, thanks for posting.
richard70590
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Sorry I skipped the "NOT" when I spoke about going under the knife to remove the non-functioning kidney. Kidney problem must be affecting my brain.
richard70590 julie77473
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I fell outside last March on some icy stairs and had no pain so I didn't see a doctor. I have routine cystoscopies because of a bladder tumor in 2015. My June pre-op lab tests showed I had a low GFR so the doctor did a sonogram then CAT scan which showed a large hematoma adjacent to the left kidney from the fall. Same lab results in November (hematoma drained ) so I had a renal scintigraphy (radioactive die into system). This showed 4% function in left kidney and 96% in right kidney. I am 70 and feel fine. They suggest removing the kidney. I am overseas in Europe with a good hospital team). Wish I could find an experienced urologist to suggest.
richard70590 julie77473
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james95390 julie77473
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I just had neucular function test 15% right kidney 85% left kidney had a tumor removed in my right ureter tube went thru chemo and now no sign of cancer but doctor says the right kidney needs to go due to low function no cancer found in kidney it's smaller and and function at 15 % worried about living with one kidney at 85% function my creatine level 1.35 and bun at 17
rhonda32879 julie77473
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I too have been told I had blood in urine and non functioning kidneys. I had surgery even to determine why the blood, Then the doctor,,every question I had,,well he just didn't know. I feel like this is a scam! If you google this, it mentions kidney failure. I had a major Hospital tell me in 2013 that I was in Kidney Failure. SO who knows? These docs around my area, I think it's just all about them making money and the heck with the patient.
rhonda32879
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I would not have it removed if you don't have to. Also told non functioning kidneys, told in 2013 I was in kidney failure. Not true. I recently was treated for an infection, and that was causing major problems. I do have the kidney pain, but have seen my dad go through dialysis, and also a cousin. It is awful. Keep the kidney!