Azithromycin
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Diagnosed about seven years ago with Bronchiectasis after asking to be referred to hospital as sick of just being fobbed off with antibiotics by the doctor. 5 lots at the last visit. CT scan showed bronchiectasis caused by childhood Bronchitis. Kept emergency pack at home but recently different bugs in phlegm so have had to have different antibiotics. Am allergic to Penicillin. Last year had 3 or 4 infections in 4 months so hospital have given me Azithromycin to take alternate days 3 times a week. Have taken twice and have really bad back pain between shoulder blades. Felt a little unsteady the other day was told about side effects of liver and deafness,. Anyone else had any problems. Want to stop taking but frightened.
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joy23863 mo_69
Posted
cofalot mo_69
Posted
Sounds like you have taken the right course of action getting in touch with the nurse. Sorry it seems to be the Azith which seems to be the problem. I have IBS (think because of all the lifelong medication) and when I first tried Azith, like Operalyn, had horrendous stomach pains and the runs. Without them I would have to go on abs roughly a week after finishing a course due to high temps and filthy gunk, which also gave me stomach pains and runs - so I am between the devil and the deep blue sea. Intolerant to so many abs.
I am colonised with HI and the nebulised Tobramycin improved my IBS symptoms so I asked con if I should try Azith again. He wanted me to have them only 2 days a week for the anti inflammatory properties for my asthma rather than the bronch. Well now improvement in colour of gunk and no high temps but still cramping and runs, which both appear whenever - really awkward.
Do you know what you are growing and how frequently? Have you tried nebulising hypertonic saline to help get up the gunk?
I've hear a few folks hear talking about specialist bronch nurses. Do you all go the Brompton, 'cos as far as I know there are only about 5/6 specialist non cf bronch nurses in the whole of the UK, compared to the amount of specialist nurses for cf and copd.
I hope they can sort something out soon for you Mo, so you can feel a bit better.
cx