Autoimmune Palio diet

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I am seriously considering a restrictive healing diet. I've drastically reduced my sugar and somewhat reduced caffeine but not seeing as much improvement as I'd like. I tried gluten free briefly but found it difficult. Now I'm again throwing this idea around in my mind and researching.

Have any of you had amazing results with diet? Is it worth the pain? My naturopath wants me to eliminate any food that I eat every day for a month. That would b gluten and dairy for me. (Don't eat much dairy at all).

Any thoughts would be appreciated. Thanks.

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  • Posted

    Hi Sandra,

    I do think everyone suffering with LS is different and will have different results with changing their diet but its a good place to start. I found elminating (mostly!) sugar, gluten and dairy did the trick for me and am basically symptom free and have been discharged by my specialist. To begin with I was v strict but find that now I can have the odd cheat and not suffer too many consequences from it. I have actually started eating gluten again and it hasnt affected my LS at all, so for me I think dairy and sugar are the main irritants as they both create huge inflammatory responses in the body.  Its definately worth giving them up for to have a happy undercarriage smile 

    Good luck !! Let us know how you get on xxx

    • Posted

      This is great to hear and very hopeful to know , is it hard to stick to I would imagine , I havnt looked I to it yet but it sounds like you have to cut everything out , I don't know what to eat if I can't have dairy or bread ? Can u eat gluten free bread and cereals and pasta or is everything with grains ruled out ?? Also does everything have to be organic , this would be the hard part for me as iv 5 children and everything organic is very expensive !
    • Posted

      Hi! So you don't have to use any topical meds from the diet changes? 
    • Posted

      Sorry for late reply!

      I dont buy organic because of the costs involved but would if I could! Sure it all helps. Gluten free bread / cereal / pasta are/can be v expensive too but they are easily available in normal supermarkets. I must admit I wasnt too anal with the gluten free - just bought those products instead of normal but wouldnt worry about using a separate toaster from the rest of the family for example which you should do if you are properly intollerant. I have got used to having coconut milk - still love dairy tho and if I am out for dinner in a restaurant I don't worry too much having the odd treat. But I must say all these dietary changes are all very healthy anyway so I sort of feel like I am looking after my health too, not just keeping the LS at bay.  Good luck, I hope you are like me and get a positive result from the changes - at least you feel like you are back in charge of your body, not the other way around! XX

  • Posted

    Very excited for you! I've been gluten free a while now and it has given me the confidence to consider trying to leave out the clobetasol. Which I am now doing. I still need to increase my methylation and in due course to quit sugar too. I don't eat that many sweet things, but flour breaks down into twice as many carbs as sugar, so is a good place to start. But if you can go cold turkey there are some great exclusion diet cookbooks out there.
  • Posted

    It takes at least well over a year to experience any results from dieting.  My diet - no sugar, no alcohol, no caffeine, limited dairy (cheese will definately trigger my LS)  no gluten.  

    My life has improved by illiminating these items for sure.  I also am taking supplements - D3, Vit C, omega 3, B12.  Hormone replacement - estrogen and progesterone.  

    Making sure I have enough rest,  sufficient physical exercise,  fresh air.  Home cooked meals.  

    The whole package keeps my system strong enough to be able to withstand LS and more.  

    But again - it's the long term that does it.  

  • Posted

    Hello, I just want to share with you that I have had great success with changing my diet. I completely cut out Gluten, Dairy, Eggs and Sugar, and my LS steadily improved.  I have not had a problem with it for over 18 months and I haven't used Clobetasol for over a year.  Now I do have small amounts of sugar, but when I try to eat gluten or dairy I feel awful so I don't miss it.  And when I tried to add eggs back into my diet about 6 months after cutting them out, my LS symptoms flared up.  I haven't tried again.  It's not always easy to stick to this diet but it's worth it to me.  Especially since in addition to the LS being gone, I no longer have psoriasis, toenail fungus, and my trouble with depression is greatly improved.  I think my body was trying to tell me something for a long time.  I know it seems like a monumental, almost impossible thing to do, but just try it for 8 months to a year, you may find like I did that it's completely worth it.  Good luck.
    • Posted

      This is so encouraging! If My LS would clear it would b so worth it! Thanks to all for sharing!!
    • Posted

      I have cut out gluten, dairy, corn, eggs, alcohol and reduced sugar as much as possible. I'm feeling much better and seeing great improvement.

      You say you are off Clobetasol. Are you pre or post-menopausal? I'm asking as there is research that says LS will be go into remission before menopause, but not after. 

       

    • Posted

      I think I am gonna try this diet too!

      Last year I followed a low carb/high protein diet to lost weight, but I think LS was triggered by that. Because the LS got worse unfortunately...

      next week I am gonna try acupuncture. Because I want to get rid of the Clovate cream

    • Posted

      I'm 51 so I'm peri-menopausal.   And, I too take supplements, I take the same as hanny32508 does with the addition of zinc and probiotics. I'm happy to give you any information you need, it's such a horrid disease.  
    • Posted

      great elisabeth! i've eliminated gluten, grains and trying with cutting out other things....good luck to you too! 
    • Posted

      Hello

      do you mind if I ask what you do eat?  I have cut out gluten, sugar and dairy coffee and alcohol but what's left for breakfast and lunches with no eggs for filling you up and giving you protein? 

      I would really love it if I could have some ideas for lunches and breakfasts (instead of the usual boring gluten free cereals) 

      i am also on the FODMAPS diet for IBS and gastric disease  (eliminating many foods with hidden fructose, polyols and other 'ols') and since four months ago when I got serious about dealing with LS I have lost 12 kilos, about 26 pounds I think. Life without eggs seems impossible. But maybe I have to try it. How can I find out if I have an allergy to eggs?

      meat and veggies for dinner is usual for us.  But ideas for other meals ?

       

    • Posted

      Hello,

      Sure, I'm happy to.  Since I've become used to it, it's really pretty easy.  First off, I found out I had an intolerance to eggs when I first started the diet.  I eliminated everything for 3 months then started one at a time to try them again.  Eggs were the first thing I tried, and I had a terrible LS flare up right away.  The gluten and dairy give me terrible digestive troubles.  And sugar makes me get a bit itchy down there so I stay away from it as much as possible.  I do occasionally bake with honey or maple syrup but I'm very careful to not have very much.  

      For breakfast I most often have a shake; 1/2 frozen banana, 1 cup frozen blueberries, 2 tblsp. peanut or almond butter, 1 tblsp. flax meal, 1 tblsp. chia seed, 1 tblsp. hemp seed, 1/2 cup almond milk, 3/4 - 1 cup water, 4 ice cubes in a blender.   Sometimes I'll add silken tofu to make it creamier.  That's it on most days, but occasionally I will have toast made from a flax bread, that has no eggs in it, from a local bakery. 

      Lunches are usually salads with some protein, turkey, chicken or beans.  Sometimes I'll have a baked potato with a veggie on it, and some Daiya cheese, and non dairy sour cream.  Sometimes a veggie burger with salsa on it, or a gluten and dairy free burrito.  Also, I eat a lot of homemade soups and stews.  I also eat lots of hummus with veggies or rice chips or crackers. 

      For baking I use an egg replacer and It's really fine, everything tastes good.

      I hope that helps you.  

      I now know that my system was really out of balance for a long time.  Making these changes has been so great, I feel much better all around.  And, to not have to deal with LS, it's TOTALLY worth it.  I don't regret it one bit.

    • Posted

      I have a vegan protein shake in the morning. (Many protein shakes are whey (dairy) based). It's not delicious, but it does the trick with a piece of gluten free toast or banana etc. I say not delicious as I simply put the powder in a jar with either some soy or almond milk and shake. I'm lazy, often running out the door and don't expect a yummy breakfast. Willow's version is for days when I have time. During the work week I also save my sugar intake for later in the day when I have some fruit.

      On the weekend I'll have sausages with gluten free toast.

      Vegan cooking resources will show you where you can find protein other than animal sources. I realize you are eating meat, but it helps to give ideas of how to cook without eggs or dairy.

    • Posted

      Thanks a lot Willow! That's very comprehensive. As I have already cut out so much I really only have eggs left to eliminate so I it won't be too hard in one sense. But I do love my eggs, especially duck eggs. Ah well, we shall see. 

      The shake: I already make the almost identical one in the evening, I also add flax oil and slippery elm.  But maybe now I'll try it in the morning because it is quite satisfying. I have rice milk, and  have the non dairy sour cream and use it in soups. I also make my own soups and stews as onion and garlic are out for IBS.  Baked potato, yum. I could microwave that to save time.

      Gluten and dairy free burritos sound great, thank goodness NZ is starting to take food allergies seriously in recent years and we can get most things now. Nightmare to have had allergies 20 years ago here I suspect.

      thanks again for taking the time to give such detail.

      kind regards. Egg free starts tomorrow confused

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